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Have Faith
Regular Member


Date Joined Jun 2006
Total Posts : 29
   Posted 9/7/2006 3:29 PM (GMT -7)   
I'm just curious to know where you ladies have your port...???...when mom had her port in it was in her arm...and everytime we would go for chemo they would "always" wanna tug on her shirt and take her BP on that are...with the months on chemo I dont recally seeing another person with it in their arm...so I'm wonderin why would they have done this...???...she had a mast on her left side and port on right...would that have made any difference..???...
 
Just thinkin...
Christa

MNlady13
Veteran Member


Date Joined Jul 2003
Total Posts : 2044
   Posted 9/10/2006 2:43 PM (GMT -7)   
I did not have a port, but I know several of the gals on the board did/do. For most I think it was in the chest area. Don't know why your mother has a port in her right arm. Sounds odd to me. Lauri
"Go confidently into the direction of your dreams. Live the life you always imagined" Thoreau
 
Life is not measured by the number of breaths we take, but by the moments that take our breath away.


postal2
Veteran Member


Date Joined Jul 2003
Total Posts : 1106
   Posted 9/10/2006 7:01 PM (GMT -7)   
Somebody, and I cannot remember who it was, had a port in their arm. It may not have even been on this board where I heard it, but I do think it is not the most common place.
Hugs, Gail
  It's only when we truly know and understand that we have a limited time on earth -- and that we have no way of knowing when our time is up, we will then begin to live each day to the fullest, as if it was the only one we had.
 
Elisabeth Kubler Ross


Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 9/10/2006 8:40 PM (GMT -7)   
Christa

I had mine in my chest just below my collar bone, it was on the opposite side as my lumpectomy was. Are you considering having one put in? I would highly reccomend it. I had almost no pain when they did the stick each time. I just had it taken out a few weeks ago and it left a very small scar. If you have anymore questions I would be happy to answer them for you.

L&H

Bernadette
 
 


karen in north idaho
Regular Member


Date Joined Apr 2006
Total Posts : 40
   Posted 9/15/2006 10:13 PM (GMT -7)   
I do not want to be negative, but I had a bad time with the port I had put in near my collar bone. The tube from the port ran an inch or so in my vein and it bugged me soooo bad. I was 1/2 way thru chemo when it was suggested I get a port. I was very week from chemo and I had stomach troubles due to the chemo!! Usually I do great with surgery because i am in my early thirties, but I was so weak that this surgery was just too much! Then accessing the port hurt me, but I found that needle sticks were very painful for me... I wonder if some people just have more nerve endings near the skin surface than others??? I did read that redheads felt more pain than others!!! It was some study!!!! I had the port removed after only about 4 weeks and the surgeon was so pissy with me, but I can be vey stubborn and there was no question in my mind so I was determined> the surgeon numbed the area around the port and took it out! I hope you have a good experience with whatever choice you make! Breast cancer has help me so much by helping me deal with this serious type of depression I have dealt with since i was itty bitty!!
karen in north idaho

Jo-Ann
Veteran Member


Date Joined Jul 2003
Total Posts : 829
   Posted 9/16/2006 5:59 AM (GMT -7)   
My port is now in my left chest, close to the fold of my arm. I had it initially put in in Jan 96. It took about 3 1/2 weeks for it to calm down.In Jan of 2000, I had to have a second mastectomy and just told the surgeon to "save the port". He moved it further to the left where it now resides.

I sleep with a body pillow so that I am not pressing on it. A couple of times, several of the grandchildren have hit it and that hurts! I plan on keeping my port to the end, unless it mechanically malfunctions. I think that if it did, I would replace it and not just remove it.

I, too, haven't heard of anyone who had a port in their arm.

Hugs, Jo-Ann
A good friend will bail you out of jail...
but a true friend will be sitting
next to you saying,
"Dâmn... that was fun!".


debbiR
Veteran Member


Date Joined Feb 2005
Total Posts : 730
   Posted 9/17/2006 6:34 AM (GMT -7)   

My port is on my right side below my collarbone. I have not had any problems w/ it. I think in 5 years, there have been 2x that the nurses have had a problem getting it to work. I acutally forget that it is there. Like Jo-Ann, I don't plan to ever have mine removed. After my initial completion of treatments, my surgeon asked me if I wanted her to remove it. I said no as it didn't bother me. When I was rediagnosed, I was certainly glad that I still had it. I am wondering if what was in your mom's arm might be a stent. I don't think a port is put into the arm.

Deb


 


Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 9/17/2006 4:32 PM (GMT -7)   
Christa & Karen

Iam a redhead too and I have been told by numerous Drs that I have an incredible high tolorence for pain. Maybe that is why the port did not bother me. I had almost no pain with having it put in and taken out. Both times my DH and I went to dinner after leaving the hospitol. The only reason I had mine removed is because it showed so much. I have a thin upper chest area but have a D cup. I could not wear anything even remotely low cut without it showing. My Dr was the one who suggested having it put in because of the chance of permanent damage to your veins without one.

L&H

Bernadette
 
 


gumoore
Regular Member


Date Joined Jun 2006
Total Posts : 36
   Posted 9/18/2006 10:48 AM (GMT -7)   
I am so glad to read everyone's responses here - it's echoing my question and I was going to post and ask myself.

I'm having terrible needle anxiety thanks to the first chemo being from HELL. In a rare occurence (or so I'm told), the needle was in a vein right along a nerve and the pain was excruciating (by the way, also a redhead).

