Believe me, you are not alone (the board gets kind of slow around holidays as most women are off and about visiting, but you can expect more replies later in the week). I am both esto/prog negative and HER2+3, to boot.
There's not too much out there for us hormonally negative gals, either. In some ways, that's a good thing, since it means our type of cancer won't get "fed" by what our ovaries are (or were) pumping out. But it does make you think, "hey how come they don't have any pills for us to take?"
Wackygal - I feel better already...just having heard from those of you who have posted returns. It feels good to know that I really am not alone after all. I try not to dwell, but it crosses my mind more often than I like to admit.
Thanks for the input and the support.
Hi there Grams4,
Just wanted you to know that if ever you need to talk and just chew someone's ear off i am a very good listener and check in here regularly.... I may not be ridding the same wave this very moment, but as i said i am a very good listener...
I send you all the strength i can muster for you to keep on strong. Hope to hear from you... Brandi
Hi Grams4! I am also Estrogen Neg. I felt the same way when I would talk to gals that were able to take the tomaxfin. It really made me angry. When I was rediagnosed several years ago, I thought that "was it". Wrong! I had weekly treatments of Navelbine and Herceptin for 26 months and in Feb, 2006, got an all clear. I take Herceptin 1x a month now as a preventative measure. This week an announcement came out that there is another new drug that has been approved that will take over if and when the Herceptin stops working. So you can't ever give up. Many of our members now are in clinical trials that may be able to help us in the future. There are lots of us on this board that are survivors w/ the same diagnosis that you had!
Hudalives: I debated on whether or not to respond to your post. I wasn't sure that it was worth the time that it would take me to type this. You make me very angry. You come here using the words "sorry for your grief". You have no idea what we are experiencing. You make it sound as though someone has died and I resent it! You come here to promote a website that is controversial and which, by doing so, is agst the rules of this website. I see that your posts have been deleted from one of the forums and I think it should be from here also. Please don't attempt to try to understand the women's feelings on this board because there is no way that you can. IMHO, you don't need to be posting here!
Grams: I am so sorry that the idiot upset you. It seems, from time to time, we have these individuals that feel they have the right to come here and post. Most of the time they are promoting some wierd meds, treatments or website.
Hey, what has happened to each of us hits at different times. No matter how well we think we are prepared - both mentally and physically - there are still all of the stages that we have to go thru....anger, grief, depression,etc. So don't be to hard on yourself. Go w/ your feelings and also share them w/ your support team. Whether it is your family, close friend (s) or medical team. It is important for them to know how you are doing mentally as well as physically. Keep coming here for support cause we have lots of it.