Observation & Questions

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LiddyMac
New Member


Date Joined May 2006
Total Posts : 2
   Posted 5/6/2006 9:08 PM (GMT -7)   
Hello All!
 
I wish I know of this site months ago!  In reading the many threads, I find that I'm not alone in this battle against breast cancer, and that many of you share my experiences and thoughts relative to this battle.  :-)
 
In January 2006 my surgeon performed a lumpectomy and removed two lymph nodes from my right breast and underarm.  A few weeks ago I noticed that my right arm was much larger than my left and ached.  I have an appointment scheduled with a Lymphedema Clinic in a few weeks.  From what I've read thus far, I was surprised that I wasn't seen right away.  Luckily, in the interm, my radiation oncologist told me not to sleep on my right arm, carry heavy items, and to rest my arm above my heart to help the swelling go down.  He said that given I was showing signs of the condition there was a 15% chance that I would develope Lympedema.  Have any of you ladies faced this as well? 
 
My last chemo treatment was 4/14/06 tongue and I start radiation on May 8th.  Will my hair continue to grow in during radiation? confused
 
Thanks!
 
LiddyMac
 
 

babyseeester
Veteran Member


Date Joined Oct 2004
Total Posts : 826
   Posted 5/6/2006 9:47 PM (GMT -7)   
Hi and welcome to this awful but wonderful club.  I haven't experienced lymphadema, but others here have.  I just wanted to reassure you that your hair will continue to grow during radiation.  I found radiation to be very easy.  It's just a hastle, because it's every day.  Good luck with it.
L & H,
Kathy


postal2
Veteran Member


Date Joined Jul 2003
Total Posts : 1106
   Posted 5/6/2006 11:50 PM (GMT -7)   

Hi and welcome. There are several of us here with lymphedema. Mine is somewhat mild, but still bothers me a lot sometimes. I wear a compression sleeve on my arm everyday and a "night sleeve" at night. I am trying to KEEP it as mild as I can. My advice to you would be to call and see if there is any way they can get you in sooner. The sooner you start the massage therapy, the better! Also a great site with loads of info is  www.lymphnet.org  It is the National Lymphedema Network and this is what they do. I am sure some others will answer too, weekends are always slower here. Good luck and let us know how you are doing!          

Gail 


  It's only when we truly know and understand that we have a limited time on earth -- and that we have no way of knowing when our time is up, we will then begin to live each day to the fullest, as if it was the only one we had.
 
Elisabeth Kubler Ross


Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 5/7/2006 12:46 PM (GMT -7)   
Hi

I just wanted to welcome you to our little group. I had lymph nodes taken out but no problems with lymphedema.

My hair grew during my last bit of chemo and all the way thru 2 months of radiation. It is about 1 1/2 or 2 inches long now. I finished chemo in January and radiation last month.

We have many ladies here and just about any question you have can be answered. Take care.

L&H
Bernadette
 
 


LiddyMac
New Member


Date Joined May 2006
Total Posts : 2
   Posted 5/7/2006 2:32 PM (GMT -7)   

Hi Kathy, Gail, and Bernadette,

Thank you for your responses, words of encourgment, and time.  Before my hair began falling out my head used to itch.  Now I notice that my head is itching--I can safely rule out head lice or dandruff!! (ha,ha)  I hope the itching is a sign that my hair is growing back.  Also, ladies how uncomfortable will it be when the rest of hair begins coming in--if you know what I'm trying to say?

I visited the lymphedema site and saved it as a favorite-thanks a bunch.

Hope to hear from you all soon.

Liddy

 


barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 5/8/2006 3:32 PM (GMT -7)   
LOL! This is a question I haven't heard before! But it is a very good question. I didn't have any itching or other noticeable indications of hair loss/growth in any area but my head although I had hair loss/growth in several other areas. Anyone else???


BEV

Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 5/8/2006 5:02 PM (GMT -7)   
Hi Liddy

I had the stinging sensation during hair loss and right before I started growing hair back. My head was very sore and I did not want to touch it. It did not hurt at all when it started growing back in. Good luck to you.

L&H
Bernadette
 
 


Kattbird
Regular Member


Date Joined Jun 2005
Total Posts : 243
   Posted 5/9/2006 3:06 PM (GMT -7)   
My head would itch then hurt when I scratched it when it started coming out. I haven't experienced any itching or soreness with it growing back.
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