Chantry, how did chemo go?

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Tavish
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   Posted 9/14/2005 8:01 PM (GMT -7)   
Check in when you can, we're thinking about ya!
 
L&H,
Lori


chantry31
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Date Joined Aug 2005
Total Posts : 188
   Posted 9/15/2005 2:16 PM (GMT -7)   
Aurrrg. I was supposed to go on Monday Sept 19, then, on Monday sept 12 they told me that my chemo was going to staart on wed sept 14...but, I have a cold (my colds go right to my chest, and sometimes take me weeks to get over, and I dont want to get pneumonia!!) so I called my Care Nurse and when I saw my onco on Wed (sept 14) she delayed my first chemo to Tues sept 20. Yikes. And then on thursday I have my portacath surgery. Since Tuesday I have been at the hospital every day (mugga test, onco appt, mammogram, radiologist appt). I feel like I live there! But I feel like I have just been given a few more "grace" days. So DH and I are going out to celebrate our anniversary (with all that has been happening we both TOTALLY forgot our anniversary!). So the countdown begins again.

Jen

ps How are wedding plans going??
There are no wrong turnings, only paths we did not know we were meant to take - Guy Gavriel Kay


Kattbird
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Date Joined Jun 2005
Total Posts : 243
   Posted 9/15/2005 3:59 PM (GMT -7)   
I didn't want to start a new topic on this since today was my 1st day. It went fine. I took a portable CD player with me and a puzzle book. Whatever that red crap med is that they put in me with a syringe, I could feel it going through my vein, it was cool feeling. I got home about 5:30 had a bagel and some chicken noodle soup. I don't feel sick in any way....... YET! Hopefully I won't but do have some drugs for it. I may take one shortly just in case. I don't even want to get to that point. I kind of feel a little bit of a lump in my throat right now, so it may be coming. mad   So I go back on 10/6 for round 2. I've been drinking quite a bit of water since I've been home, which I really don't like water, but I will do what I can to try to take care of myself for now. Sorry you keep getting delayed with your treatment. I wish I could have delayed mine and delayed and delayed.

Tavish
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   Posted 9/15/2005 5:20 PM (GMT -7)   
Katt, way to go! Sorry I did not ask about yours too, but glad you are feeling well. That red stuff is the adriamycin...I was taken aback when I saw the nurse gowned, gloved and goggled to administer it, but I took it right in the vein! That is caustic stuff! Definitely gotta drink that water, but not too much or it can be had on your stomach too. I never really felt sick, but each chemo night (well 3 out of 4), I got a wave of nausea at about 10:30 pm, vomited once, and that was it. Never felt sick and never threw up except for that one moment. Hopefully you'll fare well too!

Chantry-
We are still looking at places, need to wait for one to see how it looks with a wedding set up. We're looking at a year from now, but I am looking online and in magazines for dresses, bridesmaid dresses, flowers, photographers....it is too much! Enjoy your anniversary celebration!

L&H,
Lori


Kattbird
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Total Posts : 243
   Posted 9/17/2005 5:00 AM (GMT -7)   
Well, it's day 2 after my chemo. So far I am doing ok other than some heartburn. I took some Peptol Bismol (tablet) and it relieved it some. about 8:45 the 1st night I felt a small lump in my throat like maybe I may feel ill so I took 1 of the pills for nausea and went to bed. I got that way about 10:30 last night too so I took another one. My mouth is extremely dry. I have drank more water in the last 2 days that I probably have in the last 2 months. I don't like to drink water even though I know it's good for you because it makes my stomach hurt if I drink too much, but hasn't seemed to bother me yet. I got my Neulasta shot yesterday and I took a prescription motrin before I went to bed last night in case I may wake up with any joint pain. I felt a little jittery yesterday morning and I don't know if it was just anxiety that I may get sick or if it's that pill I have to take for 4 mornings after treatment.

Brnadebt
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Date Joined Jul 2005
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   Posted 9/17/2005 10:10 AM (GMT -7)   
Kathy

Im so happy that all is well. I knew it would go fine, its the fear of the unknown that is the worst. Im glad you are drinking your water it is important to wash out the toxins. Did you pee red or orange??? I do after every treatment of the adriamycin. They warned me ahead of time so that I would not worry. My mouth was dry too and got a little sore after the first treatment but not the second. Glad all when well for you.
Hugs:)
Bernadette


chantry31
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Date Joined Aug 2005
Total Posts : 188
   Posted 9/17/2005 6:19 PM (GMT -7)   
Kathy
Im really glad that everything is going well for you - it makes me feel a little less apprehensive about what is coming up for me. How do you feel energy wise? Do you have your treatments every 3 weeks? I'm not going to be getting a Neulasta or Neupogen shot - I almost feel a little left out since you and Bernadebt both get it. Should I be asking my onco about it? I'm getting A/C +T. I read that the "dose dense" types of chemo may have a slightly better chance at recovery. I've been given my nausea pills, and I'm supposed to take thm once every 12 hours after the chemo for 5 times - no matter what. it sounds like you only take yours as needed?? I hope that you continue to feel ok!

