Hi MK...how is your daughter?

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Tavish
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   Posted 3/11/2007 2:02 PM (GMT -7)   
Just checking in, the board has been slow... and was thinking about you and your family. How did she tolerate the treatment and how are you all doing?

Let us know when you can, but hoping all is going really well.

L&H,
Lori


gma
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Date Joined Jul 2003
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   Posted 3/12/2007 7:13 AM (GMT -7)   
Hi Lori, thanks for asking. It is a month since she saw her oncologist last so she should be going back, probably Wednesday because that is a day she is off work. She says very little, even when asked. Her back is killing her and she winces or gets tears in her eyes and goes right on doing what she thinks she has to do, lifting 50 lb bags of horse feed, etc. I suggested she take some time off work and rest and unstress but with two mortgages and kids she feels she can not do that. Her older daughter, who has my pride and joy great grand daughter. is cleaning her house for her every week. Her 11 yr old daughter is a cutie pie but is in the sloppy pre-teens where she does nothing to help and her mother doesn't make her do anything. But being a butinsky will not help the situation, so I just wait and hope she will tell me something after this doctor visit. Will let you know. It's great to have you all thinking of her. Hugs MK


coopfesta
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   Posted 3/12/2007 12:41 PM (GMT -7)   
(((((((((MK)))))))))))
 
I'm so sorry you and she are going through this.  You sound like you're observing good boundaries, although I don't even want to begin to tell you the ways in which I wanted to straighten out that teen when I was reading what you were telling us!!!!!  Behavior Mod with a red butt to boot!  Doesn't it just make you want to be that woman who says 'when I am an old woman I shall wear purple'  She sounds so free.  But you know the boundaries your family needs to have.  I wish you luck and pray for all of you.
 
 
 
"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius
Don't knock on Death's Door.  Ring the bell and run.  He hates that.

Ellen


gma
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   Posted 3/12/2007 5:28 PM (GMT -7)   
OK so Carolyn went to the dr today and he was pleased with her progress and feels the hormone is working well. She had her bone strengthening IV and is to go back and have a bone scan in two months. I learned all this from my grand daughter who gets in her mother's face for answers. LOL I'm confused as to what I told you about a teenager, Ellen. Carolyn has always been very independent but she was no trouble growing up. She went to college and in her first year got a job and worked enough to go buy a used car all on her own, financing and all. She did well with her choice, too, she drove it for several years!! She just doesn't like people to fuss over her. If you are talking about the pre-teen, it is because she has never been made to do anything. She has always wanted to do things with me, in fact she worked right along with the girl who cleaned for me for awhile. I have suggested she remember what she did there and help her mom, but kids her age don't usually offer to do things. I guess I was too mean and made my kids help because none of them made their kids do anything. LOL Oh well, being out of sight I am not worrying about it. Hugs MK


coopfesta
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   Posted 3/13/2007 8:06 AM (GMT -7)   
guess I'm too mean.  I'm glad you're so good with the pre-teen.  Very diplomatic.  I tend to step on toes too much.  hope I didn't offend.  I just have a thing about supports that don't support enough.  guess it's an old reaction to my DH's "support" during my own cancer crisis.  My mom and mother-in-law were right there all the time for me and he was for all intents and purposes nowhere to be found.  Gets my goat I guess.
 
Glad things are going along and doc had good words for your daughter. 
"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius
Don't knock on Death's Door.  Ring the bell and run.  He hates that.

Ellen


barkyboys
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Date Joined Jul 2003
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   Posted 3/13/2007 7:04 PM (GMT -7)   
Dear MK...I'm glad to hear things are going well. I think I can kind of understand how your daughter feels about HER daughter. When I was going through my surgery and chemo, my girls were pre-teens. And I know that I didn't want them saddled with what had always been my responsibilities, like cleaning up, doing laundry, etc. I always got so mad at their dad when he would yell at them to "be more helpful to Mom," because I felt like my having cancer was robbing them of enough of their childhood, without having to take on what had been my duties to that point in their lives.

Of course, I could have been a tougher mom and made them do those things anyway, but because I hadn't, I didn't want them to have to start doing those things because I was "sick." Part of that, too, was that I didn't want them to see me as "sick." I just wanted to be the mom I had always been...with just a bit less hair and a few less body parts, maybe, but not "sick."

So maybe Carolyn is feeling the same way. Or maybe I'm just full of you-know-what! She's in a tough place right now, and sometimes just maintaining whatever degree of "normalcy" is do-able is the best thing for all.

Love and hugs...
BEV

gma
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Date Joined Jul 2003
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   Posted 3/14/2007 6:28 AM (GMT -7)   
Bev, thanks for your insight. I think you might be hitting the nail right on the head. And that goes for how she feels about "telling" us all about it, too. I talked to her last night and she did get copies of her reports this time. She said the bone scan report shows "activity" but insists that is does not differentiate between osteo arthritis, osteoporosis or bone cancer. Does anyone know if that is usually what the report says? The onc couldn't feel the lymph nodes, but she says she can still feel them, but they have grown smaller. Her friend at work bought her a Chi machine and some kind of hot therapy deal. If you google you can find it easily. At first I thought it might be snake oil stuff, but I looked at it and don't see any problem with using it.

Ellen, don't worry about being mean, I really doubt you are. It is my generation and the one before who were mean and made kids help a lot more. I talked to Miss Natalie and told her I was coming to check her room to be sure and keep it clean for me and then I would reward her in some way. I'm hoping she will keep it clean and get in the habit until she matures enough to care. LOL. Right now she is just a little girl. When I was her age I was so much more mature. I could cook and clean just like an adult, so maybe it is good to give children a little more time for childhood.

Thanks again for all your help and insight, MK


barkyboys
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Date Joined Jul 2003
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   Posted 3/15/2007 7:40 PM (GMT -7)   
Mk, my onc is one of those who likes to do bone scans, so I have had several. The way the nuclear radiologist explained it to me: a bone scan can spot large chunks of cancer, especially in the large bones. However, at the joints and in small bones, like those in the spine, it is hard to differentiate arthritis from cancer. They usually do an x-ray, MRI, or CT-scan to look at areas of increased activity that they cannot rule out cancer in. As a matter of fact, all the bone scan reports I have had have said they could not rule out the possibility of bone mets, because I have arthitis that shows up as areas of increased activity.

Even then, the results are sometimes screwy. I just had my bone scan last week. I've been having some pain in my right shoulder. Nothing showed up in my right shoulder on the bone scan, but my left radius had a large area of increased uptake. They kept asking if I was sure I hadn't broken my arm. Went to get x-rays today of the r. shoulder and l. radius. The radius was fine. The shoulder, however, showed bone erosion of the clavicle. So tomorrow I have to go have an MRI of my shoulder. Of course, had I not had cancer, they'd probably be telling me to take two aspirin and call back in six months if it didn't stop bothering me!

I don't have osteoporosis, thank goodness for small favors (I had my dexa last week, too), so I don't know how that shows up, but the key is, any bone damage that your body is working to "fix," I guess, would show up on the scan. I would guess osteoporosis would fit that bill, but I don't know for sure.

Hope that helps a bit.

Love and hugs...
BEV

Hope that helps.

Tavish
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Date Joined Jul 2003
Total Posts : 2272
   Posted 3/15/2007 8:15 PM (GMT -7)   
MK, my bone scan from 2004 indicated that there was "solitary focus of ratiotracer uptatke at the sternomanubiral is not an uncommon identical finding. Ifthe clinical suspcion for metastatic disease persists, sternal CT for further detail is recommended."

In the findings, it said "there is focal radiotracer update at the level of the sternomanubrial joint which is not uncommon...and may be related to degenerative joint disease or ossification center."

So like Bev's report...mine just states if and where there is uptake of the tracer, or increased activity. The CT gave a different view and confirmed no metastatic activity but instead an arthritic thing going on.

So...the bone scan won't say much, but other tests will confirm what is what.

You sound like you are hanging in there, which is a good thing!

Bev, what's this about your shoulder??? And yes, my sternomanubrial joint pain from 3 years ago was determined to be osteoarthritis, probably radiation damage. It was confirmed from the CT but not the bone scan.

Lori


gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted 3/16/2007 5:20 PM (GMT -7)   
OK thanks to both of you for explaining more about bone scans. I was afraid Carolyn was just trying to keep all of us from worrying. She has not had any CT scans or MRIs yet. And she did say the onc said he thought her pain was from muscle rather than bone. He gave her the Rx for muscle relaxant her PC had given her before so she didn't have to see both drs. He also gave her some pain Rx. She is doing good. I am fine.

My other daughter sees a breast specialist for her yearly mammograms and because of our history she really gives her special treatment. She explained to Chris this week that bone mets are treated like diabetes anymore, just trying to keep it under control, there is no cure and it will always be there. She thinks we should do something about the genetic test and that should be Carolyn and she doesn't want to do it. This doctor told Chris I would be better than nothing. LOL We laughed about that.

In another post I have to tell you about my nephew's accident this week. We worry and worry about breast cancer, yet sometimes accidents can happen quickly and be just as possibly devastating.

Hugs MK


Brnadebt
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Date Joined Jul 2005
Total Posts : 688
   Posted 3/18/2007 11:25 AM (GMT -7)   
MK

I had the genetic testing done because I have 5 sisters a daughter and numerous neices. I came back negative which is great but if I were to be positive it would only have cost the rest of them $300 to be tested. The initial test ran $3500 which is nuts but luckily my insurance covered it. If your insurance will cover it I would say go for it, at least that way you have more information. My Dr had to write a letter to the insurance company to convince them that is was a nessesary test, I have alot of cancer in my family so they approved it.

So sorry to hear about your nephews accident......what a freaky thing to have happen. Hopefully he will be up and around soon.

L&H
Bernadette
 
 

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