Second Call back On Mammogram and scared

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jendanesi
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Date Joined Jan 2010
Total Posts : 2
   Posted 1/21/2010 10:33 AM (GMT -6)   
Ok, I am going back today and they said that they are going to be doing another mammogram and an ultrasound because my right breast is dense.  I'm guessing that this is so that they can get a good baseline.  I'll post again when I hear more. 

donnabwana
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Date Joined Jan 2010
Total Posts : 4
   Posted 1/21/2010 12:56 PM (GMT -6)   
I just had the same tests done last week.  What they found was that I had cluster cysts which are caused from the hormones I take because of my hysterectomy.  I have to go back for repeat testing in 6 months.  I will keep you in my thoughts for your testing.

Joyko
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Date Joined Feb 2010
Total Posts : 1
   Posted 2/2/2010 3:02 PM (GMT -6)   
I am old(er)!!! 54!!! Anyway - I've been getting routine mammograms since I was 40 - and today I had my annual one. They called me later today and told me to come back in tomorrow so that they can take more pics of one breast. The woman mentioned 'calcification'. At any rate --- I am a mess --- and scared! Reading this thread helped quite a bit --- I just hope it is 'nothing'!!!

Thanks for listening!

donnabwana
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Date Joined Jan 2010
Total Posts : 4
   Posted 2/3/2010 1:41 PM (GMT -6)   
I was a mess also when I received the call back notice.  I had to wait two weeks to get an appointment, and after three hours of testing they determined the cysts were benign.  Hang in there, I will say a prayer for you!

Monasder
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Date Joined Jul 2009
Total Posts : 4
   Posted 2/3/2010 7:32 PM (GMT -6)   
Hi all...I posted back in July when I had my first mammogram...I was called back within a week for a follow up mammogram and ultrasound because of a "suspicious" mass in my right breast. I went back and had both procedures done..and was advised by the Dr. that I had about a 1% chance of it being cancer....99% chance of it NOT being cancer. She didn't recommend a biopsy, but did recommend me coming back in 6 months. Well it has been 6 months and my appt. is for tomorrow at 1:00pm. If the mass has grown ANY at all they will advise me to have a biopsy tomorrow...only thing is ..it is so far back in my breast...almost at my chest wall that I have been advised that if I do need one tomorrow that it will require a longer than normal needle, and will have to go to a different facility to have the procedure done. I have never had a biopsy before, so I have no clue what "a longer than normal" needle means..or what I am in store for! So needless to say I am a little freaked out. I am just hoping and praying that it has not grown..or is either completely gone away. Has anyone else here had to go through the 6 month wait and watch? Thanks so much for your time.

healing4us
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Date Joined Jul 2009
Total Posts : 9
   Posted 2/4/2010 12:35 PM (GMT -6)   
I had a biopsy done yesterday and I was so extremely nervous. It was not as bad and in fact not even bad at all. I have had extensive chest wall surgery so I have more pain and tenderness than most. Mine was also deep into the breast and close to the chest wall but not one issue. I am pretty sore today but IBU has helped me a lot. They were so kind and compasionate and helped me a ton. I know how scary it is and I am here to say the biopsy is pretty easy stuff. Good luck I hope it goes good for you.

Monasder
New Member


Date Joined Jul 2009
Total Posts : 4
   Posted 2/7/2010 10:47 PM (GMT -6)   
Hi all, Thanks so much for your support. I went on Thursday the 4th, and had my 6 month re-check mammo and ultrasound. The "mass" had not grown any at all...so the Dr. said that in her opinion it appeared to be a fibroadenoma and not a cause for concern, but they would continue to monitor it every six months. She showed me the cyst, mass, whatever you call it on the mammo and it is about 1/2 inch in diameter. I am going to go with my gut instinct on this one and not get a second opinion. I feel confident that the Dr. at the Mammography center and my Gyno. would recommend a biopsy if they felt it was necessary. Thanks so much for your support. This message board has been a great help to me. Thanks again! :-)

barkyboys
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Date Joined Jul 2003
Total Posts : 1564
   Posted 2/13/2010 9:50 AM (GMT -6)   
Thanks so much for letting us know how things turned out for you! We always love to hear good news. And hope those followups remain stable.

