Gayle: I am so sorry to hear your news. Okay, now the waiting is over for your diagnosis. Now is the time to begin to arm yourself w/ knowledge. The first thing to do is try to stay positive. Remember, this is a managable disease today. As Lori said, surround yourself w/ positive thinking people. Laugh as much as you can. Laughter is a great stress reliever as well as a healing tool. Get a notebook and write down any and every question that you think of...no matter how silly it may seem. Keep it beside your bed also. Nights are sometimes when we think of questions the most. Decide who you want to go w/ you to your appts. It is always good to have someone w/ you - not only for moral support but to write down the answers to the questions. You will hear so much info that you will only process a small amount of it yourself. A tape recorder is a great idea. If the surgeon or onco tells you no..then get up and run out of that office as fast as you can. One other thing, remember to get a 2nd opinion. It is very, very important that you have faith in your onco and medical team. Make sure that they will work w/ your surgeon and your family physician.
Come here and post. You will always find a shoulder to cry on. Arms that will give you big hugs and lots of us to listen to you yell.
PS. Don't forget to try real hard on that POSITIVE attitude suggestion................it really does help, even though it is so hard sometimes to hold it!!!!!!
Gayle - I am so sorry to hear your news. But you have found a family here, and we will help you. I was dx in 2001 with what they 'think' was early-stage IBC.... tumor grew very fast, was 4.5 cm when it ws finally removed. I had 5 of 49 lymph nodes positive. So far (knock on WOOD) I am still in remission. My aunt also was dx w/IBC in 1998 with 10 (or 11?) nodes positive. SHe's still here too.... please don't give up, there is reason to have hope, and reason to fight. Stay strong.... if no ones mentioned it yet. there is a great website www.ibcsupport.org where you can find more info and no doubt more survivor stories.
Welcome to a place none of us wanted to be... but we're glad to help you.... hugs-Stefanie
You sound really strong but I am sorry for your reactions to the treatment. Hang in there. I remember the month after my dx, it was a roller coaster too. It seemed that all I did was hurry up and wait.
Hope you can look in the mirror soon. Remember it is still you and I bet it looks good!!!
Hugs to you,