Chantry
There are no wrong turnings, only paths we did not know we were meant to take - Guy Gavriel Kay


Kattbird
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Date Joined Jun 2005
Total Posts : 243
   Posted 9/19/2005 2:19 PM (GMT -7)   
chantry31 said...
Kathy
Im really glad that everything is going well for you - it makes me feel a little less apprehensive about what is coming up for me. How do you feel energy wise? Do you have your treatments every 3 weeks? I'm not going to be getting a Neulasta or Neupogen shot - I almost feel a little left out since you and Bernadebt both get it. Should I be asking my onco about it? I'm getting A/C +T. I read that the "dose dense" types of chemo may have a slightly better chance at recovery. I've been given my nausea pills, and I'm supposed to take thm once every 12 hours after the chemo for 5 times - no matter what. it sounds like you only take yours as needed?? I hope that you continue to feel ok!

Chantry

I'm not really sure what the Neulasta is for other than it stops you from ovulating. I have only taken 1 nausea pill everyday except today. I only take when I get that small lump like feeling in my throat like I may throw up in a while. So I'm only taking as I feel I may need it. I feel a little tired, but ok in general.

Brnadebt
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Date Joined Jul 2005
Total Posts : 688
   Posted 9/19/2005 7:08 PM (GMT -7)   
Kathy and Chantry

The Neulasta shot is to raise your white blood count. I changed to Nuepogen (sp) but the trouble with that is you have to have it 3 days in a row. Kathy so happy you have not been sick. I only threw up once and that was during the week that I was so sick and all I had in my stomach was Tylenol and anti nausea drugs. I threw them up and nothing else. I think that was the problem not the chemo. I have my 3rd round tomarrow Im hoping it goes as well.
Hugs:)
Bernadette


Brnadebt
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Date Joined Jul 2005
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   Posted 9/19/2005 7:34 PM (GMT -7)   
Chantry

Good luck tomarrow..........it really is not bad at all. Keep us posted.
Hugs:)
Bernadette


Kattbird
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Date Joined Jun 2005
Total Posts : 243
   Posted 9/20/2005 5:09 AM (GMT -7)   
In my last post I meant to say the Zoladec shot is the one I'm also getting to stop me from ovulating not the Neulasta. Chemo brain already. redface

chantry31
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 9/21/2005 8:03 AM (GMT -7)   
Well one down and seven more to go.The actuall chemo wasnt too bad. Just sat there and read the newspaper. After, DH and I went grocery shopping (he's on this "eat right for your bloodtype" kick). I felt a little queasy after dinner and went to lie down. I didnt really sleep well last night - if that keeps happening I might ask for some sleeping meds. This morning I feel tired, and occasionally queasy, but so far it seems to have gone ok. Tomorrow I head back to the hosital for my portacath insertion.
Hope your third chemo went ok Bernadebt!

Chantry
There are no wrong turnings, only paths we did not know we were meant to take - Guy Gavriel Kay


Brnadebt
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Date Joined Jul 2005
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   Posted 9/21/2005 5:18 PM (GMT -7)   
Chantry

So glad your first chemo went well, the lack of sleep is caused from the steroids some people are up for the whole night cleening. I had that after mt first chemo but not after my second. I didnt have my chemo because my white blood counts were too low. I had a shot of Neulasta instead.

Good luck with the port a cath, I had VERY minimal pain. Hubby and I went out to dinner when I got home. It was the easiest surgery I have had. Keep us posted we care :)

ps what does your cocktail consist of?


Hugs:)
Bernadette

Post Edited (Brnadebt) : 9/21/2005 6:22:43 PM (GMT-6)


Kattbird
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Date Joined Jun 2005
Total Posts : 243
   Posted 9/21/2005 6:58 PM (GMT -7)   
Glad you're 1st session went well. It's not really bad, like everyone says, it's the unknowning. How many treatments are you getting? I am getting 6.

chantry31
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Date Joined Aug 2005
Total Posts : 188
   Posted 9/23/2005 7:19 AM (GMT -7)   
I'm getting AC &T (4 of each). The port a cath surgery went ok - i'm just not allowed to pick up my daughter for 24 hours (ya right). My stomack is stil a bit sensitive, but I think things are getting better, although I still havent had a good nights sleep. I'm not absolutely fatigued though, which is good. Does that come a bit later? or is the worst part right after chemo? Hope you are both doing ok.

chanrtry
There are no wrong turnings, only paths we did not know we were meant to take - Guy Gavriel Kay


