Biopsy results - fibrocystic changes???

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kiwisimone
New Member


Date Joined Feb 2006
Total Posts : 12
   Posted 3/17/2006 4:08 PM (GMT -7)   
I just got off the phone with the nurse from my Surgeon's office.  She got the lab results back and it says fibrocystic changes.
 
From what I have read, these changes usually come and go with your period and usually occur in both breasts.
 
My lump has been there constantly for 2-3 months now (that I know of) and is only in one breast.
 
The nurse is going to have the doctor call me next Tuesday as I have further questions that she could not answer.
 
Is there anything further that should be done now?
Can this turn into cancer at a later point in time?
Why do I have a constant lump when this is supposed to be due to hormone levels fluctuating?
 
Does anybody here have any info on this??
 
Thought the results of the biopsy would ease my mind but I am still a little confused.
 
Any input would help!
Thanks - Simone

kiwisimone
New Member


Date Joined Feb 2006
Total Posts : 12
   Posted 3/17/2006 5:00 PM (GMT -7)   
Also, the Surgeon did a Fine Needle Aspiration. How accurate is this type of biopsy?

The nurse asked if the doctor had discussed having an open biopsy done. Is this removal of the lump?

Thanks again
Simone

Clairem_uk
New Member


Date Joined Dec 2004
Total Posts : 18
   Posted 3/18/2006 7:26 AM (GMT -7)   
Hi Simone

I am an occasional lurker - used to post on another board with some of the oldtimers here, who helped me out when I was going through a very similar time to you. I had no family history, but lots of fertility treatment and miscarriages...which my surgeon explained had probably added to the fibrocystic changes. I had lumpy areas in tne breast (nowadays in both) and was diagnosed with fibrocystic changes after a core biopsy. I still have mammos and u/s every year, and exams - it would be hard to biopsy every lumpy bit these days, but they all feel the same: sort of rubbery, ridgy, and lumpy as opposed to distinct lumps. When I doubt something I feel, I run back to my surgeon - just in case.

I was told it was quite common for women to develop these changes in their forties (I was 40 when I first had them) as hormones fluctuate more, but mine were not cyclical and never left - in fact, they have increased. Not unusual, in midlife, apparently.

My big miracle..I had a daughter at 43, and after that the pains and lumpiness calmed down considerably for a couple of years: again, my surgeon had told me to expect that. Unfortunately, its temporary! Though they are likely to calm down again in menopause.

Anyway..I do'nt usually chip in here, except to check on old friends, but could relate so much to your situation. I hope this helps even a little, and am glad you found the same amazing support from these women as I did five years ago.

xxxClaire ps if you are not satisfied with a FNA, you could ask for a core biopsy? If you trust your surgeon, discuss it with him - he may have good reason not to need one, but I would want to know what those reasons were and be satisfied too!

IV_Wife
New Member


Date Joined Mar 2006
Total Posts : 8
   Posted 3/18/2006 8:19 AM (GMT -7)   
Claire...I was curious to know if you had a lot of change in size with your fibrocystic changes...especially after your daughter was born...I seem to be having some of the same problems, but I haven't been diagnosed yet. Trying to decide if I am being a hypochondriac or if there really is a problem there. Any help you could offer would be appreciated...Thanks

Clairem_uk
New Member


Date Joined Dec 2004
Total Posts : 18
   Posted 3/19/2006 10:19 AM (GMT -7)   
Hi IVwife,

I don't think its being a hypochondriac to have breast changes checked out - that doesn't mean you are at higher risk of breast cancer, it just means you are being sensible and attending to your body! You have every right to a doctor's support on that, too. My breasts went up a cup size after dd's birth...and they are easier to examine now, as they are 'emptier' (lol) and softer.

If I were you, I'd tell my doctor that as I'd had a lot of changes, I'd like a new 'baseline' for future reference - especially if your changes are making self-exam difficult. (I found SE hard - hence regular checkups, because I was so lumpy) That means an exam, and a mammo and/or ultrasound - if you have young, dense breasts mammos can be hard to read.

I certainly wouldn't panic - I read your other post - but if it were me, I'd want to get checked out so I knew where I stood: peace of mind is so precious!

Wishing you luck and health, xxxClaire

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 3/20/2006 8:27 AM (GMT -7)   
I know nothing about FBD but thought I would give my two cents worth on the Fine Needle test. I think it is a great test if it is used to verify a mammogram that is highly suspicious. But I am a little leery if it comes back negative on a lump that no one is quite sure about. If the cancerous spot is very tiny and it is missed, then it gives a false positive and helps no one. I had three lumps, two benign before bc. All of them were removed and pathological tests were done. Even at that, when I was diagnosed with bc, the lump came from the same area that was previously testing benign. So I would opt for a real biopsy, lumpectomy, open biopsy whatever you want to call it. Hugs MK


IV_Wife
New Member


Date Joined Mar 2006
Total Posts : 8
   Posted 3/20/2006 11:22 AM (GMT -7)   
Just wanted to let you know I got past the first step and made my appointment. Going with a new OB/GYN. My appointment is next Monday morning...Made my moms day!!! I'll let you know what the doctor says!! Thank you for all your words of encouragement...

kiwisimone
New Member


Date Joined Feb 2006
Total Posts : 12
   Posted 3/22/2006 2:02 PM (GMT -7)   
Okay - I spoke with my surgeon yesterday. He explained that fibrocystic changes were very common, occuring in most women at some point in time. The lumps can come and go. They can have a dull pain to them, or a sharp shooting pain (as mine does) or no pain.

He also said that the FNA can have a false negative. As mine was not ultrasound guided he had to "feel" to get the lump, although he is certain he did. He said that with the FNA there is about a 3 in 1000 chance of it being wrong, assuming that he got the needle in the right place and the cells from the right place.

I don't really know how much this helps, as it seems to be all the info I can find on the web about it anyway.

I am strongly leaning towards having the lump removed.

IV-Wife - good job on making the appointment, make sure you let us know how it goes.
MK - thatnks for your input, it is greatly appreciated.

Best
Simone
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