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grammy
Regular Member


Date Joined Mar 2004
Total Posts : 340
   Posted 9/26/2005 12:53 PM (GMT -7)   
Hope everyone is doing well.
I am doing Herceptin every three weeks and I do not know if this has anything to do with it but I have been getting awful cramping in the calves of my legs. They hurt so bad they wake me up. I was just wondering if could have anything to do with the Herceptin.
My best to you all.
Donna

debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 9/26/2005 3:53 PM (GMT -7)   
Hey Donna! I have been on herceptin for 2 yrs now. Yes, unfortunately, the leg cramps are a side effect of the herceptin. This is the only bad side effect that I have found w/ the herceptin. Sometimes they are so bad they also will wake me up from a sound sleep. I also get spasms/cramps in my feet, the small of my back. chest area where I had the mastectomy and sometimes my neck. I have meds that I got from my oncologist and manipulative therapist just for that problem. Sometimes a hot bath or a heating pad helps. Also a massage helps, even though it hurts. lol Please ask your onco for some meds. I can give you the name of the ones that I am on if you would like.
 
Gentle hugs...Deb
 


grammy
Regular Member


Date Joined Mar 2004
Total Posts : 340
   Posted 9/26/2005 5:58 PM (GMT -7)   
Deb,
Thank you for the help. I guess if that is the worst I get from the Herceptin I can handle it. It not A/C. I was wondering what brought it on because it was waking me up and boy do they hurt.
I would like the name of what the Dr. gave you to take the edge off. How often did you have Muga scans on the Herceptin. I think he will do another one after my next treatment. He said every three months.
I hope you are doing well and that things are going better with your daughter. I will keep you and your family in my prayers. I have been meaning to e-mail you to see how you were doing but I have been coming home from work so tired. I have an appt. with the plastic surgeon on Nov. 3 to see about having my good breast reduced so I hopefully will match up. I spoke with the ins. company again and the story this time was that they would pay. So I guess i'll have the Dr. send something to the Ins. company. Thanks
My best to you.
Donna

cupycake2
Veteran Member


Date Joined Jul 2003
Total Posts : 955
   Posted 9/26/2005 7:16 PM (GMT -7)   
OK,
You gals are going to think I am totally NUTS............but.........has anyone ever read the column in the paper that Dr. Peter Gott writes? He is a syndicated columnist. He claims that putting a bar of soap (yes, you heard me right) between your sheets at the bottom of your bed, will keep you from getting leg cramps. This has actually helped lots of people...........no explanation as to WHY it works, just that it does for some people and not for others. Guess you just have to be crazy (or desperate) enough to give it a try and see if it works!

Sure hope that this helps some of you lovely ladies.ARTICLE
FROM THE PEOPLE'S CORNER by Dr. Peter Gott MD
Dear Dr. Gott: This is in response to your asking for more results from putting a bar of soap under the bed sheets to stop leg cramps. I had been bothered with severe leg and feet cramps disrupting my sleep throughout the night. I was ready to try anything-so as silly as it sounded-when I read about the bar of soap in one of your columns, I tried it. It worked great! No cramps for a long time, then out of nowhere they came back, and I thought, OK, I knew that was too good to be true. But upon further investigation-I discovered that my bar of soap had fallen out from under the sheets and was on the floor. I immediately replaced it back under the sheets and have not been bothered with another cramp since. I am very careful to make sure it stays there, especially after changing the sheets. Like you and some of your readers, I can find no explanation for the wonderful results the soap bar gives. However, I am very curious as to why Dial or Dove soap bars cannot be used. Do you know why?
Dear Reader: Since the original publication of this novel approach to leg cramps, many readers have written me, indicating that they were relieved by Dial soap, but not with Dove. I have no explanation for this phenomenon. But, to be candidly frank, I have no idea about why the "soap under the bottom sheet" therapy may , in a high percentage of cases (judging from my mail), be successful in preventing nocturnal leg cramps. I have had several theories advanced, however. My favorite is that leg cramps are relieved by moving the legs and walking, so soap under the sheet leads to excercise because the soap is slippery and people have to move their legs at night to overcome this. I don't buy this conclusion but am keeping my skeptical eyes open for the ANSWER.
"What sweetness is left in life if you take away friendship? It is like robbing the world of the sun"
Cicero


MNlady13
Veteran Member


Date Joined Jul 2003
Total Posts : 2044
   Posted 9/26/2005 8:44 PM (GMT -7)   
Ask your doctor about quinnine capsules for leg cramps. I don't know if there is an interaction with the herceptin, but I know the quinnine works when I have had leg cramps. You used to be able to buy it OTC but now you need a script for it. Good luck, Lauri

"Go confidently into the direction of your dreams. Live the life you always imagined" Thoreau
 
Life is not measured by the number of breaths we take, but by the moments that take our breath away.


debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 9/27/2005 6:35 AM (GMT -7)   

Well, I have never heard about the soap under the sheets but believe me I will give it a try. Thanks for the info and the article.

