new to forum, diagnostic mammo and ultrasound found large lumps

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straydog
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Date Joined Feb 2003
Total Posts : 14812
   Posted 9/5/2017 7:55 AM (GMT -6)   
Hi E, still around. I am well north of Houston. We had some very badly needed rain from Harvey for 3 days. It was a blessing, we rarely have rain this time of year. However, those in the path of it, its beyond devastating.

You know what you are doing I think is beneficial for you. When you start getting disgusted because your body isn't cooperating, remind yourself what your body has gone through the past 4 months. Keep at it & pat yourself on the back for staying with it you will make progress. I will share this with you. When I got sick & had to quit working I was devastated. My health was in the crapper & I fell into a dark place. My dr insisted I get with a psychologist & he put me on an antidepressant. The psychologist was fantastic. She asked what I did all day, I said nothing I shower & put clean pajamas on every day. I didn't wear street clothes except to go to the drs... I cried all the time had huge pity parties. My full time job became seeing 5 specialists. She said you need to get back into your normal daily routine as close to it that you can. So instead of pj's I got dressed. It took time but I managed to put together a routine. We both know when you work all of your life you have a routine. We are routine people. So, knowing this much about you, keep up your morning routine & anything from precancer days.

I am still at the lake place.i came down Friday & the kids all came down for the long weekend. They left yesterday & I have some clean up to do. I plan to go home tomorrow.

Keep your head up & look ahead, put the other junk in your rear view mirror. You are one very strong lady. I look at what you have over come to now & have a very deep respect for where you are now. Keep me posted.
Susie
Moderator in Chronic Pain & Psoriasis Forums

exqualls
Regular Member


Date Joined Aug 2016
Total Posts : 144
   Posted 9/5/2017 12:16 PM (GMT -6)   
Thank you. I thing your psychiatrist gave great advice! I am trying, and I feel pretty positive today, following my pre-cancer routine.

I am so glad Harvey didn't get you. We are worrying over Irma now. I'm in the Clearwater area (near St.Pete/Tampa). I've been here nearly all my life and have never evacuated before. A couple times we put up sandbags to prevent water from coming in the house, and taken in all the outdoor furniture and hanging plants and other things that could be flying objects in high winds. The gas stations all have long lines (we need gas), and the few stores my husband tried are already out of water. I'm not even thinking evacuation at this point. It seems like so many times it has shown the hurricane path is going to hit us directly, but it turns and we are spared. Praying that is the case again here.

exqualls
Regular Member


Date Joined Aug 2016
Total Posts : 144
   Posted 9/7/2017 12:17 PM (GMT -6)   
It has been good for me to continue with as many pre-cancer physical activities as best I can. I am up to 41 ab crunches, just 2 push ups, splits still are a real effort and I don't get near to 180 degrees. The 10-point balance routine is having some success! If I were being judged by karate black belt standards, it would be a failure. But each time I do it I can hold a position a little longer, or there will be a little less wobble. So I am actually thrilled.

At the moment, all I can think of is Irma. We've been lucky in my county (Pinellas) for decades, just having a few tree limbs down, maybe a few roofs damaged, and minor flooding in some places. So I'm starting to think 'our time is due'.....Plus, I think maybe everything bad that's happened to me is just a precursor to worse things to come. My BRCA cancer gene tests were negative, yet I got cancer... and how rare is it to have a part of the breast reconstruction to fail (the right side tissue expander), and getting GBS is SO rare.....I read .001 chance of getting it.

My younger son in first year law school is in constant contact with us. His older brother, who is off the grid, we have not heard from. He is so off the grid I don't know if he even is aware of Irma. Well, here I go crying.......the mere mention of my older son sets me off into a crying fit, I am so worried about him (even before Irma). I consider my older son the thing I am most upset about. On a scale of 1 to 100, cancer worry is a one.... GBS worry is about a ten. Older son worry is 100+.

I had an appointment for this afternoon with the cancer counselor, and she had to cancel, as our county has a mandatory evacuation for her zone. Our county is very small.... a little peninsula in the Gulf of Mexico. I fear the entire county will get a mandatory evacuation order.

Pray for us!

exqualls
Regular Member


Date Joined Aug 2016
Total Posts : 144
   Posted 9/9/2017 10:42 AM (GMT -6)   
Irma! Irma! Irma! That's all I can think about. I've been through the threat of, and the minor effects of SO many hurricanes. But Irma is affecting me to such a greater degree. Probably because my emotions are out of whack to begin with! Also, the weather channel spaghetti noodle models have all the noodles going right over my house. Plus, my WBC is so low, I can't get a cut or infection from anything, let alone hurricane debris, plus the stress is affecting my GBS, my legs are feeling more paralyzed!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 14812
   Posted 9/9/2017 10:56 AM (GMT -6)   
E, I know what you are saying about Irma. I have a sister in Tampa & she foolishly thought along with her neighbors they would be safe because they are somewhat inland. She now realizes that she made a mistake. Her neighbors were boarding up their windows yesterday. She lives alone. My other sister told her things to do because where she lives the tornadoes are worrisome. I just don't know. I hope you escape the bad stuff, its so hard to predict what can happen in seconds.Her daughter & SIL are safe in NY. They have been on vacation in London & landed in NY yesterday. They are staying there until its over. Since they live on the beach they may not have a home to come back to.

I am saying lots of prayers for everyone.
Susie
Moderator in Chronic Pain & Psoriasis Forums

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 14812
   Posted 9/12/2017 6:15 PM (GMT -6)   
E, just checking on you to see how you weathered the storm. My sister was very lucky. Wind was an issue, fences down & some tree limbs.
Susie
Moderator in Chronic Pain & Psoriasis Forums

exqualls
Regular Member


Date Joined Aug 2016
Total Posts : 144
   Posted 9/14/2017 6:14 PM (GMT -6)   
We survived Irma! Just lost all power for a few days, which is not fun, but I think I've read that there are still a million Floridians without power, so I know we're lucky. We had part of our chimney fly off, and some rather large oak tree branches from our yard and from neighbors' yards to clean up. Some houses in our hood were not as lucky. We are in a heavily treed area, with many huge, old oaks.

I called my PS today to see if we have a date set yet for my reconstruction. Again I was told they didn't have all the information collected yet to set a date. I asked what doctor or doctors did they still need info from, and we could go get it and deliver it to their office. She said, No, they still were just working on figuring it out and they'll call when they have a date.

A part of me thinks "this is sounding ridiculous". But then I look at my left breast, which is so perfectly done and with invisible scars, and I think , "okay, I'll wait, she must have a good reason". I still believe it's because of the GBS. She must feel like she has to check on every drug and procedure I will have, to make sure that it won't set off my GBS again. So I'm being unusually patient.

Irma has messed with my workout routine. There is so much clean up to do, and of course I really can't do much in a walker, but I try. We boarded every window and had sandbags across one side of the house, and inside the house a couple hundred paintings, crystal, china, and antiques had all been stored safely. It seems to take a LOT more effort to put things back than it did to take them down.

I know when I first got GBS and I disappeared for 5 weeks, one of my first posts back I said i was going to have to tell the horror story of my first 2 weeks in one hospital, before I was sent to another one for 3 weeks. But actually, I've been unable until very recently to even think about it. Both hospitals had sent questionnaires to fill out about their service. The second hospital questionnaire I filled out right away with glowing reviews. The questionnaire from the first hospital I couldn't bring myself to look at for four months. It just sat on the coffee table staring at me. I'm not ready to "go public" and post about it here yet, but I filled out the questionnaire and added a typed, 6 page history of my treatment and mailed it out today.

Best of health and positive thoughts to all!
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