Hugs...
BEV
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz


jett456
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Date Joined Nov 2010
Total Posts : 2
   Posted 11/11/2010 9:07 AM (GMT -6)   
I just got a call back regarding my annual mamogram yesterday. I was freaking out a bit and came online to calm my nerves. I felt that the changes from last year to this year must have to do with menopause
because I haven't had a period in almost 2 years. I am 52. Just reading through this thread has made me feel better. I am going in today at 1:30. I am luck that I don't have to wait. That would make me nuts.

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 11/11/2010 5:24 PM (GMT -6)   
Jett, Let us know how your callback goes! Waiting is hard, so glad you got in quickly.

BEV

jett456
New Member


Date Joined Nov 2010
Total Posts : 2
   Posted 11/11/2010 7:16 PM (GMT -6)   
Everything turned out ok. I had to have 3 more pictures and then a sonogram due to dense breasts. The law in CT now requires insurance companies to pay for it so they did it. I guess I am good for another year. Thanks for your concern and for being here for those of us that need support!!

barkyboys
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Date Joined Jul 2003
Total Posts : 1564
   Posted 11/12/2010 4:43 PM (GMT -6)   
Glad to hear it was nothing! We love good news around here!

Hugs...
BEV

BlueYeti
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Date Joined Aug 2011
Total Posts : 2
   Posted 8/25/2011 8:07 AM (GMT -6)   
This is my second time going through call-backs. The first time was in 2008; that was when I learned I had Fibrocystic breasts. Makes sense; I had uterine and ovarian cysts and fibroids. I had a hysterectomy at age 30, due to Endometriosis. They left me one of my ovaries, but it only occasionally "fires" because it is cystic. So I went on a high dose of estrogen and stayed on that for 10 years. There isn't a hereditary risk factor in my family, so I'm doing my best to be practical, and not worry about this second call-back. The first one was just a cyst.

What DOES concern me, and the reason I'm posting here, has to do with how my primary care physician is handling this.

Today is Thursday. My routine mammogram was two weeks ago. The first notice I get that the results had come in was on Monday, four days ago, in the form of a phone call from the diagnostic center at the hospital, wanting to schedule me for a follow-up mammogram. I told them I knew what it was, we'd done this in 2008, and not to worry - it's just a cyst. The receptionist gave me a rather long pause, and said that she would be right back. She came onto the line a few minutes later and said she wasn't allowed to discuss the diagnosis from my mammogram with me, but that I should really talk with my doctor.

Diagnosis? What diagnosis? That threw me for a loop!

So I called my doctor's office right away. Talked to a nurse, who said she'd have the doctor call me back. I didn't get a call that day, so the next day (Tuesday), I called again. Told the nurse that I hadn't heard from the doctor, but wasn't this just about the same small cyst from 2008? This nurse said she'd look at my chart if I'd wait a few minutes.

She came back on the line and said, "I think you need to talk to the doctor."

Well that alarmed me.

She then followed up and said, "You know, these test results really aren't my forte, and I'm not able to read the mammogram. It's probably nothing. But I'll print this out for the doctor and make sure he calls you this afternoon or this evening."

I waited. No call.

By Wednesday morning, I'm kinda huffy. So I called the doctor's office back, and said I was very unhappy with the level of service I was getting, the diagnostic center wanted me in for a test on Thursday, and I needed to know what the heck was going on!

The nurse went into "don't shoot the messenger" mode. Well, I couldn't blame her for that, and I said so. But at the same time... you know? She said she would see what could be done and promised to call me back.

An hour later she calls, and says that the mammogram showed a dense mass, that no, it wasn't in the same place as before. It was just below the nipple, was not a collection of smaller masses, and that I would need an ultrasound. I asked her if the threat level for this one was higher than the one for 2008. She said yes.

Okay, so at least that told me some of what I needed to know. But I had questions: like how big the mass is, what it looks like, what the Radiologist said on the evaluation of the films. She couldn't give me an answer for any of those questions. This time there wasn't even a promise to have the doctor call me. I hung up frustrated.

I did do a self exam, and I'm pretty sure I found the lump they were talking about: it's just behind my left nipple, at the 9 o'clock position. about 1/2 inch wide, 3/4 inch long, smooth and shaped like a teardrop with the tapered end pointing at the other breast. In doing my self-exam, I know that my breasts always feel like I'm palpating a padded bag of pebbles. This was a significantly larger pebble among pebbles, but still feels palpable; it's not hard.

