Call back for biopsy 3 weeks away.. kinda freaking out!

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lkegger
New Member


Date Joined Jan 2016
Total Posts : 8
   Posted 1/21/2016 12:24 PM (GMT -6)   
Hi this is my 1st post here. I was diagnosed wit fibroadenoma when i was 19 (i am 45 now) had one removed as it was large, the other was left and has never changed in 25 years. This year at my regular check up (because of the FB) they found something new.. it's .7mm .. def not the old lump. They didn't see it at 1st then called me back a week later for follow up 3D mammogram and then another ultrasound. Now i have to go for a core needle biopsy.. but i have heard they are unreliable. I live in Canada, so i don't have insurance worries, but i have to wait 3 weeks for the biopsy.. also they said i cant switch clinics to get in anywhere else faster cos they would need to re-do all the tests.. how is that possible in a digital age? i have other anxiety disorders that in the past have presented as chest pain and asthma like symptoms. not sure how i will make it through 3 weeks, plus another one for the report.. i know that a lot of lumps aren't cancerous.(hell i HAVE one!). but i'm kinda freaking out.. any advice taken .

sherbear46
Forum Moderator


Date Joined Jun 2011
Total Posts : 3316
   Posted 1/25/2016 4:28 PM (GMT -6)   
I know the wait of any amount is excruciating. Nothing you can do to change it so try not to stress too much over it. It's such a small lump at this point that whatever it is they are catching it early. Hopefully just another fibroadenoma.

Good luck, let us know what happens.
Moderator UC and Breast Cancer forums
Sheri-42 years old

Diagnosed UC/IBS 04/09-Left sided 01/13 Endo showed gastritis and Colonoscopy showed only 2 cm of rectal inflammation 2015 Flex Sig showed everything clear and biopsy were clear too.
Diagnosed in Jan 2013 with Chronic Uticartia
Meds-2 Lialda, Aciphex, Allegra, Singulair, Vitamin D3, Hydroxyzine (as needed), probiotics, Canasa 3xwk

lkegger
New Member


Date Joined Jan 2016
Total Posts : 8
   Posted 2/17/2016 12:19 PM (GMT -6)   
had the Core Needle Biopsy one week ago today (10th Feb) - still waiting for the results.. will def post either with joy or distress when i get them! My cat has been very sick this week as well, which was an unwanted and expensive though useful distraction!

sherbear46
Forum Moderator


Date Joined Jun 2011
Total Posts : 3316
   Posted 2/17/2016 5:28 PM (GMT -6)   
Sorry it's taking so long for the results. Mine were back in 3-4 days.

I'm sorry about your kitty too. I work at a vet and know how expensive it can be to treat our pets. I just paid off my bill today on our kitten we adopted from the vet. He had to have surgery to remove an eye.
Moderator UC and Breast Cancer forums
Sheri-42 years old

Diagnosed UC/IBS 04/09-Left sided 01/13 Endo showed gastritis and Colonoscopy showed only 2 cm of rectal inflammation 2015 Flex Sig showed everything clear and biopsy were clear too.
Diagnosed in Jan 2013 with Chronic Uticartia
Meds-2 Lialda, Aciphex, Allegra, Singulair, Vitamin D3, Hydroxyzine (as needed), probiotics, Canasa 3xwk

lkegger
New Member


Date Joined Jan 2016
Total Posts : 8
   Posted 2/17/2016 6:17 PM (GMT -6)   
Hey Sheri,
so kinda funny (no funny haha) story. I decided to call the clinic that did the biopsy to see th approx date of the results. They said "oh we sent them last week to Dr XXXX" which was interesting as a)that wasn't the right Dr and b) no-one had called me to tell me such. They apologized and offered to fax them to the correct Dr ASAP, but in the interim, i called the Dr they DID advise (my old Dr, whose practice moved) and they said they didn't HAVE all the results, which was why i hadn't been called. When i called the lab back, they said, Nope they definitely have them, but we will send them again if you like.
I decided to just go up to the new Dr's on the off chance that she could see me today. She was booked up but the reception staff confirmed they did have the results sent over today, and the Dr would look at them ASAP. She did, and sent a message back saying "no rush, come in in the next few days" .. soooo i have an appointment for 1015am tomorrow.. can i assume if they aren't in a rush i am not going to need further surgery?
Whatever, i guess i will know tomorrow morning. I will certainly post when i get the results, but i have to admit, knowing i should have had this info on Monday is a little galling! (oh and Leo has been cleared of all "serious" issues, he has the equivalent of IBS in humans.. lots of throwing up until we find food that agrees with him!! :()

Post Edited (lkegger) : 2/17/2016 5:20:43 PM (GMT-7)


lkegger
New Member


Date Joined Jan 2016
Total Posts : 8
   Posted 2/18/2016 12:21 PM (GMT -6)   
soooooo went to the Dr this AM, they said that the biopsy was clear, BUT that they were 100% sure they actually GOT any of the mass. What do i do now?? they said to wait 4 mths and have another ultrasound to see if it has grown! what do i do if it has? what if it is an aggressive tumor and in 4 months im screwed! I cant handlt the not knowing.. i feel like i have a ticking time bomb in my chest. Its' been 2 months already, i dont think my brain will make in another 4 months without knowing *** is going on .. im so mad.

sherbear46
Forum Moderator


Date Joined Jun 2011
Total Posts : 3316
   Posted 2/18/2016 3:46 PM (GMT -6)   
Wow that whole thing is just so messed up about the results. It's good that you called or you would still be waiting.

