new to forum, diagnostic mammo and ultrasound found large lumps

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exqualls
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Date Joined Aug 2016
Total Posts : 89
   Posted 3/2/2017 10:54 PM (GMT -6)   
Susie, I'm sorry you've hit a rough patch. I hope the massage was a good first step.

In Florida our weather goes back and forth this time of year like yours does in Texas. It makes it hard to get dressed for the day, that's for sure.

Yes, it is my oncologist having me take high doses of OTC meds for the bone pain. First I was on the prescription Naproxen, and when that didn't work, she said to go to 800 mg acetaminophen or ibuprofen every 8 hours to see if that worked, before they would move on to prescribing any kind of narcotic. I ended up exchanging a couple of after-hours phone calls with the PA in the last couple of nights and she said that the onc wants me to have a bone scan to rule out that the cancer has spread into my bones. Well, this gives me something new to worry about! My bff had a friend with breast cancer which spread to her spine and she died. The girl was a year younger than I am.

Anyway, the bone scan is set for 3/7, so not too far off. It's a nuclear test, so I have to get an IV of some kind of radioactive substance, then wait 3-4 hours and come back and have the scan done, which takes about an hour. If anything "shows up", then more tests will be ordered, which could include CT scan, PET scan, MRI, and biopsy.

All I can think is money money money. I do not believe for a second that my cancer has spread into my bones. I believe that I am having the VERY COMMON reaction to taxol of BONE PAIN, and that I need a narcotic pain reliever to deal with this level of pain.

I'm going to call the doctor tomorrow and beg/demand to get a prescription to at least handle this pain until all the tests they want to do finally rule out bone cancer.

Best of health and positive thoughts to all who are reading.

straydog
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Date Joined Feb 2003
Total Posts : 13850
   Posted 3/3/2017 9:32 PM (GMT -6)   
E, I sincerely hope this dr gets off her behind & does what she should do. That is just unacceptable in my opinion. That mentality of hers just really burns me. I am with you, this medication is what is causing the bone pain.

I went for a massage this morning. I had a very good lady, but boy did she earn her money on me. She kept saying I cannot believe how tight your muscles are. It was somewhat painful, but I felt like the end result would be good. I am now rethinking that thought, lol. I feel like someone has taken a baseball bat to me. Earlier this evening tried to lay in the bed, just too sore for that. I am waiting on the temperature to lower out in the hot tub. Once it cools down I plan to go sit in it awhile. In a week or so I plan to go back to this lady. I probably should have done a 30 minute massage instead of an hour.

I am sending positive vibes your way & do hope the dr has done the right thing & called you in something for the pain. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

exqualls
Regular Member


Date Joined Aug 2016
Total Posts : 89
   Posted 3/6/2017 8:14 PM (GMT -6)   
Susie, I hope that hot tub did the trick and helped you feel not so much beaten by a baseball bat! She must've been VERY thorough to make laying on a bed too painful.

It took several after hours phone calls but the doctor's office finally wrote a script out for (low dose) Vicodin that my husband picked up and that did the trick. One measly pill every six hours and no more pain.

Unfortunately I ended up getting cold/flu symptoms starting Friday night. Saturday was pretty rough. My temperature got up to 100.3 a couple of times. The magic # is 100.4.... all along my onc has said if my temp ever got to 100.4 I have to go straight to the hospital, so thankfully it never got to that. Sunday the fever was gone, but today, "chemo Monday", the other symptoms were still present---cough, runny nose, watery eyes, general achiness (not in the bones, though), and so when I went for my chemo she could not give it to me, we have to skip this week. I am on such a tight schedule. I had ONE WEEK to spare to finish chemo before my son's college graduation. Now that one week is gone. I cannot have any other thing happen to stop my progress. Honestly my son's graduation is THE only good thing happening in my entire life. My marriage is a mess, we are financially ruined, my first born, brilliant, gorgeous, talented son is doing God-knows-what, I am fat, bald, and oh, I have cancer. Being able to see my younger son graduate is the ONLY positive thing I have to hang onto.

I feel partially responsible for getting sick, because I "went out"...... I ventured into the real world. A restaurant and a couple antique stores, and my immune system is ruined enough from chemo (and a loss of lymph nodes, too, I suppose), that I can't fight off a single germ.

So for the next 2 months I am going nowhere and seeing no one other than my immediate circle, and all my medical appointments. I have my bone scan set for tomorrow.

Best of health and positive thoughts to all who are reading.

exqualls
Regular Member


Date Joined Aug 2016
Total Posts : 89
   Posted 3/8/2017 11:16 AM (GMT -6)   
The doctor also ordered a chest xray because my cough is so bad, and I got the results of the xray and the bone scan today, and both are thankfully normal. Yeah!

Even better news, my husband FINALLY got a hearing date for his SSD-- June 20th. I cannot imagine that his disability would not be approved, so this will make a HUGE difference in our lives.

Best of health and positive thoughts to all who are reading.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13850
   Posted 3/8/2017 2:00 PM (GMT -6)   
Afternoon E, so sorry to read that you hit another bump in the road with the cold. It always seems like its something sometimes. Hopefully this cold will not linger so you can move forward. But very happy to read your xrays came back clear!!

And finally, a hearing date for your husband's claim. That is just awesome. It is extremely important that the attorney has all of your husbands medical records before the hearing. Does your husband keep the atty informed of his dr visits & the dates he was seen? One thing I learned when dealing with SS, never rely on them having all of the current medical records. I would go as far to contact the atty well in advance to what records he has in his file too.

I have been living on a heating pad, boy the massage really did a number on me. But, I am much looser than I was before. The hot tub helps also but I was a mess before & after, lol.

Keep these good things going your way, its about time!! Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

exqualls
Regular Member


Date Joined Aug 2016
Total Posts : 89
   Posted 3/13/2017 7:19 PM (GMT -6)   
Well this endless coughing has continued through ten days now. The chest xray and the bone scan I had on Tuesday both came back normal. And other than a fever that got to 100.3 9 days ago, every days since then the highest it's gotten is 99.6 every single day. From day one of chemo, my onc has said if it gets to 100.4, go straight to the ER.

So last night it got up to 100.9, so off we went to the ER. They did another chest xray, nasal swab, blood draws, got a urine sample, etc. My BP got down extremely low -- like 83 over 52, which has never happened. They ruled out the flu and pneumonia, which is good. So their "best guess" at this point before the blood cultures come back in 3 days is bronchitis. I was given a broad spectrum antibiotic and 2 prescription cough medicines, one a capsule, and one is a liquid. Other than my fever dropping to normal, I think the cough suppressants are working as today my coughing bouts have been much shorter and not quite as gut wrenching. Tomorrow I'm due for chemo, and I suspect it will be cancelled again, unless I have a 100% improvement. So I'm praying for my miraculous recovery overnight!

Best of health and positive thoughts to all who are reading.

exqualls
Regular Member


Date Joined Aug 2016
Total Posts : 89
   Posted 3/15/2017 6:33 PM (GMT -6)   
Well, there was no miracle. The improvement to my coughing fits is basically a reduction in how long they last... It used to be up to an hour and a half, once I woke up, or what other "thing" set it off. Now they last anywhere from 10-45 minutes, with 20-25 being the norm. But they are PAINFUL. My stomach muscles and even my rib bones HURT from all the hacking.

And now with me missing two of my scheduled chemos, there is a very good chance that I will not be able to make it to my son's graduation.

Best of health and positive thoughts to all who are reading ...(including me!)

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13850
   Posted 3/19/2017 12:17 PM (GMT -6)   
Hi E, oh I sure hope by now you are past the worst of it. The pain from that kind of coughing is a bugger. Hopefully some how you will still be able to see your son graduate, so don't throw in the towel yet. I know this is a huge concern & I understand.

Last week was spring break. I had my grandson all week plus a little boy down the street. I had my hands full keeping those two entertained believe me. I am still tired & have a lot to do to get caught up for the upcoming week. May have to break things up into 2 days.

Just wanted to pop on & say hi for now. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

exqualls
Regular Member


Date Joined Aug 2016
Total Posts : 89
   Posted 3/19/2017 5:28 PM (GMT -6)   
Oh, that does sound fun to have kids for a week! Fun, and busy! I hope you're able to catch up on what you have to do this week.

