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Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 8/18/2006 12:10 PM (GMT -7)   
Hi all
 
As you all know I have been taking steroids for my Sarcoidosis and boy oh boy what a mess! I hate those things with a passion. They totally mess up your system, make you mean as a coiled snake and all together play with your mind. I was getting very paranoid and weepy which is totally not me. I also have had weight gain, (don't need that) pimples, headaches, bruising all over and just general feeling of being anxious. I started almost 2 weeks ago to ween myself off of them and things are getting better. I don't know what this will do to the Sarcoidosis but there is not much worse than taking those evil drugs.
 
 
Tuesday a had a very sore spot in my arm from about the wrist to the elbow. I just ignored it and kept on working, but when I got home there was a red spot about an inch wide on top of where it hurt. By the time I got up on Wednesday the redness was all the way across my forearm. I was scheduled to have my port removed so I had the Dr look at it. He felt it was some kind of infection and was not sure if he should do the surgery or not. He called my oncologist and she came down to look at it. She felt it would be safe to do the surgery but had them give me a large dose of antibiotics before. She scheduled me to come in the next morning to see her and she was not happy with what she saw and sent me to have another IV of antibiotics done. I had a doppler ultra sound done and they did not see any blood clots so I am just on antibiotics for now. I have another appointment on monday for her to check it. Oh by the way the surgery to remove the port went fine, just a little soreness around the incision.
 
I guess my life was not meant to be boring in any way! I go from one disease to another without any time in between. I miss posting but have been very busy lately. I think the prayer time on Sunday is a good idea and I will be there.
 
L&H
 
Bernadette
 
 
PS
I went to see a plastic surgeon about doing the tram flap and she said I have too much skin????? what the H*%* does that mean? I thought you needed lots of skin to do this. My husband wants me to see someone else he did not like her at all. we spent an hour explaining what I wanted and then she says this is what I would recomend....a lift and reduction on the good side and thats it. HELLO I went in telling her I wanted both of them GONE. I kept telling her this during the whole time I don't think she understood that I am afraid of the cancer coming back and that is why I want them gone. DUH. Anyway enough complaining I will find someone else who is more in tune with what I would like.
 

Post Edited (Brnadebt) : 8/18/2006 1:16:55 PM (GMT-6)


coopfesta
Veteran Member


Date Joined Sep 2003
Total Posts : 1373
   Posted 8/18/2006 8:44 PM (GMT -7)   
Wow, Bern,  My prayer for you will be to have the right doc and you find each other.  You sound like you know what you want done.  I admire that.  so many people aren't assertive with doctors and just comply.  You get what you want, girl, or at least aa couple of second opinions with explanations you can accept.
 
I hope you get the option for surgery you want.  You sound fiesty and that's a good leg-up.
 
"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius
Don't knock on Death's Door.  Ring the bell and run.  He hates that.

Ellen


Kattbird
Regular Member


Date Joined Jun 2005
Total Posts : 243
   Posted 8/19/2006 4:49 AM (GMT -7)   
Bern, I'm sorry you're having such a hard time, but you seem to be in somewhat of a good spirit. You sound much stronger than I felt months ago. Hang in there. There is a light at the end of the tunnel.

Candy
Veteran Member


Date Joined Jul 2003
Total Posts : 1294
   Posted 8/19/2006 7:36 AM (GMT -7)   
Bern, hang in there and get what you want. Sounds like another doctor is on the menu. Stick with your convictions.

Hugs,

Candy
Two are better than one, because they have a good return for their work: if one falls down, his friend can help him up.  Ecclesiastes 4:9-10
 


lemonz
Veteran Member


Date Joined Jul 2003
Total Posts : 1090
   Posted 8/19/2006 8:14 AM (GMT -7)   
Love your spirit and agree that losing the doctor might be a good idea. I try not to deal with any doctor that will not listen to me. I am not fond of people that ignore me when I am paying for their services.( Lesson learned the hard way) When you are making money you make the spender happy when you are spending money they make you happy. Prayers for a doctor with skilled hands and good ears will be included on my list tomorrow. L&H Joyce
How wonderful it would be to see Angels where there are only clouds. How sad it would be to see clouds where there are Angels.
 
 


debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 8/19/2006 10:08 AM (GMT -7)   
Bern: Wow, I am so sorry that you are having all of these problems. It seems like when it rains it pours. I have to agree w/ your dh and the other ladies. Find another surgeon that will listen to what you want. Perhaps there is a reason the tram flap can't be done but at least a good surgeon will explain why and give other options. Hang in there. Lots of prayers being said for you now!
 
Hugs...Deb
 


Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 8/19/2006 2:56 PM (GMT -7)   
Thanks everyone for the input and the prayers.

My life is never dull but at least I have a life. Cancer has made me mellow out some and for that Im thankful. I tend to be a little on the highstrung side and this has calmed me down. I have learned that nothing can be worse than hearing (you have cancer) so anything else is just everyday stuff. I have alot to be thankful for, a wonderful husband, 5 great kids, a great job that I like going to, my 2 dogs and all of you!!!!!!!!!

L&H
Bernadette
 
 


JUJU8872
Regular Member


Date Joined Jun 2005
Total Posts : 349
   Posted 8/22/2006 9:21 AM (GMT -7)   
Hey, girl, call your your breast surgeon (a surgical oncologist) to remove breasts, then get a recommendation from him for a plastic surgeon. Sometimes, the PS can only do what they can do, i.e. scar on tummy, not enough flesh, etc. Let us hear from you.

Judy

babyseeester
Veteran Member


Date Joined Oct 2004
Total Posts : 826
   Posted 8/24/2006 7:42 PM (GMT -7)   
Bernadette,
 
I'm sorry you are having so much trouble.  I don't understand that comment from the PS either.  They can always get rid of the excess anyway.  I agree with the recommendation of having them removed by a general surgeon and then have the PS do the TRAM.  They should coordinate, so it can be done at the same time.  That is called a skin sparing mastectomy.  I wish I had known about that before mine. 
 
My PS knew that I knew what I wanted and never tried to talk me into something else.  Don't settle for something less than what you want. 
L & H,
Kathy


Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 8/27/2006 4:20 PM (GMT -7)   
Kathy

That is what she had said that I would need a surgeon to remove them and she would be standing there waiting to do the recon. I still don't understand the too much skin comment either but by that time I was a little upset with her not listening and gave up on her. I will find someone else to do it because I have decided that is what I want. Our slow time at work is Jan-Feb so Im thinking right after Christmas or early January. I would like to do it by the end of the year for insurance purposes. I think I will just have the one breast done and have the other lifted, that way I will have 2 perky boobies!!!!

Thanks for all of the help.

L&H
Bernadette
 
 

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