Donna, I have a mugga every 3 months. In fact, I have one on 10-8 again. At one point, back in 2001, during a clincial trial study on herceptin w/ A/C, it was found that herceptin was causing strokes in women that were getting it along w/ the A/C. That arm of the trial was closed for some time. Then suddenly they reopened it and herceptin was being used again. I wasn't on that particular arm of the trial. I have had no problems and all muggas have been fine.

The meds that I take for the muscle spasms are Baclofen, 10 mg or Tizanidine, 2mg. Each can be taken up to 4x a day. I have found that the Tizanidine works the best for me. And I normally only take it before bed. I HATE taking meds!

Things on the homefront have settled down somewhat. I finally got Cari home last Thurs but had to take her back to the ER on Thurs nite as she had a reaction to one of her meds and it looked like she was having a stroke. A shot of bendryl took care of that. She still isn't feeling 100% from the surgery. As for the other problems that I am afraid of, only time will help me with those. Just keep praying. I will email you later. Have to leave now for my weekly chemo.

Hugs...Deb


 


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 9/28/2005 5:01 AM (GMT -7)   
That sounds really crazy, please let us know if the soap under the sheets works for you. Hugs MK


cupycake2
Veteran Member


Date Joined Jul 2003
Total Posts : 955
   Posted 9/29/2005 9:16 PM (GMT -7)   
Actually, there was another article in Dr. Gotts column in tonights paper about this remedy. It really does help some people.

Also, he has another answer for yet another problem........and I know that it works, my doctor even prescribed it. Has anyone ever heard of using Vicks Vapor Rub on toenail fungus? If used a couple times a day for a month or more, you will see a remarkable difference.

JUST ANOTHER THOUGHT FOR THE DAY.......
Deb
^j^ ^j^
"What sweetness is left in life if you take away friendship? It is like robbing the world of the sun"
Cicero


config90
New Member


Date Joined Sep 2005
Total Posts : 1
   Posted 9/29/2005 10:34 PM (GMT -7)   
try using chlor85 magnesium made in texas by the the pain and stress company. it is the most absorbable magnesium in the world and will make cramps go away.....have some yogurt with it....it also relaxes you.......good luck bj hjohnson

skeeter1
Regular Member


Date Joined Jun 2005
Total Posts : 97
   Posted 9/30/2005 6:11 AM (GMT -7)   
I didn't have to take herceptin so I really don't know alot about the leg and muscle pain you get from it, but in the mornings I sometimes wake up with pain in my feet and calves, I started to take magnesium and omega3 from salmon. It has helped the pain alot. I go back and forth with the omega3 I was told at that atkin store here that it doesn't have phyoestrogen in it. I have taken it for a week and had great result along with mag. I really don't know forsure if it has estrogen in it or not and was wondering if any of you would know the answer I looked it up on internet and just got more confused. I stopped taking it for now until I can find out forsure. I know I should ask my onco dr. but I really have a hard time getting ahold of him. The chemo nurses asnwer his calls and you never can talk with them direct you have to wait for them to call back and it takes forever I hate to bug them about a question like this. I know mag is good for muscles so I take 300mg daily along with my multivit. I hope someone here knows the answer about the omega3 from salmon....Yikes I start work on monday 12hrs on my feet wish me luck. That is why I want to know if its ok to take omega3 with arimidex. I want to do all I can to ensure I will do ok with long hours on my feet again. Skeeter1

chantry31
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 9/30/2005 12:37 PM (GMT -7)   
Good luck Skeeter on your first day back! I'll be thinking about you!
There are no wrong turnings, only paths we did not know we were meant to take - Guy Gavriel Kay


grammy
Regular Member


Date Joined Mar 2004
Total Posts : 340
   Posted 9/30/2005 12:58 PM (GMT -7)   
bj and skeeter1,
Thank yoiu both for the info. I will be going for my next Herceptin in about a week and half and I will talk to him about all of this then. Until then I will give the soap a try I guess that can't hurt anything.
Skeeter good luck to you going back to work. What do you do? I know I have read it here some where but I don't remember where. I keep saying its chemo brain but my husband says its been to long, but I'm sticking with that.
Thanks again
My best to you
Donna

lemonz
Veteran Member


Date Joined Jul 2003
Total Posts : 1090
   Posted 9/30/2005 3:27 PM (GMT -7)   
My sister in law and I both found drinking fresh O. J. everyday keeps them away. I know when I forget boy do I pay. I usually wake up with cramps in both legs. I have never heard of the soap trick, but I would not hesitate to try it. Good luck. Joyce
How wonderful it would be to see Angels where there are only clouds. How sad it would be to see clouds where there are Angels.
 
 


skeeter1
Regular Member


Date Joined Jun 2005
Total Posts : 97
   Posted 10/1/2005 2:12 PM (GMT -7)   
I work as a nurse on a surgical unit... yikes 12hr excited to get back to work, nerves on how good of shape I am for the 12hrs oh well won't know until you try huh!!! so gonna take my omega3 too now skeeter1
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