Right. So I talk this all over with my husband, and when he comes home from work, he says that one of his coworkers had the same situation, and just opted for a biopsy. That it's the only way to know really for sure what you're dealing with. Cool. I call the insurance company - yep, you can go straight to the biopsy. I call the doctor's office: no go. They have a policy. Mammogram, then ultrasound, then biopsy.

"I can't just elect to have a biopsy?"

"No," she said.

Well, that was just the last straw. I asked to talk to a supervisor. I got one. She said the chief administrator was gone for the day already, but that she'd talk to her first thing this morning and give me a call.

I had to go through the runaround like this way back when I was a young woman. I knew I had Endometriosis when I was I was 24. Doctor after doctor told me it was just in my head. It wasn't until I was 30 that a doctor suggested we do an internal ultrasound. He stood there while the test was being performed, and the words out of his mouth were, "Oh my God." My uterus and ovaries were covered in webbing and scarring.

I had a hysterectomy a week later. I wanted to go back through the line of 6 previous doctors and slap their faces.

So with that experience in mind, I am NOT holding my breath that the administrator is going to call me back. What I am going to do though, is ask to get my records and find another doctor!

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 8/26/2011 5:31 PM (GMT -6)   
Sounds like you've been through the wringer. I hope that this does turn out to be nothing more than a cyst or a fibroadenoma. We quickly learn to be our own best advocates when there is a health issue, don't we?

Let us know how it goes...
Hugs...
BEV

BlueYeti
New Member


Date Joined Aug 2011
Total Posts : 2
   Posted 8/26/2011 6:15 PM (GMT -6)   
Thanks for the reply, Bev.

It did end up being benign! I had an ultrasound and diagnostic mammogram yesterday afternoon. The spot I thought was "THE SPOT" actually wasn't. The lump I could feel is actually a swollen milk duct. It's pretty engorged, so I'm keeping an eye out for symptoms of mastitis. But given my age (46) and my peri-menopausal state, I'm right smack in the bracket for getting swollen ducts. Besides, I'd breast fed all of my children save one, and had to deal with that during lactation. I even had a mastitis infection a time or two.

The spot that the annual mammogram had shown, which was the cause for concern for the Radiologist ended up being fibrous tissue that had grown since my most previous mammogram.

You're right, we do quickly learn to be our own best advocates. I never did get a call from the administrator at my doctor's office. Which frankly, isn't surprising. But I've been going to this same doctor for 9 years, and this is the first time I've been really upset with them, so I wonder if there has been a recent policy change or something. Either way, I'm still looking for a new primary care physician.

Given the Fibrocystic condition of my breasts, and the milk duct situation, might it be good to see a specialist? What type of physician is specially trained in all things breast related?

Thanks again,
Char

Reba52
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Date Joined Sep 2011
Total Posts : 2
   Posted 9/16/2011 9:16 AM (GMT -6)   
I went for a standard mamo today. they started the test by taking some basic shots (not under compression) to let the dr see before they did the compression xrays, but after her reviewed they came back in and took one more shot of my left breast (not under compression) and said that is all he needed. should i be concerned?

adanmom
New Member


Date Joined Sep 2011
Total Posts : 3
   Posted 9/18/2011 4:34 PM (GMT -6)   
Hi, This is my first post.  I am going for a recall mammogram in the morning and let's just say, I'm terrified.  The official reason is  Asymetrical Glandular Tissue.  I read through numerous posts and didn't see any related to this topic. (which makes me more worried).  I go in and out of fear to the point of nausea and back to everything will be ok.  I have two teenage daughters and a very loving husband and just pray that their lives will not be turned upside down with tomorrows information.  I guess im just looking for some reassurance. 
Thanks for all you do here to help get us through the uncertain times.

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 9/20/2011 7:03 PM (GMT -6)   
How did your appointment go? Funny thing, how moms always think about how a diagnosis might affect their family before they worry about themselves! My daughter had to take her entrance exams for private school while I was in surgery having a mastectomy. I felt like a really bad mom, let me tell you. Hope all is well.

Hugs...
BEV

adanmom
New Member


Date Joined Sep 2011
Total Posts : 3
   Posted 9/20/2011 8:37 PM (GMT -6)   
I went in yesterday for the recall mammo and thank God everything is ok.  They informed me that it is now a state law to inform patients that if they have dense breasts it is recommended that they have supplemental testing. ie. ultrasound.
The radiologist was very thorough and encouraged me to have a ultrasound and mammo each year, 6 months apart.
Thanks for the hugs

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 9/21/2011 9:39 PM (GMT -6)   
Love to hear good news! So glad that all is well. What state do you live in? I've never heard of that requirement to inform patients of that, but I think it is great. I had two invasive breast cancers of different types, both palpable, and both missed on my mammogram.

Double hugs for such good news!

BEV

adanmom
New Member


Date Joined Sep 2011
Total Posts : 3
   Posted 9/22/2011 10:03 AM (GMT -6)   
Hi Bev,
I live in Texas. The law is called "Henda's Law", house bill 2102. The only draw back is that the insurance companies have not yet been required to pay for this supplemental testing. :(
Thank you for your hugs. I pray for continued good health for you.
Angela

tbossk
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Date Joined Dec 2011
Total Posts : 3
   Posted 12/9/2011 5:56 PM (GMT -6)   
I live in Saskatchewan Canada. On your 50th birthday, the Saskatchewan health sends you a letter to get a mammogram.
My mom, sisters and I have always had what we call 'lumpy' breasts. In fact. about 15 years ago, I found a lump and had an ultrasound. The technician then told me that it was a fluid filled cyst. She also told me that if it hurts, it's not cancer (which I have since learned is not correct for some forms of breast cancer).

So I went for my mammogram 2 days ago. I was told by the technician that I should not panic if I get called back for a second mammogram. Especially since this is my first (they need to ensure they have a good base for future mammograms) and also because I do have 'lumpy' breasts.

Well, today I got the call to go back for a 2nd mammogram as well as an ultrasound.
Nothing that is said to you when you get your initial mammogram prepares you for that phone call.
The lady on the phone said that "92% of recalls turn out to be nothing".
As positive as I am trying to be, 8% has never seemed as big as it does now.

I go back on Wednesday for the 2nd mammogram and the ultrasound.

I have read some of the posts on here and it has calmed me quite a bit.
When I got home from work and told my husband, he gave me a big hug and said 'it will be okay'.
I believe him. Even if it does turn out to be cancer, I will learn to deal with it. And darn, I will be a fighter.

Please wish me luck and/or say a prayer for me that everything turns out okay on Wednesday. It's going to be a long 5 days.

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 12/10/2011 6:33 PM (GMT -6)   
Wishing you luck and will say a prayer as well. Your husband sounds like a keeper. I'll look forward to your post that says, "It really was nothing!"

Hugs....
BEV
Bev
Breast Cancer forum moderator

Air Force Mom
New Member


Date Joined Dec 2011
Total Posts : 2
   Posted 12/23/2011 7:28 AM (GMT -6)   
tbossk - I'm in the exact same boat as you. I had my very first physical - which included my very first mammogram a couple of weeks ago. I've always been healthy and never went to the doctor. Now my insurance more or less requires us to get a physical every year. The tech also told me not to worry if I get a call back that it's extremely common. I'm a stats person, so it comforted me to read that 92% of callbacks turn out to be nothing. I also read on an earlier post that 80% of lumps are benign. I know I have these great odds, but I'm still terrified. My husband has been wonderful. He says whatever it is, we'll get through it. I am just worried how my kids will handle it if something is wrong. I haven't told them anything yet. I didn't want them to worry since I don't really know anything at this point - and it could very well be nothing. When the nurse called me, she said it could be calcium deposits or even a mole - so it sounds like it is small. I was so much beside myself when I got the call back, nothing really sank in and I didn't ask any questions. I go for my 2nd mammogram and ultrasound on Thursday - December 29th. I'll take any prayers I can get. I'm a strong believer.

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 12/23/2011 9:35 AM (GMT -6)   
AF Mom... Even when the odds are in your favor, fear of the unknown is the worst kind of fear. When you know what you are dealing with, you have a plan of action with doctors, and you're actively doing something about a diagnosis, it's easier than the wait. So don't beat yourself up for being scared. Hope all goes well and the call back is for nothing.

Hugs...
BEV
Bev
Breast Cancer forum moderator
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