Desperately need responses - Anyone on Lupron to suppress hormones??????

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Lmmackey
Regular Member


Date Joined Mar 2005
Total Posts : 316
   Posted 1/3/2006 5:23 PM (GMT -7)   
If you have been taking Lupron to suppress estrogen levels, either to take an aromatase inhibitor or just to keep estrogen levels down, please let me know. I'm now at a point where I have to decide about removing my ovaries since the Lupron isn't bringing me ALL THE WAY into menopause and so the Arimidex isn't working. I would really appreciate any and all responses with anything to do with this! Thank you so much - I'm beginning to feel like I'm 108 and no one understands!

L&H,
Laure'
The finger of God touches your life when you make a friend.
----Mary Dawson Hughes---


debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 1/4/2006 11:24 AM (GMT -7)   

Laure: First, you aren't 108 yo but I feel the same way every morning when I attempt to get out of bed and move. lol

I had a full hystrectomy when I was 31. It was tough being thrown directly into menopause..one min laughing and the next crying. And as we all know, the "Power Surges"! But it was the best thing that I could have done. I don't know anything about Luprone. Sorry. Hang in there.

Hugs..Deb


 


Candy
Veteran Member


Date Joined Jul 2003
Total Posts : 1294
   Posted 1/4/2006 1:11 PM (GMT -7)   
Laure', I can't answer your questions. You are not 108!!!! I am. Try to stay calm and I hope you get the answers you need.

Hugs,

Candy
Two are better than one, because they have a good return for their work: if one falls down, his friend can help him up.  Ecclesiastes 4:9-10
 


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 1/5/2006 7:11 PM (GMT -7)   
Sorry I can't help with the Lupron question, either. Just wanted to give you a hug, MK


Lmmackey
Regular Member


Date Joined Mar 2005
Total Posts : 316
   Posted 1/6/2006 10:11 AM (GMT -7)   
Thanks for your posts, ladies. I saw the NP from the onc's office yesterday and had my latest lupron shot. This time they doubled it. Seems they had another lady with the same problem as me and the double dose helped. We'll see. I'm still contemplating an oophorectomy which will eliminate that source of estrogen permanently, plus eliminate o.c. risks. I have to see a genetic counselor since my great grandmother died of "some female cancer."

Tamoxifen isn't an option for me, I'm told, due to my heart issues and clotting risks. Besides, reading all of the latest research makes my decision clear (even if I could take T) that the aromatase inhibitor keeps recurrences lower than T.

Anyway, I appreciate all of the support. I guess I was pretty down, but each new day brings new emotions. Love you all!

Laure'
The finger of God touches your life when you make a friend.
----Mary Dawson Hughes---


coopfesta
Veteran Member


Date Joined Sep 2003
Total Posts : 1373
   Posted 1/7/2006 1:00 PM (GMT -7)   
Laure'
 
I took Lupron and aromatase inhibitors for a while before my hysterectomy.  No poor side effects.  I was lucky to have it perscribed, it's quite expensive.  I should have done it sooner, since I was TOLD I was in menopause and I wasn't.  I wound up in a traumatic situation because of that.  I didn't have a problem with the Lupron.  I was 39, and was 37 when I was on chemo, and had my last period right before starting chemo.  I had the hot flashes, and still do.  I'm adjusting.  I'm not sorry I had the hysterectomy, even with the problems it may have caused (see my posts on this page, start from the first one).
 
Not sure what else you want to know.  Let me know.


"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius

Ellen


coopfesta
Veteran Member


Date Joined Sep 2003
Total Posts : 1373
   Posted 1/7/2006 6:05 PM (GMT -7)   
Genetic Testing is done at one lab in this country.  It's Myriad Lab in Utah.  It's a regular monopoly.  They don't accept assignment because, well, they don't have to.  They just take blood and then test for the BRACA gene.  You can get one of three outcomes.  BRACA-positive, BRACA-negative, or Gene of Unknown Orgin, or something to that effect.  The third one is when they don't recognize the genetic material.  If later on, someone genetic material matches your unknown, they say they will let you know about it.  The testing is extremely expensive, upwards around $6- or $12,000 I don't remember which.  I had to pay about two thousand on my own. 
 
Having the BRACA Gene means it is very very likely that you will contract ovarian cancer.  It is useful in making surgical decisions.  I really didn't need it because I was going to do a hyster anyway, but I wanted the info.  Someday, when I have some money, I'm going to look into what tests I can get done because I am adopted and some genetic information would be good for my son to know.  Was there more you wanted to know?
"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius

Ellen

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