bilateral tram scheduled 5/9/06 so many concerns! help!

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karen in north idaho
Regular Member


Date Joined Apr 2006
Total Posts : 40
   Posted 5/1/2006 7:48 PM (GMT -7)   
This is my 1st post... I appreciated baby seester's "play by play" of her reconstruction! However... I will be having a bilateral and I am so concerned about the loss of abdomen muscles. I have been looking into DIEP and the free TRAM reconstructions, but I have not found a micro surgeon near home.  I live at the tippy top of Idaho!  There are some surgeons in Washington and Montana, but I have Idaho medicaid (via breast and cervical cancer medicaid!) and I will probably have to do the surgery in Idaho.  So far it looks like Boise, ID is the best option.  Has anyone retained their stomach strength??  Living in the country I do alot of lifting and I am really hesitating on the tram method!  Thanks for any help!!! karen (age 34)

Nemekke
Regular Member


Date Joined May 2006
Total Posts : 309
   Posted 5/1/2006 9:56 PM (GMT -7)   
Hi again Karen :)

I am opting to not have reconstruction and am also on a state sponsored breast and cervical cancer medical program. I can't tell you from personal experience anything about your upcoming surgery, but I will check at another breast cancer forum I belong to and see if I can find any posts there about the tram surgery.

I don't think I can post links and it's wrong to copy from one forum to another, but if I find anything out I will let you know here and we will figure out how else to communicate.

Hang in there hon....

*Hugs*

Michelle

Nemekke
Regular Member


Date Joined May 2006
Total Posts : 309
   Posted 5/1/2006 10:17 PM (GMT -7)   
Hi again Karen :)

Ok....I have found some information for you....but I don't seem able to PM you and I am not sure if I am allowed to post the URL for another breast cancer forum here. If you use MSN/Hotmail my userid on there is also Nemekke. I will check here tomorrow for your response.

*Hugs*

Michelle

karen in north idaho
Regular Member


Date Joined Apr 2006
Total Posts : 40
   Posted 5/1/2006 11:34 PM (GMT -7)   
thanks!
I have been looking into the diep surgery and I would need to find out if radiation damaged the blood supply from the top of my chest, because I may not even be a canidate for diep. I will feel so retarded if I end up canceling the tram flap with Dr. Owsley! It is already scheduled for May 9th and I have had 3 visits with Dr. Owsley to ask my many, many questions. He is so nice and he basically will be doing this surgery pro bono because medicaid has such a low reimbursement! One office in Missoula, MT does diep breast reconstruction using Montana medicaid and they do it for charity!!! I really want to do this reconstruction, but it would really suck if the muscle loss in my abdomen ended up making it difficult to lift, carry, or move anything over 10lbs or 20lbs or even 30lbs! I think it will work out no matter which type I end up doing!!! I will make this decision and I will just apologize to this super nice surgeon if I cancel on him!! I so wish he would do the diep, but it involves microsurgery with a surgey microscope or something and he does not do micro surgery. Dr. Owsley did say there is considerable risk that the diep flaps will not take do to blood supply problems!? I just do not know enough and I do not think very many people do have alot of info on the diep surgery! (Maybe on the east coast, and in California, but not here in Idaho) good luck on your treatments! Ambien helped me survive!! Did they warn you that taxatere and taxol cause permanent nerve damage? Some people end having that prickly and itchy feeling in their hands and feet from the nerve damage... what can we do???? Also due to atypical bipolar type II (similar to manic/depressive, but the manic phase is so mild I just feel a bit hyper!) I have opted to not do tamoxifen because I could not find medication that would reduce the severity of the depressive phases I experience about twice a year! I get so bad that I lose the will to live...it is so sad and depression has been such a major challenge since I was itty bitty! I did not even know what was wrong with me until I was 28!!!! So very sad and I am so glad depression is coming out in the open and also we are diagnosing it so much earlier! Shoot I am not going to proof read this so I apologize for any stupid errors! take care, Karen

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 5/2/2006 11:17 AM (GMT -7)   
Karen, my daughter had a tram flap and has horses and cattle to tend to. She does more than she probably should and sometimes complains about hurting some. Tram flap breasts feel very real and do grow with you as you gain weight. I was told they didn't. I ran into some infection trouble in my abdomen so I am not the norm to tell you about me. The infection was due to contaminated sutures, not doctor or hospital contamination. I will tell you that tram flap surgery recovery is long and not easy. I'm sure at 34 you want breasts again or I would suggest you try living without them. Many of the girls here with bilateral have done that. Darn this disease that affects beautiful young women! Darn is not the word I want, a much stronger one would be better but would end up in asteriks. LOL.

Hugs, MK

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