long time no posts...but have a question about hyster.

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Chemosabe
Regular Member


Date Joined Dec 2003
Total Posts : 257
   Posted 1/4/2006 6:34 PM (GMT -7)   
Ok I have been MIA for a while. A long while!
 
I am about halfway through what I like to call "chemo-light"....it's just like chemo but without the annoying side effects...my Herceptin treatments. The onco thought it would be a good idea for me to get it since I was HER2 +3.  A lot easier than the first round of chemos, except that my veins are shot from the Adriamyacin so they have to poke around a lot before the get anything...ouch!
 
So my question is for those who may have had a total hyster including ovaries removed...since that is what I am going to have done in May. They have found quite a number of reasons to remove it all, not including the cancer. The thing is that every male doctor I tell this to seems to react like, "they're going to remove your ovaries?! Oh, dear Lord!" as if this has never happened to a woman in her late 30s.
 
My gyn (who is a woman) says that as long as I take Fossomax and do weight bearing exercise (healthy diet, yadda, yadda) that I should be OK. So, has anyone out there had ovaries removed early and care to share your experience? I already had a taste of menopause when the chemo stopped everything for a year (been there done the hot flash).
 
ps: on another note, all this came about because it turn out that my Mom took DES while she was pregnant....I had no idea and just learned about all the effects of this from the CDC website. It makes me wonder if that is also what caused my BC, too.....
 
Miss you all!
Love,
Erin
 


cupycake2
Veteran Member


Date Joined Jul 2003
Total Posts : 955
   Posted 1/4/2006 9:10 PM (GMT -7)   
Hey Erin,

Sorry that I can't help you with your question. I just wanted to say "hi there", it was so nice seeing your post. I don't have the time to do much posting myself anymore , however, I periodically stop in to see how my "sisters" are doing.

You made me smile just "seeing" you in our little haven here.

Hugs and Love,
Debbie
PS. I have such fond memories of meeting you and your hubby in Louisville.
"What sweetness is left in life if you take away friendship? It is like robbing the world of the sun"
Cicero


Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 1/4/2006 10:43 PM (GMT -7)   
Erin

I have had a hysterectomy but still have my overies. I was estrogen progesteren positive so I talked to my DR and she said we will either take iut the ovaries or out me on meds to stop the hormones. It makes no difference to me, just get rid of them would be fine.
Hugs:)
Bernadette


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 1/5/2006 6:39 PM (GMT -7)   
I don't understand what all the fuss is about with ovaries. I think I had mine removed but I am not sure and it was so long ago now I doubt I could find out from records. With my hernia mess I don't think anyone can tell from feel, either. I was 42 when I had my hysterectomy and had already started menopause. Anyhow whatever you and your doctor decide should work out. I have heard about DES being a problem possibly seems like someone else in our group was a DES baby. I was prescribed an Amphetamine and Librium mixture to keep my weight down when I was pregnant for my second daughter and have always wondered if that could have messed up her fertility system. My goodness today no one would think of giving a medication like that. I am glad to hear from you and know you are doing so well on the Herceptin, we are hearing good things about it in the news. Hugs MK


barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 1/5/2006 9:38 PM (GMT -7)   
Dear Erin...Have been thinking about you and wondering where you have been. I haven't had hysterectomy yet, but it has been recommended by genetics that I do...just keep putting it off. Anyway, I hit menopause like a brick wall during chemo (at 36) and never left it, so the parts are just spare at this point anyway. But my question would be, why not have it all out? I'll tell you, I had an aunt who had a partial hyseterectomy and later went through ovarian cancer. Why risk that? It makes no sense to me to keep ovaries if you're having your uterus removed. By the way...I've been in menopause for 12 years now, and dexascans say my bones are fine...as a matter of fact, they said on the last one that I have bone age equivalent to a 36-year-old (I'm almost 48 now), so I don't think lack of estrogen has hurt my bones at all. I don't do anything but drink my milk.

Good luck, and let us hear from you a bit more often, sweetie!

Love and hugs...
BEV

Candy
Veteran Member


Date Joined Jul 2003
Total Posts : 1294
   Posted 1/6/2006 5:51 AM (GMT -7)   
Hi Erin,

Can't help you with your questions, but I sure am happy to see you post. Say Hi to your DH for my DH and I.

Hugs,

Candy
Two are better than one, because they have a good return for their work: if one falls down, his friend can help him up.  Ecclesiastes 4:9-10
 


Chemosabe
Regular Member


Date Joined Dec 2003
Total Posts : 257
   Posted 1/6/2006 6:13 PM (GMT -7)   

Thanks for your responses. And it is great to talk to you all again!

DH got a big sign for Christmas that says, "Still Plays with Trains" which he hung on the outside of the garage. (I did, however, say no when he had the "great" idea to re-pave our driveway with colored pavers in the pattern of railroad tracks. Good grief!)

Love,

Erin



jaaustin
Veteran Member


Date Joined Jul 2003
Total Posts : 741
   Posted 1/7/2006 11:06 AM (GMT -7)   
Hey Erin,
I had a total hysterectomy six weeks ago, a few weeks after my 36th birthday. So far I have NO complaints. I wasn't in menopause at all. I was still having regular periods. So far (knock on wood) I haven't had a single hot flash and my mood hasn't been swinging. Both my onc. (man) & my gyn (woman) were totally fine with my decision and didn't feel it was overkill at all to go ahead and take everything out. I was ER+ and just finished my 5 years of tamox., so I felt it was the final thing I could do to try to ward off a recurrence.

I would do it again tomorrow. If you feel like you should do it, go for it. I don't think you will ever regret it.

Hugs,
Julie
Do not go gentle into that goodnight,
Rage, rage against the dying of the light.
~Dylan Thomas


coopfesta
Veteran Member


Date Joined Sep 2003
Total Posts : 1373
   Posted 1/7/2006 12:52 PM (GMT -7)   
Erin:
 
I started to reply, but it got longer and longer and started seriously resembling a new topic.  Please see my "bunch of stuff" post.  It's my reply-turned-topic. 
 
Miss you, kid,
 
Ellen
"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius

Ellen

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