PS- I just HAVE TO SAY THIS --- WHEN are they gonna remove the lady over on the right side of the screen staring at us with her hands stretched out with the migrane medicine TOPAMAX???? She gives me the CREEPS and she's been staring for MONTHS!!!!!!!!!!!!
Post Edited (wackygal) : 7/4/2006 9:59:48 AM (GMT-6)
Starting after 5 years, I got the ca 27.29 once a year. This August for my 9th year checkup, I was thinking about NOT asking for that test - if all other blood work looks okay that day. I just get too stressed out waiting for the 27.29 results. Year before last they came back elevated, had to go back in and give more blood, and that time they came back A-okay. I aged a couple of years in that wait, and I don't have a couple of years to spare. Seems things can go haywire on that test too!!
As I've said all along, it's a crap shoot. If I had a recurrence, don't know whether I'd be able to go back on some form of chemo forever. Hope and pray I never have to even think about it.
And as far as medical staff goes, let them think whatever they want to think. You're laying your coins down, and it's their job to be courteous and prompt in their response no matter how many questions you ask. Remind them if necessary that's it's your life on the line, not theirs. Why do we have to have the added "benefit" of trying to placate everyone?? Give 'em h*ll if you have to.
P.S. Have you heard from Patty Spears? I've lost her email due to a computer crash. Help me out if you can. Thanks.
Hi Stef! I agree w/ Glenda. You don't owe the staff anything. They are there to help you. My old onco nurse and I did not care for each other. I would tell my onco things that her nurse had or hadn't done and she would say that she would talk to her. Finally, there was an incident that, as the saying goes, was the "straw the broke the camels back". I called the head of the office and told them, in no uncertain terms, that I did NOT want this nurse to touch my file, talk to me, return my calls, etc. That if I found out that she had done any of the above, I would be talking to my attorney. I got a call back w/ an apology from the head of nursing plus the gal never came near me again. I had a different nurse assigned to me when I walked into the office each and every time. So don't be afraid to speak up.
Now, as for the 27-29. That is the test that showed I had a recurrance. I was going back every 3 mos for checkups. When I changed onco in Jan, she said that she didn't do that particular test routinely. I told her that I felt comfortable w/ it and wanted it done monthly. She agreed. I would suggest that you call your onco office and tell them that you want to come in to have bloodwork done for that specific test.