DonnaA...Recurrance

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 12/17/2005 10:50 AM (GMT -7)   
Hello Donna! I know how frightened you are about a recurrance. We all live w/ that fear daily. Even if it is in the back of our mind. I can tell you from personal experience that when I was told 2 yrs ago that my CEA had climbed from 12-29 I was scared to death. I think that I was more in shock than when I received my original diagnosis. Like you, I had only been out of treatment about 18 months. I can remember my onco calling and telling me that I had to come immediately for a bone marrow. When the results came back negative, I cried w/ relief. Then I went thru the CT scan, MRI, etc. Each came back negative and each time I fell apart. Finally I had PET scan and it was positive. I was so frightened but yet relieved to know that the spot had been found. I also was relieved to know that it was treatable. As my onco told me she believed that we could be this but she couldn't assure me that it wouldn't show up someplace else later. I looked at her and said that all I wanted to do was beat this one and I would deal w/ later when it happened. She couldn't promise me that I wouldn't walk out of her office and get hit by a truck so my odds sounded pretty good. Just try and remember all of the new treatments that are out there. Several have shown positive results that I was a part of the clinical study 5 yrs ago. Don't be afraid to post how you feel. We are here for you.
 
There is an organization called "Chemo Angels". If you haven't gone to their website, please do. This group of women are amazing and I can tell you from personal experience, that the cards and gifts and support that I received from them helped me. In fact, that is how I got to know our "JoAnn". She was my very own "chemo angel".
 
Please feel free to call me or email me directly if there is anything that I can do.
 
Try and stay busy and enjoy the holidays. If you don't have anything to do, come on down to Jeff City and help me finish decorating and shopping.
 
Hugs my friend....Deb
 


chantry31
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 12/17/2005 5:52 PM (GMT -7)   
Hi Debbie, sorry to "barge in", but what is a CEA test? Is it a blood test? What does it tell you?
Thanks
Chantry
There are no wrong turnings, only paths we did not know we were meant to take - Guy Gavriel Kay


debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 12/17/2005 8:22 PM (GMT -7)   

Hi Chantry! Don't ever feel that you are "barging in"! The CEA is one of 2 tumor tag tests that I was having done every 3 months at my checkups until I had the recurrance. My understanding is that this blood test will show if there is an increase in cancer cell's in the bloodstream. Normal is 3.0. Mine was 12 but that was w/in the normal range. Now that I have been on weekly chemo, my CEA count has been between 2.8 and 3.8, which is good. The other tumor tag test that I now have done every 3 weeks is the CA 27-29. Both of these tests were done when I was first diagnosed as well each visit w/ my oncologist. I hope that there is someone that can explain these tests better than I have but hopefully this will give you some idea.

Hugs..Deb


 


chantry31
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 12/18/2005 6:13 PM (GMT -7)   
Thanks Deb, I dont think that I've had either of these performed on me, so that is definitely going on my "To Ask the Doctor" list!
I'm glad to hear that your counts are well within the normal range.

Chantry
There are no wrong turnings, only paths we did not know we were meant to take - Guy Gavriel Kay


DiVanDyke
Veteran Member


Date Joined Jul 2003
Total Posts : 734
   Posted 12/18/2005 9:21 PM (GMT -7)   
Hello Donna,
I had a recurrence five, almost six years ago now. I was told by some that they would just try to prolong my life a little while. I am truly blessed. I know that there are many people who have a recurrence and it never comes back again. This is the place to be, a place of love, encouragement and information. I had never heard of the CEA test. I do know that new things come out all of the time. I too was in a clinical trial 5 years ago that has been on the news lately as working. When I was diagnosed the first time it didn't exist. Most of our new drugs didn't. Herceptin had just come out and it was by lottery. Do you all remember that?? Good wished to you Donna, Hugs,
DiVanDyke

debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 12/18/2005 11:11 PM (GMT -7)   
Di: I was in that clinical trial for the herceptin also. I didn't get it. I remember at one point they closed the trial because women were having heart problems. I had to sign a waiver, even though I hadn't received herceptin. Now I get it weekly. I guess that we are "pioneers"! As for the CEA tumor tag test. I have had that since my first diagnosis. I thought that it was a pretty standard test for bc patients.
 
Deb
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 3:04 AM (GMT -7)
There are a total of 2,734,553 posts in 301,223 threads.
View Active Threads


Who's Online
This forum has 151341 registered members. Please welcome our newest member, Emmyl00z.
185 Guest(s), 2 Registered Member(s) are currently online.  Details
mp16g08, getting by


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer