Need some advice from some very smart and wise women - YOU!

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Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 9/11/2005 3:08 PM (GMT -7)   
I am reluctant to post here because I don't believe this is likely a breast cancer issue, at least I hope not. I have Crohn's Disease and am active over on that forum. I have stopped by and read here occasionally and admire the strength and knowledge you all possess.
 
I had a mammogram in late June. All was ok according to the report. I have very lumpy, large breasts. They are difficult to self-examine because of the large ducts from breast feeding my girls many years ago.
 
about 3 weeks ago, I began having sharp pains in my left breast on the "down" side, below the nipple. At first the pain was only with my bra off. Then it began to be tender even with the bra on. At one point my breast felt tighter than the other, like it was swollen. Sort of felt like it did when I had mastitis years ago while breast feeding.
 
Saw my PCP on Friday. He said I have ductal tissue that feels hard and ropelike. He evaluated my meds, asked about my Vitamin E intake, and caffeine usage. I have very little caffeine intake, and what I do ingest is the same level for the last 20 years - 2 diet sodas [TAB] every day. That equals about a cup of coffee. The PCP tells me to give up caffeine for a week and call if the pain persists. Day three know and the pain has not subsided one bit.
 
I doubt this pain is going to go away. I do not have a GYN doctor, had a hysterectomy 17 yrs ago. So it will be my PCP deciding what to do next. Frankly, he has botched a few things lately and I'm not too trusting. I know further testing will be in order, or at least it should be. What should he order? Repeat mammogram? Ultrasound? MRI?
 
I want to be armed with the best info when I call him so that I can lobby for the best "next" step. Thanks in advance for the advice. You all are amazingly knowledgeable!
CD for 25+ years; finally Dx 2004. SpA diagnosed soon after.
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JUJU8872
Regular Member


Date Joined Jun 2005
Total Posts : 349
   Posted 9/11/2005 4:10 PM (GMT -7)   

Hey, there. Sorry you are feeling so uncomfortable with this situation. Let's pray that it is nothing. Most of the time, it generally is. I can tell you that you came to the right place. Someone here will have the definitive answer or you'll get info from lots of people that will help you in the right direction.

Do you have a HMO? If your insurance requires a referral to a specialist, ASK for one tomorrow. You did not mention age or family history, but with I believe an ultrasound at the least is indicated since you have large lumpy breasts. If you have a PPO, ask around in your circle of friends and acquaintances for a surgeon or call the local ACS or Komen chapter for a referral and call and make an appt. The important thing is to do something now for your health and PEACE OF MIND. Stay in touch.

JUJU


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 9/11/2005 4:40 PM (GMT -7)   
Sorry I forgot the particulars. I'm 55, postmenopause, took estrogen for 5 years and off of it for last 8 months. No family history of BC. I also take immunosuppressant drugs [Remicade and Immuran].

I have to get a referral to any specialist from my PCP [insurance requirement], though I can see a GYN without a referral.
CD for 25+ years; finally Dx 2004. SpA diagnosed soon after.
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Jo-Ann
Veteran Member


Date Joined Jul 2003
Total Posts : 829
   Posted 9/11/2005 4:57 PM (GMT -7)   
There is a diagnostic mammogram which zeroes in on certain areas and there is the ultrasound (or is that sonogram?). Whatever happens, be sure the dr has one of them done. To quote a friend, "If it don't feel right, it ain't". You may need to be a little assertive but don't rely on what anyone tells you without proof.

Let us know when the tests are scheduled.

Hugs, Jo-Ann
A good friend will bail you out of jail...
but a true friend will be sitting
next to you saying,
"Dâmn... that was fun!".


Candy
Veteran Member


Date Joined Jul 2003
Total Posts : 1294
   Posted 9/11/2005 5:15 PM (GMT -7)   
Get another mammogram. Your will feel better knowing what ever it may be. It is always better to know for sure. Jo-Ann is right, "if it don't feel right, it ain't". But that doesn't mean it is B/C. Keep us in the know and as you know we are here for you.

Hugs and prayers,

Candy
Two are better than one, because they have a good return for their work: if one falls down, his friend can help him up.  Ecclesiastes 4:9-10
 


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 9/12/2005 12:43 PM (GMT -7)   
Sometimes we have to lead our doctors to making a decision for us to see a specialist. Given that you hare already in enough pain and trouble with Crohns, I would suggest you need a little more help than the PCP can provide. Does the PCP handle the Crohns? Breat problems can cause immune system problems, too. I think you deserve some special care. I, too, hope that it is nothing. Hugs MK

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