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Saint T
New Member


Date Joined Sep 2005
Total Posts : 3
   Posted 9/15/2005 5:57 PM (GMT -7)   
I'm new to the site, but it looks wonderful. I am 43 and I have had a few biopsies for fibroadenomas and the last biopsy yielded a diagnosis of proliferative atypical ductal hyperplasia. Because of strong family history and my own history, I have decided to have bilateral prophylactic mastectomies. My concern is that the doctors are treating this so lightly and the surgery isn't for a long time. These are the doctors who gave me this option. It was surgery or wait and see what happens. Some choice!! I had a mammogram and ultrasound last week because it feels like I have another fibroadenoma. The technician, who is not supposed to comment at all, expressed concern about when I would be seeing my surgeon and practically begged me to see him this week. She even said, "Oh please tell me you are going to have them take this out!" Take what out? I thought ADH could not be seen on ultrasound so what was she looking at? I know my doctor has the faxed results but I have yet to hear anything from his office so am I to assume that I am fine for now? The tech indicated that I was full of cysts and that is new, since my last report shows no cysts on the right.
Through all this rambling, my question is whether anyone is experiencing this cavalier attitude towards a diagnosis of ADH or has ever experienced it? The receptionist always makes me feel like I am bothering her when I call because I don't have cancer, just ADH. I get the impression that the doctors think I am overeacting. I thought that any change in the breast is not good and needs to be checked when you have ADH. Meanwhile, concerned family and friends keep pestering me to more aggressive in seeking treatment and answers. Help. And thank you.

Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 9/15/2005 6:01 PM (GMT -7)   
Sorry, no information for you, just a welcome!

Lori


debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 9/15/2005 6:47 PM (GMT -7)   
Hello and welcome! I don't have any info regarding ADH. My info is in regards to your feelings about this surgery and your physician's attitude. First, if your gut feeling is telling you that there is something wrong, then go with it. Don't let the receptionist make you feel that you are bothering her. Who the heck is she anyway? You help to pay her salary. I would suggest that you get copies of all of your films and reports and get a 2nd opinion. If your dr doesn't like this idea, then I would really begin to question his qualifications and dedication to your health. I wonder if this physician would be as relaxed if you were his wife, sister, daughter or mother? I seriously doubt it. One thing each of us here at this board has learned is that we have to be proactive when it come to our healthcare. We have to sometimes force a dr to listen to us or take the time to answer our questions. As one dr told me, you pay my salary. If I don't take the time to listen or answer your quetions, remind me that I am your employee. I never did have to remind her!
 
Follow your instincts. Get the answers. Get a 2nd opinion.
 
Keep us informed of what happens.
 
Hugs...Deb
 


Jo-Ann
Veteran Member


Date Joined Jul 2003
Total Posts : 829
   Posted 9/15/2005 7:00 PM (GMT -7)   
I know that my surgeon would never indicate that I had a cyst and not aspirate it. The only way they can tell if it is a cyst is to aspirate it. Most doctors will send the fluid out for biopsy. Once aspirated, it falls in on itself and usually goes away.

It is when they cannot aspirate it that it becomes a little more important. I agree with Deb, get all your films and find another dr. I don't know what's up with some drs today. I think you're handling the situation pretty well. I would be very unpleasant to some of the people you are having to deal with. That's why some of my drs cringe when I have an appointment.

Sorry you're here and hope you don't stay long.

Hugs, Jo-Ann
A good friend will bail you out of jail...
but a true friend will be sitting
next to you saying,
"Dâmn... that was fun!".


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 9/16/2005 6:09 AM (GMT -7)   
I'm weighing in on thise one to add my vote for a second opinion. I had two benign lumps removed before my diagnosis with no family history at the time. Since then my aunt and my daughter have both been diagnosed, so now we have family history. You need to be aggressive with doctors, some of them seem to want to save breasts rather than lives. Not that I think your life is in danger, but doctors have delayed and caused real problems. Please let us know what you decide. We are here to help and support your decision. Hugs, Mary K.


Saint T
New Member


Date Joined Sep 2005
Total Posts : 3
   Posted 9/16/2005 12:14 PM (GMT -7)   
Thank you for the input and the welcome. I think I was raised to be good girl and I want everyone to like me so I hate to think I am bothering people. I know...I have to get over that. Especially since I do not want breast cancer. I did not hear from the doctor's office today either so I guess I will have to "bother" the receptionist on Monday and ask what the results were. I really don't think it is unreasonable to ask for the results of my tests, is it? I have a good friend whose BC went to the liver because her doctor didn't call her back to tell her there was a mammogram report stating that she had a suspicious area. Then I have that ultrasound tech scaring me, so I guess I will have to bug them. I just wish they would treat this more aggressively than they are, that's all. Thanks.
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