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IV_Wife
New Member


Date Joined Mar 2006
Total Posts : 8
   Posted 3/16/2006 1:00 PM (GMT -7)   
I am trying to locate anyone diagnosed with Fibrocystic Breast Disease or Benign Breast Disease...FBD seems to run in my family, however I am really confused as to what the symptoms actually are. I do have some symptoms, I guess my questions just out-weigh everything else at this point...Any help would be greatly appreciated.

debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 3/17/2006 6:38 AM (GMT -7)   

Hello! I am sorry that I don't have any info to give you. I am posting so that this can be bumped back to the top. I am sure that there will be some of our members that will be able to help.

Deb


 


IV_Wife
New Member


Date Joined Mar 2006
Total Posts : 8
   Posted 3/17/2006 7:13 AM (GMT -7)   
I seem to be finding a whole lot of nothing helpful...Thank you though...I appreciate it...

debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 3/17/2006 7:39 AM (GMT -7)   

Please be patient. It sometimes takes awhile to get an answer. Eps today being St. Pat's Day. I have confidence that you will get some replies from some of our members.

One suggestion that I would have is for you to write down the questions that you want answered. Then call the physician that diagnoised you and get the answers. I know that it is NOT easy to question a physician or feel that you are in charge but it is something that needs to be done. Have you contacted your local chapter of the American Cancer Society to see if they have any info? Many times they will have info or be able to direct you to the place to find your answers.

I noticed that you are from Kansas. I'm from Mo. What city? The U of K Med Ctr has a great reputation. Have you contacted them?

Hang in there. We'll help all that we can.

Hugs...Deb



 

Post Edited (debbiR) : 3/17/2006 7:41:59 AM (GMT-7)


debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 3/17/2006 7:54 AM (GMT -7)   
Ok, I am back again. I did a search by entering "Fibrocystic Breast Disease or Benign Breast Disease". There was numerous links giving symptoms, causes, etc. From what I read Thirty percent of American women have fibrocystic breast disease, a benign (noncancerous) condition characterized by round lumps that move freely within the breast tissue. This lumps are usually tender to the touch.
The texture of the lumps can vary from soft to firm. For many women, the tenderness may increase as menstruation approaches. Often the cysts fill with fluid and can enlarge premenstrually in response to the increase in hormonal levels during this time. With repeated cycles of hormonal stimulation, the breast cysts may become chronically inflamed and surrounded by fibrous tissue which can harden and thicken the cysts. It is then more difficult for the fluid trapped in the cysts to escape and be reabsorbed by the body. This condition occurs most frequently in women in their late thirties and forties. To distinguish these hardened cysts from cancer, physicians often perform a simple office procedure called a needle aspiration. In this procedure, a needle is used to remove fluid from the cyst. This helps relieve pressure from the cyst on the surrounding tissue if it is causing pain, as well as rule out breast cancer. A mammogram will also help distinguish a breast cyst from breast cancer.
 
I don't know if this is the info that you were looking for but I hope that it helps.
 
Deb
 


louieloui
Regular Member


Date Joined Apr 2005
Total Posts : 44
   Posted 3/17/2006 9:15 AM (GMT -7)   
I've been diagnosed w/FBD as have all (as far as I know) the women on my mom's side (aunts and cousins). It is very annoying given I can't distinguish between lumps, ducts, tissue, ribs, etc. but I try to keep up w/the SBE every month. It's how I found a pea-sized lump that actually led to the doctor finding a grape-sized lump. So far tests have come back as benign however I am still debating on removing it.

Deb posted some great info. You get all kinds of lumps and bumps especially around your period. It can make it harder to know what's "okay" and what's "not" so anytime you feel a lump that does not go away after your cycle ends (if it's around that time) or w/in a certain # of days, I would have the doc feel it just to be sure. Of course, if you're not comfortable waiting and your gut says "get it checked out now" then do that.

FBD can be uncomfortable and difficult so just stay on top of things.

~Laura~

IV_Wife
New Member


Date Joined Mar 2006
Total Posts : 8
   Posted 3/17/2006 11:32 AM (GMT -7)   
I haven't been diagnosed with FBD however all the women in my family have been, so I'm sure that's what it is...I have checked all the web pages and read all the information, I just wanted to talk to someone who had been diagnosed so I could get an idea of what I should expect from this...I guess my biggest question is if it would be worth the worry and money to have it diagnosed for sure. I hate to self-diagnose however in the past few years my breasts have grown so much I just can't imagine what else it could be. My mother said that she didn't get as big as she is now until recently...when she started taking horomone replacement, the estrogen made them go haywire...I'm kind of concerned because I am only 28 and I am already as big is she is now. I have a smaller build so if they grow much more I will definitely have to have a reduction. Especially if I have any more kids. I also worry because all of the pages I see are related to breast cancer, even though they say that FDB patients are not at a higher risk, I still worry. Am I being silly or a hypochondriac, am I imagining things or do you think I should go in. I don't want to go see my doctor and have him tell me I'm an idiot, but I hate to not go at the same time... Any advice you could share would be greatly appreciated...Thank you for all you have said so far...

debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 3/17/2006 12:49 PM (GMT -7)   

When it comes to bc or other problems w/ breasts, age doesn't matter. I believe to have peace of mind, I would go see your obgyn or family physician and get a diagnosis. There is no reason to continue to worry needlessly.