I still have my cough, although I can tell it's getting better. Coughing is how I wake up in the morning, but it doesn't last as long.....maybe 15 minutes. And I don't have as many bouts of coughing throughout the day, but even when I'm not coughing, I am fighting the urge to cough. I haven't had a fever in several days now. I pray when I go to the onc tomorrow I can get my chemo. Even if it weren't for the cough, and for the fact I am worrying about missing my son's graduation, it is depressing knowing I am NOT treating my cancer. The positive me that at first thought, "ok, I'm fighting cancer, step one, step 2, step 3, step 4, and voila, cancer is gone and I'm back to my life", has been replaced with a not so positive me who wonders if I'll ever get better. Maybe it will just be one setback after another. Just like with the right tissue expander failing.... maybe that was the first sign that my treatment/cure is not going to go well.

I try not to dwell on negative thoughts like that, but it's getting harder and harder to be as positive as I started out.

Best of health and positive thoughts to all who are reading (including me!)

exqualls
Regular Member


Date Joined Aug 2016
Total Posts : 89
   Posted 3/20/2017 7:09 PM (GMT -6)   
I was too sick again to get chemo. My onc refilled the 2 prescriptions for cough medicine, and sent me over to another clinic to get a chest xray (my 3rd one in 2 weeks), and wants me to see my PCP tomorrow for follow up on my cough. I can't afford all these visits!!! I've paid $75 3 weeks in a row to the onc, and haven't even gotten my chemo. Plus the cost of RX (not much, but still). Who knows how much my insurance company will cover from the ER visit, and now today more xrays. I'm going to call tomorrow to see if he xray results are still negative. If so, then I'm not going to see anyone else. If the results are positive, I'll set up an appointment with a pulmonologist (lung dr?). Of course I'm praying the results are negative as I can't afford to go to yet another doctor's appointment

These delays in treatment and this endless, hacking cough are really getting to me. While I was waiting to get my xrays I actually started crying in the waiting room! Not sobbing hysterically, just tears drizzling down my face. I didn't mind cancer treatment. I looked forward to it! As I knew I was making progress toward killing the cancer in my body.....and there was an end in sight. Now there is no end in sight. I will miss my son's graduation for sure.

exqualls
Regular Member


Date Joined Aug 2016
Total Posts : 89
   Posted 3/22/2017 4:36 PM (GMT -6)   
The 3rd xray was "suggestive" of pneumonia, so I went to see my PCP. The place I had the xray done was in his office building, and I was able to get in this morning. He says I do have pneumonia, that it was probably bronchitis that turned into pneumonia. So I got a stronger antibiotic and refills on my cough meds. I feel pretty confident that I won't be getting my chemo this coming Monday, which means 4 missed appointments. There is no way I'll be able to attend my son's graduation. Instead of having been done with my chemo treatments for at least 2 weeks, now I will most likely have 2-3 treatments remaining. While on Taxol my WBC has been the lowest on a weekly average, so IF I were to go to the ceremony, I would be in a closed convention center with thousands of people for four hours... No telling what I would pick up there.

I know it's not the end of the world that I can't go. My husband and other son are going to go and someone can face time it, or video it, or something or other.

I sure do feel beaten down by this pneumonia though. EXTREME fatigue, and dizziness and trouble even breathing at all while in the midst of my coughing attacks. It will seem like a piece of cake when I eventually get back to "only" fighting cancer.

Best of health and positive thoughts to all who are reading.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13850
   Posted 3/22/2017 7:32 PM (GMT -6)   
Oh, I am so sorry this turned into pneumonia. That is a tough one too. Hopefully the new med will kick in quickly. Please rest as much as you can to get past this. If you are not sleeping with a warm mist humidifier please do so. When my grandson had pneumonia the first of the year his dr told my son to get one & to put Vicks in it. He was having trouble breathing too. Vicks makes them now so be bought one. An old time remedy my mother used forever for coughing was to rub Vicks on the soles of the feet & put socks on at bedtime. My sister swears by it.

No, you cannot afford exposure to that many people even if you wore a heavy duty mask. I am so sorry you will not get to go.

Sending healing thoughts & prayers your way.
Susie
Moderator in Chronic Pain & Psoriasis Forums
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