Brnadebt
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Date Joined Jul 2005
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   Posted 9/23/2005 1:20 PM (GMT -7)   
Chantry

You should talk to your Dr about some sleeping pills, alot of the women here have had trouble sleeping. You will notice some of my posts are during the middle of the night when I cant sleep. I really dont have fatigue like some have had. I dont know if that comes later or not. Make sure you get some sleep :)
Hugs:)
Bernadette


chantry31
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 9/25/2005 11:32 AM (GMT -7)   
Well, Saturday I was basically on my back all morning - sooooo tired. Fortunately DH took care of dd. In the afternoon I was feeling better andwe went for a walk. Today I'm feeling much better, but two things are REALLY bugging me:
Anyone know how to get the adhesive off of your skin from bandages?? The itching is driving me crazy! I tried "Goo Gone", and all thats done is made me smell like a very cheap used car. I've heard that vodka works, but to combine that smell with the goo gone, well, my stomach has been doing ok lately, and I dont want to push it!! (LOL)
The other is this hair thing... not that i mind it falling out...i just dont like it falling out all over my house, and at such a slow rate. If its going to fall out, then it should just get it over with and do it! Then I could clean it up and get on with things. Oh well. Both are such minor problems considering what everyone else is going through.

I'm so glad that your family is ok Lori. We have been watching and praying for everyone on the gulf coast.

Chantry
There are no wrong turnings, only paths we did not know we were meant to take - Guy Gavriel Kay


coopfesta
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Date Joined Sep 2003
Total Posts : 1373
   Posted 9/25/2005 3:16 PM (GMT -7)   
Hi:
 
re: the hair.  I didn't wait that long.  once it started coming out I went to the wig stylist and got a shave.  Rita had a head shaving party with her son.  Once I got it overwith, I felt better.  It's nice that some of you are going through this together.  I used this site every night when I was where you're at.  I did AC-T too and was given kytrill for the nausea, which worked great.
 
I've heard of stuff that is actually made for taking the band aid adhesive off your skin.  ask your doc or the nurses.  I'll ask around and see if I can remember what the stuff was.  I had one pad of it in one of those single-serve packets once.  It worked great.
 
Watch the tomato sauces right after chemo.  It's supposed to lend to nausea.  and you shopped afterwards?  like in a supermarket????  That's pretty amazing.  I just veged
"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius

Ellen


Brnadebt
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Date Joined Jul 2005
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   Posted 9/25/2005 7:59 PM (GMT -7)   
Chantry


Re: the hair thing SHAVE IT!!!!!!!!!!!!!!!!!!!!!!!!!!!!! It is so much easier, I waited a few days and it drove me nuts with hair all over the place. Glad everything else is going okay.
Hugs:)
Bernadette


Tavish
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Date Joined Jul 2003
Total Posts : 2272
   Posted 9/26/2005 3:51 AM (GMT -7)   
Tomato sauce was bad for me because of the acidity...i had acid reflux from chemo and pizza or spaghetti were not so good for me then.

As for the sleep, please ask for a pill. I found sleeping for the first couple chemo days was fine,despite the steroids. But sleeping the rest of the time was a problem, supposedly the chemo does a number on our regular sleep center of the brain.....consider using ambien, it is so important to get good sleep....

Lori


gma
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Date Joined Jul 2003
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   Posted 9/26/2005 10:20 AM (GMT -7)   
Baby oil will help remove the adhesive. It could be you are allergic to it. I was and had a terrible time because no matter what they tried seems to break me out in itching blisters.

Hugs for all you are going through right now. MK


chantry31
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 9/27/2005 10:52 AM (GMT -7)   
Thanks Mary. Actually, I used tea tree oil, and that seemed to do the trick. But here's another question. It seems that the worst is over for this session of treatment - the first 4 days were icky (nauseous and tired). Now (Tues-Fri) I'm in my supposedly low blood count days - but I feel like I'm at 90%! I have energy, and although I'm not going to be running a marathon soon, I went for a nice long walk this morning. Does it get harder after multiple treatments? or is the first session pretty indicative of what you'll feel like all the way through? If your white blood count is too low, do you feel it?

Thanks everyone.

Chantry
There are no wrong turnings, only paths we did not know we were meant to take - Guy Gavriel Kay


Tavish
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Date Joined Jul 2003
Total Posts : 2272
   Posted 9/27/2005 1:54 PM (GMT -7)   
Chantry- everyone reacts differently to each aspect. I did not feel any different when my counts were low. My onc recommended walking for exercise during chemo, so it may help your energy level. They say that the effect of chemo fatigue is cumulative, but again, it is very individual for us all. The first session may be a pretty good indicator, but it may worsen slightly. I found each round to be identical to the others, if that helps.

Lori

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