Deb


 


jaaustin
Veteran Member


Date Joined Jul 2003
Total Posts : 741
   Posted 3/17/2006 12:55 PM (GMT -7)   
I was diagnosed at 30. Age is a non-factor with this disease. You cannot "assume" anything. I would definitely have a doc check you out. Why not? Being worried about being an "idiot" sure doesn't outweigh your breast health. Take care of you. Obviously you are worried or you wouldn't have posted. Put your mind at ease and have it checked out.
Good luck.
Julie
Do not go gentle into that goodnight,
Rage, rage against the dying of the light.
~Dylan Thomas


IV_Wife
New Member


Date Joined Mar 2006
Total Posts : 8
   Posted 3/17/2006 2:14 PM (GMT -7)   
I suppose that has something to do with my fear of going to the dr....When I said something to my ob, he dismissed me like it was nothing...My mom and I had discussed me having a mammogram done after my second baby and he never even really responded. So after my last baby was born I never said anything...Do you think maybe I should see my family physician...or maybe contact a different ob...This physician has been my ob for 7 years...I hate to think he would dismiss me if he thought there was a problem...

IV_Wife
New Member


Date Joined Mar 2006
Total Posts : 8
   Posted 3/17/2006 2:24 PM (GMT -7)   
Deb, I just realized that you asked where I live...Hutchinson...Where are you in Missouri?

kiwisimone
New Member


Date Joined Feb 2006
Total Posts : 12
   Posted 3/17/2006 4:45 PM (GMT -7)   
Hi there:

I'm confused too. I just got my lab results back from a biopsy I had done on a lump in my breast. It shows fibrocystic changes. The nurse tells me it is very common and benign. She is also having the dr call me next week to discuss further. I was confused as to whether or not this could change to something else at a later date. Also confused as everything I read shows that it comes and goes with hormonal changes and usually occurs in both breasts.  My lump has been there constantly and doesn't seem to change any.

Sorry I am not much help right now but might have more info after the surgeon calls me next week.

Will keep you updated.

Simone

IV_Wife
New Member


Date Joined Mar 2006
Total Posts : 8
   Posted 3/17/2006 4:51 PM (GMT -7)   
Good Luck Simone...Hope all goes well. Let me know what you find out.

kiwisimone
New Member


Date Joined Feb 2006
Total Posts : 12
   Posted 3/18/2006 10:31 AM (GMT -7)   

Hi again:

I have a list of questions for my surgeon so will definitely let you know what I find out.  In the meantime, I found this:

http://www.fwradiology.com/fibrobrst.htm

You may have already come across this, or something like it if you have been searching the web.  All the info seems to be pretty much the same.

Good luck to you.  Let me know what you decide.  If it helps at all, if I were you I would get it checked out for peace of mind.

Best

Simone


MNlady13
Veteran Member


Date Joined Jul 2003
Total Posts : 2044
   Posted 3/21/2006 8:48 AM (GMT -7)   
You mught want to try http://www.imaginis.com web site for information. Lauri


"Go confidently into the direction of your dreams. Live the life you always imagined" Thoreau
 
Life is not measured by the number of breaths we take, but by the moments that take our breath away.


barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 3/22/2006 7:32 PM (GMT -7)   
I was diagnosed with fibrocystic breast disease years before I was diagnosed with breast cancer. As far as research goes, I don't think that there has ever been a causal factor established. I'm not really sure what information you are looking for. In a nutshell...I had lumpy, bumpy breast tissue. I had some lumps that would enlarge and be painful at times, and then go down and not bother me at all. The pain could be excruciating. If you had it, you would know it. I have a friend who had such painful FBD that she chose to have mastectomies and reconstruction when she was in her 20's. I can tell you that the cancerous lumps felt very different to me than the FBD lumps, so self-exams are critical...don't assume you wouldn't know a cancerous lump from a "normal" lump, or vice versa.   
 
The important thing is...if you have a lump that concerns you, get it checked, and the sooner the better.  Let us know what the doctor says.

Hope this helps.
 
Bev

Post Edited (barkyboys) : 3/22/2006 7:37:35 PM (GMT-7)

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