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JUJU8872
Regular Member


Date Joined Jun 2005
Total Posts : 349
   Posted 9/7/2006 1:19 PM (GMT -7)   
It has been 20 months since surgery, 15 months since last chemo and 12 months since last radiation. My arm has been getting a little red around the inside elbow area. Sometimes a little heat. No real swelling (right has always been 1/2 bigger than the other it may now be a inch). Have onc appt next Friday and trying to change it to sooner. Did not get lymphadema sleeve because I went 5 times for a fitting and never got it right (Arm too small at wrist  4 1/2")
 
Can this be lymphadema this late and this slight?
 
Judy

babyseeester
Veteran Member


Date Joined Oct 2004
Total Posts : 826
   Posted 9/7/2006 1:42 PM (GMT -7)   
From what I understand, it can happen at any time, even years later.  You have to be careful of cuts, bites, etc.  I won't let anyone take my BP in that arm anymore and all blood draws are on the other arm.  I haven't had any problems yet and hope it stays that way.  Other than that, I hope you're doing well.
L & H,
Kathy


debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 9/9/2006 7:32 AM (GMT -7)   

Hi Judy! Have you called your onco and told them about your arm? If not, please do so. The one thing that each of us must remember, no matter how long we have been out of treatment, is that the arm where lymph nodes were removed must be protected. Lymphodema can occur at anytime. My onco and surgeon told me the following:

..Wear a glove on the hand when doing any type of outside work

..Be careful when doing nail and cuticles..the slightest cut can cause an infection

..Don't lift heavy objects w/ that arm

..Use an electric razor if you need to shave..regular razor can cause cuts that lead to an infection

..Protect the arm from the sun

..No BP or shots in that arm

Remember that the lymphatic system has been compromised and that there is no way for the infection to drain from the arm.

Let us know what you find out.

Hugs..Deb


 


possitive
Regular Member


Date Joined Mar 2005
Total Posts : 239
   Posted 9/9/2006 9:09 AM (GMT -7)   
I had 6nodes out on left arm and 2 from right arm can i still get lymphadema with such few nodes out?  Tammy

 


babyseeester
Veteran Member


Date Joined Oct 2004
Total Posts : 826
   Posted 9/9/2006 11:53 AM (GMT -7)   
Tammy,
 
That's a good question.  I only had 4 removed.  I'm anxious to see the replies to this.
L & H,
Kathy


lemonz
Veteran Member


Date Joined Jul 2003
Total Posts : 1090
   Posted 9/9/2006 7:32 PM (GMT -7)   
Ladies, I hate to be the bearer of bad news. I had my surgery in 1999. Care to guess who burnt her arm removing cookies from the oven? Care to guess who did not use antibiotic right away. Just ran cold water over it. After all these years out I got lazy. I thought I was safe. What a mistake. I have to admit I got careless. I really did. When I went to the Lymph Therapist she told me the woman that came in before me was 25 years out and just got it. So please be careful. You really do not want to have to do this massage and sleeve business. But if you are getting a problem... Do not wait... Run do not walk to get it taken care of. There is no cure. But several of our ladies have had treatment and wore their sleeve and have been able to discontinue using it. Deb made a great list and the only two things I can think of to add are burns and air travel. I know after you have it hot tubs are out. I am not sure if they can cause a problem. I am sure there are more. Now that I have shared this rotten news that no one wanted to hear I will go make myself something chocolate and hope next time I post it will be something someone wants to hear. This kind of news can only be shared while eating chocolate. Love and Hugs Joyce
How wonderful it would be to see Angels where there are only clouds. How sad it would be to see clouds where there are Angels.
 