The second chemo was better for the needle insertion after they found a place to insert, that is. My veins all ran away and said "No way!". Fortunately, no pain this time, but the bruise was so purple that I called the nurse line in a panic two days later.

Now I'm approaching the third course of treatment and already my anxiety is rising. Port was suggested to me last time I was in, but my oncologist was hoping I'd make it to at least half way before the port was installed. The nurse made it sound like it would be on my upper arm, but now that I know that it can be on the chest (collarbone area).

Live Strong
Gayle
 
Life is short, wear your party pants!


nkpa62
New Member


Date Joined Aug 2003
Total Posts : 17
   Posted 9/18/2006 10:34 PM (GMT -7)   
When I had breast cancer in 1997, I had a port put in my breast.  Cancer was left side, port in right side. 
 
I had that port for 4-1/2 months and had nothing but problems and great pain with it.  Everytime they accessed it, it felt like they were stabbing me in the chest.  I had 7 chemo treatments directly in my right arm.  Those treatments went so much easier for me because they didn't have to access the port.
 
Now 9 years later, I have been told that I have lung cancer with mets to the liver and brain.  (not bc mets).  They put a port in my right arm, 8/28, and it caused an infection in my arm and was removed 9/6.  Also, before the port was taken out, they discovered that I have a blood clot in my right arm.  Today, 9/18 I was to start my 2nd round of chemo (3 days), but had to postpone it because of another infection in my right arm. 
 
I also have to mention that the drs have been told both 9 years ago, and again before they put the port in, that I am allergic to metal and plastic.  I allowed them to put in the port because I realize how caustic chemo chemicals are.
 
OK--I have a question for you.  Everything I have ever read said no needle sticks in my left arm--that is where they went in for the lymph nodes and severed the nerves.  Today they took blood from my left arm.  I realize that I only have my legs left, but I'm questioning whether it was wise to let them take blood from my arm.  What do you think?
Hugs, Viv :)
 
 
"It isn't pollution that's harming the environment.  It's the impurities in our air and water that are doing it."
 
Dan Quayle
 
Vice President?  under George Bush
 

 


Have Faith
Regular Member


Date Joined Jun 2006
Total Posts : 29
   Posted 9/20/2006 9:39 PM (GMT -7)   
Thanks for the response ladies...and Gayle...???...have they not mentioned that they have a cream you can put on to numb that area befer yer treatment...???...when mother "was" here we would make sure she had it on - then we would put a little band aide over it they said it would numb yer own finger puttin it onto her - anyhow she had it on right befer I took her to the appt...guessin an hour...??..mother said it seemed to work...
 
the reason for her port was her veins were pretty much shot...they were never able to draw blood and if they did it took them like 3 or 4 times...which is CRAZY..!!!...
 
You ladies are wonder...
 
ohh my update:  Monday I'm takin my dad to the Hospice House they are having a session to "deal" with things ... I believe I will start to volunteer there in Oct...
 
Ya know ladies...???...I think I got troubles...I can speak here fine but I Can't elsewhere to anyone...I talk to my dad and my kids, that's all...dont wanna go anyplace...feelin the weight come on...just plain out blah!...I have a feelin it's called "Depression" but I dont wanna take nothing unless I gotta...hate any kinda meds...
 
As Always
Have Faith
Christa
 

Have Faith
Regular Member


Date Joined Jun 2006
Total Posts : 29
   Posted 9/20/2006 9:48 PM (GMT -7)   
OHH VIV...!!!...
 
I'm so sorry...!!!...I have never heard about the needle stick on the left arm thing...mother had her mast on that side and port on the other...I do know they were never allowed to use that arm fer drawing blood cuz of the mast...(blood draw from home with Hospice)...they also kept tryin to take her BP on both arms...NO CAN DO...!!!...that was a mess with the port in one arm and the other with the mast....believe it or not they had to use her thight...hey it worked...
 
(Time to jump to the Lupis Forum - tryin to understand what's goin on with daddy he's had this fer years...just something  mother knew all about and not me...it's time fer me to learn)...
 
Good luck sweetie...I'll be prayin fer ya...
 
As Always
Have Faith
Christa
 

nkpa62
New Member


Date Joined Aug 2003
Total Posts : 17
   Posted 10/1/2006 7:42 PM (GMT -7)   

The reason I couldn't have bp or blood withdrawals, etc from my left arm is because the surgeons went into the lymph nodes and severed my nerves in my left arm.  I had 13 lymph nodes removed and only one was cancerous.  I asked my onc nurse about having a blood withdraw from my left arm, and she said no.  Last time I go to that hospital.  I allowed them to take my blood pressure from my left leg while in the hospital.  They couldn't use my right arm between the port and blood clot. 

I got the results of my bone scan this week.  I have spots on my bones at the same area as the cancer in my liver and lungs.  I am still told that the chemo now a days is so much better than it was a few years ago, and it is still curable.  Anyone have any info??

Also, this week, I was sent to the hospital for a blood withdrawal.  7 -- count them 7 vials!!  They are checking the coumadin levels among other things including lupus.  Most of the tests refer to anti-coagulants.  I'm hoping I don't have to learn about lupus!  But I will worry about that if I have to.  I think I'm getting tired of all this medical stuff!!  Fortunately, the chemo is going good.  Other than fatigue, I have only had one other side effect, and it was brief.

Hope all goes well with your father.

 

 
Hugs, Viv :)
 
 
"It isn't pollution that's harming the environment.  It's the impurities in our air and water that are doing it."
 
Dan Quayle
 
Vice President?  under George Bush
 

 

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