I would be raising Heck about not sure about getting the mass? Isn't that why you had this procedure done. Someone needs to get reamed about it.
Moderator UC and Breast Cancer forums
Sheri-42 years old

Diagnosed UC/IBS 04/09-Left sided 01/13 Endo showed gastritis and Colonoscopy showed only 2 cm of rectal inflammation 2015 Flex Sig showed everything clear and biopsy were clear too.
Diagnosed in Jan 2013 with Chronic Uticartia
Meds-2 Lialda, Aciphex, Allegra, Singulair, Vitamin D3, Hydroxyzine (as needed), probiotics, Canasa 3xwk

lkegger
New Member


Date Joined Jan 2016
Total Posts : 8
   Posted 2/18/2016 4:00 PM (GMT -6)   
yeah no doubt. My Doc thought it was totally messed up. She is going to try and refer me to the other main testing facility here in Vancouver for a 2nd opinion. Please send good thoughts that they see me and soon!

sherbear46
Forum Moderator


Date Joined Jun 2011
Total Posts : 3316
   Posted 2/21/2016 5:52 PM (GMT -6)   
A second opinion is a good idea. Good luck! Praying you get in soon and all is well. Keep me posted.
Moderator UC and Breast Cancer forums
Sheri-42 years old

Diagnosed UC/IBS 04/09-Left sided 01/13 Endo showed gastritis and Colonoscopy showed only 2 cm of rectal inflammation 2015 Flex Sig showed everything clear and biopsy were clear too.
Diagnosed in Jan 2013 with Chronic Uticartia
Meds-2 Lialda, Aciphex, Allegra, Singulair, Vitamin D3, Hydroxyzine (as needed), probiotics, Canasa 3xwk

lkegger
New Member


Date Joined Jan 2016
Total Posts : 8
   Posted 2/21/2016 7:06 PM (GMT -6)   
Hi Sheri,
it's been pretty stressful. Another Doc i trust looked over the report and her reading of it is that its not that they didn't get ANY samples, just not ENOUGH to categorically define it as fibroadenema. She is sending me a copy of it so i can ready it for myself, but my doc is still trying for a 2nd opinion. At this point even though it might be entirely unnecessary i think i'd rather have the lump removed surgically with clear margins and know i am OK than be wondering every 6mths before an ultrasound!
Will def post when i have more definitive info.. from speaking to some friends though, this seems kind of common (the uncertainty) The radiologists want to cover their butts so say "inconclusive" more often than not! In a health care system that is stretched to the limit, really it makes you wonder! One 1hr operation 5 weeks ago and everyone would know by now. But they would rather have me in for a 90 min biopsy, anf ultrasounds every 6 mths! doesnt make sense to me!
dx fibroadenema 1990, surgical removal, mammos for life!

sherbear46
Forum Moderator


Date Joined Jun 2011
Total Posts : 3316
   Posted 2/24/2016 7:40 PM (GMT -6)   
It would make more sense to do a bigger biopsy if what your going to take out isn't going to be enough. Seems silly. My fibroadenoma ended up not doing anything luckily. I did have to go back for a couple more ultrasounds to make sure it didn't grow. It hasn't which I'm glad of because mine is so far in I never felt it. I can't imagine that would be fun to take out.
Moderator UC and Breast Cancer forums
Sheri-42 years old

Diagnosed UC/IBS 04/09-Left sided 01/13 Endo showed gastritis and Colonoscopy showed only 2 cm of rectal inflammation 2015 Flex Sig showed everything clear and biopsy were clear too.
Diagnosed in Jan 2013 with Chronic Uticartia
Meds-2 Lialda, Aciphex, Allegra, Singulair, Vitamin D3, Hydroxyzine (as needed), probiotics, Canasa 3xwk

lkegger
New Member


Date Joined Jan 2016
Total Posts : 8
   Posted 2/25/2016 11:15 AM (GMT -6)   
Hey Sheri,
i have an appointment to see the surgeon in 4 weeks. I guess the point is they dont know it IS a fibro.. if it is i woudnt be concerned at all, ive had one over 20 yrs.. they are totally harmless! they dont know what it is, they are guessing based on my history and its size, which just isnt good enough for me. I have two friends who had theoretically harmless lumps that wound up being cancer. I will update when i have met with the surgeon!
Louise

sherbear46
Forum Moderator


Date Joined Jun 2011
Total Posts : 3316
   Posted 2/28/2016 4:34 PM (GMT -6)   
Ugh. I will be thinking of you.

Sheri
Moderator UC and Breast Cancer forums
Sheri-42 years old

Diagnosed UC/IBS 04/09-Left sided 01/13 Endo showed gastritis and Colonoscopy showed only 2 cm of rectal inflammation 2015 Flex Sig showed everything clear and biopsy were clear too.
Diagnosed in Jan 2013 with Chronic Uticartia
Meds-2 Lialda, Aciphex, Allegra, Singulair, Vitamin D3, Hydroxyzine (as needed), probiotics, Canasa 3xwk

sunny40
Regular Member


Date Joined Mar 2016
Total Posts : 84
   Posted 3/13/2016 5:57 PM (GMT -6)   
I am so sorry to hear about all of this anxiety producing waiting you have had to deal with and I hope its all positive in the end. If you don't mind my asking, when you had the biopsy, did you end up with a breast marker clip? If so, is it painful or can you feel it?

Getting a biopsy soon, also for a 7mm mass and I am not excited about the marker clip…
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