 


babyseeester
Veteran Member


Date Joined Oct 2004
Total Posts : 826
   Posted 9/9/2006 9:31 PM (GMT -7)   
Here is an informative website......http://lymphnet.org.  I'm glad you gave us the bad news, Joyce, because I didn't realize hot tubs were a problem.  I'm going to Japan in a few weeks and part of the trip is at an Onsen, which is like a hot spring.  I'll have to be careful.  Also, I wasn't aware that air travel can cause it.  I'm going on a long airline flight, so I'll be on the look out.  Hopefully, all will be OK.  I better check with the onc before I go, too.
L & H,
Kathy


coopfesta
Veteran Member


Date Joined Sep 2003
Total Posts : 1373
   Posted 9/9/2006 11:48 PM (GMT -7)   
This bites!  First, I hear about the joint aches with the arimidex I've been taking and can easily attribute my recent rise in discomfort and worsened utility of my knees to that drug, and now this.  I just got a jacuzzi, and now I'm worried.  Has anyone heard that hot tubs actually contribute to developing lymphodema?  I hope not.
 
Re:  lymphodema:  I'm very lucky so far, knock wood.  I don't take chances, though.  I got a medical alert bracelet made.  It's pretty one, I used my anniversary as an excuse for my DH to get me a gold one.  It wasn't that expensive, either.  You can ask a jewler aout how much it would cost, but you can, of course, get a silver one too.  I had "no sticks right arm" written on it, along with my other requirement in an emergency.  It was a really tight fit, but the guy did it really well.  I have crappy veins in my left arm.  Unfortunately, if you don't actually have lymphadema they aren't likely to make special arrangements since they probably don't think avoiding the arm is "necessary" when your life is at stake (and I guess neither should I, LOL).  Many professionals in this field think when a few nodes were done, it's not really a risk and will try to use the best arm with routine sticks, too.  We seem to be the ones who safeguard more than the nurses, phlebotomists and docs about this.  At least that's been my experience.
 
The bracelet with the request about the sticks is a good reminder for myself to insist on then using my right arm  It's got a rope chain and a feminine looking plate.  They make all sorts of them now, not just the bulky "ID" type of bracelets.  The jewlers have a big book from their main wholesale company.  Ask a jewler if you can see the book for the medical bracelets (if you've used them before, maybe you can get a price close to cost, since you're getting it for such a reason and you're looking right at the wholesale cost in the book with the jewler.  opens up all sorts of possibilities).  It may also come in 10k.  The red has wiped off of mine after a year, but the symbol was engraved, so it's visible.  I'll probably get some oil-based paint and fill it back in with a super-thin brush, though.  I think they look for the red.  It is an eye catcher.  Electroplating really doesn't stay on.
 
Just another suggestion. I figure any help to remember to take care of this prophalactlly is a good thing.
 
I've never been happier in this house.  Ladies, it's a dream come true. 
"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius
Don't knock on Death's Door.  Ring the bell and run.  He hates that.

Ellen


lemonz
Veteran Member


Date Joined Jul 2003
Total Posts : 1090
   Posted 9/10/2006 8:35 AM (GMT -7)   
Kathy, she did not say hot tubs cause it, she said after the fact they have to be avoided. Infact she said avoid 90* or more. I did not ask her if it would cause it. I already had it at that point and knew why. I just did not think to ask that question. Sorry. I can tell you a friend of mine had lymphs out and went to Iceland. She spend everyday in the hot springs and she has flown everywhere with no problem. Another friend flew on a hop from Philly to Forida and her arm got really swollen. There should be definate rules. This pot luck is the pitts. L&H Joyce
How wonderful it would be to see Angels where there are only clouds. How sad it would be to see clouds where there are Angels.
 
 


sparky391
New Member


Date Joined Sep 2006
Total Posts : 3
   Posted 9/10/2006 8:41 AM (GMT -7)   
I had 20 nodes removed, & I'm having alot of problems with fullness, swelling, and pain

Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 9/10/2006 1:12 PM (GMT -7)   
Judy

Just 3 weeks ago I got an infection in the arm with the lymph nodes taken out, my arm was red hot to the touch and swelled up some. My Onc took this VERY seriously she put me on IV antibiotics on 3 different days with oral antibiotics in between. So do not wait for your appointment call her ASAP. When you get an infection it can cause blood clots which are serious.

I dont mean to scare you but it certainly scared me. So get in there and keep us posted!

Hugs to you

Bernadette
 
 

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