Inflammatory Breast Cancer- Please help!

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New Member

Date Joined Jun 2006
Total Posts : 1
   Posted 6/12/2006 8:43 PM (GMT -6)   
I don't know very much about this, but I have a lot of symptoms/signs of IBC. How long did you show symptoms before you were diagnosed?? Are there any chat rooms or support groups??

Veteran Member

Date Joined Feb 2005
Total Posts : 730
   Posted 6/13/2006 11:07 AM (GMT -6)   

Hello Chelsea! Welcome. I would suggest that you contact either your family physician or obgyn for an appointment. Tell them the problems that you are having and get started w/ the tests. Have you had breast problems in the past? What makes you think that you have IBC? If you haven't had a mammo, get one scheduled. But before becoming to frightened, make the appointment w/ your physician and go from there.



Veteran Member

Date Joined Jul 2003
Total Posts : 1090
   Posted 6/13/2006 6:53 PM (GMT -6)   
I want to mention that IBC does not always show up on mammos. I had one and was told I was fine. This was in March of '98. I complained until October, I insisted something was wrong then I started turning all different colors. Skin texture was different and finally, they realized I was not fine and something was going on. They did a ct scan and they found my issue. I understand I am not alone, it is common for mammos to fail with IBC. They finally figured mine out when it was so ugly they could not longer say it was nothing. You did not mention what makes you think you have IBC. I know a lot of us would be glad to help but we really need to know more to help. If you think you have it, you really need to listen to Deb and get to a doctor.

Hugs Joyce
How wonderful it would be to see Angels where there are only clouds. How sad it would be to see clouds where there are Angels.

Veteran Member

Date Joined Jul 2003
Total Posts : 2044
   Posted 6/13/2006 7:55 PM (GMT -6)   
I did not have IBC, just invasive ductal here. But this is a good site with lots of information on IBC. Good luck to you. Lauri
"Go confidently into the direction of your dreams. Live the life you always imagined" Thoreau
Life is not measured by the number of breaths we take, but by the moments that take our breath away.

Veteran Member

Date Joined Jul 2003
Total Posts : 857
   Posted 6/13/2006 8:02 PM (GMT -6)   

Yes, please tell us more about your symptoms... mine had characteristics of IBC (puckering of the skin), but the onc and surgeon differed on their opinions as to whether it was or not.  Here is a good site:  

good luck and let us know how you're doing... Stefanie

"It's been worth everything I've been through,
 To do what I do"

                       To Do What I Do   -Alan Jackson, 2004

Veteran Member

Date Joined Jul 2003
Total Posts : 1564
   Posted 6/14/2006 5:03 PM (GMT -6)   
I know our dear Joyce is evidence, IBC can be overcome, so please don't wait for it to get worse before you get to a Doctor. I sat down beside a woman in my onc's office one day, and I learned that she had been diagnosed with IBC 13 years prior. I was awed by this lady!


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