Hey Bernadette, I am still in the insomnia mode. It seems to be calming down some, but, it is just before another treatment. I have been disabled w/Crohn's since'76. The way that stuff does me I couldn't work if I had to. When diagnosed in '76, I had several surg, had to have the ileostomy bag, and was very sick for a long time afterward. I finally decided I wanted to go back to work, when I thought I was well enough. I worked about ten more years, then the Crohns took over, literally. I went for my SSD, was denied several times, but, kept fighting it, so it was finally awarded to me in '89. It's a good thing, cause with it, and now B/C, its all I can do to keep going. So I do try to rest during the day, but, i can only manage maybe 20-30-mins.
I'm telling you guys, that first chemo treatment has knocked me for a loop. My skin is so sensitive, it hurts to touch it. The drainage from the Crohns went from bad to worse yesterday. Now my back is killing me, actually it always does, but, I am having cramps and staying bent over from the back pain. I have pain meds, all that stuff. I am going to address this prob with my onc and see what he has to say. Also have sores in my mouth and on my tongue. Man that is painful. Any sugg on some of this. Oh yeah, I found some Mrs. Grass soup, but it was in a big bag, and you add 8 cups of water to it. Is this what you guys were talking about? Or does it come in the little cups like Campbell's, to sip on. This had veggies and big chunks of chicken in it too. So I didn't get it.
I start on Taxol after I finish with the a/c also. I still have 3 more treatments of it. I hope it is easier on my system as well. Since the a/c is tearing me up. I pray it is easier for you too. We need all the easy we can get.
Cathi, I do love to read Jo-Anns "clutter", as when I am feelin' down, her stories can manage to bring a smile and warm the heart. Everyone here has been very helpful to me, since I am lost when it comes to B/C, and some one usually gives me something I can use or at least laugh about. Love and Prayers to all,
Post Edited (harley26) : 10/29/2005 2:56:13 AM (GMT-6)