Mary Kay, how are things with Carolyn?

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undefeated
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Date Joined Jul 2003
Total Posts : 200
   Posted 4/8/2007 5:50 PM (GMT -7)   
I haven't seen anything on the board recently about her.  She's in my thoughts and prayers and so are you.  Please tell her I asked about her.
 
L&H, Glenda

cupycake2
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Date Joined Jul 2003
Total Posts : 955
   Posted 4/8/2007 7:59 PM (GMT -7)   
MK,

I have been thinking about Caroline too. Hope she is doing good these days.

Sending hugs for both you and she.

(-:
Debbie
"What sweetness is left in life if you take away friendship? It is like robbing the world of the sun"
Cicero


gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted 4/9/2007 7:50 AM (GMT -7)   
Everyone was here yesterday for Easter dinner. As usual she was right in there doing everything from carrying heavy chairs to running the table. She says she feels good. She also mentioned taking Femara. I thought she told me Letrozol but I think the Dr gave her samples of that, and maybe when she had to fill a Rx he changed it? She goes for her third appointment this morning. She will get another IV of the bone strengthening drug and have a blood test and a bone scan. As happens so many times when she is here I was doing my BP and sugar test. She took the cuff and did her BP and as usual it was VERY high. 139/105. I raised my eyebrows and said again why hasn't a doctor given you BP medicine? She just shook it off and said oh well, what's the difference? Grrrr. She is too tough.
 
Anyhow, as I mentioned before a woman she works with bought a Chi machine and a FIR oven. You can find them by Googling 'All about Chi'. They are supposed to increase mebtabolism, help circulation, help lymphadema, and so on. She says her waist has gone down about 8 inches.  She had the tram and the midriff/waist area was quite loose and fatty. I bought one to see if it would help me with exercise and getting rid of some of the fluid in my abdomen. Mine just came so I can't report any results yet. Will let you know.

Thanks for asking, we are doing fine. As I tell my grand daughter who worries about her mother, she could have an accident tomorrow and there is nothing gained by worry, she will live as long as the good Lord determines, we just need to love her and let her know we are here for her.

Hugs, MK

PS And how are you Miss Glenda?????? Hope all is well in your world.

PPS  I read this post over and saw so many mistakes I had to edit and fix it.



Post Edited (gma) : 4/9/2007 12:45:10 PM (GMT-6)


kmonke
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Date Joined Jul 2003
Total Posts : 352
   Posted 4/9/2007 9:15 AM (GMT -7)   

MK,

Been thinking of you a lot lately, and now I know why.  I am trying to "catch up", so just learned about Caroline's recurrence.  Have you both in my prayers.

Hang in there, being Mom to someone going through this is worse than going through it yourself - so my mom tells me all the time.

Love and God Bless,

Kitty


undefeated
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Date Joined Jul 2003
Total Posts : 200
   Posted 4/10/2007 7:21 AM (GMT -7)   
Glad to hear that Carolyn is going ahead with her life and doing well.  My old, tired refrain is that attitude is so very important.  Frankly, her blood pressure worries me more, especially that bottom number.  She's not taking any bp meds?  That astounds me.  No matter how she gets upset with you, I'd beat that drum loudly.
 
Saw an ad from some lawyer group this a.m. on T.V. that was talking about "if you have had surgery and had this MESH...."  Anyway, thought of you.  Have you talked to any more attorneys about your situation.  I wish I could have written down the name of the mesh, but my recognition of what they were talking about came too late.  I'll be ready the next time it comes on.
 
As far as I know, lol, I'm doing great.  My husband has had some serious problems, but hope that is being taken care of by the meds they've given him.  Hey, it's always something.  Getting old can be a real b...., but the alternative is worse!
 
Big, big hug to you, Glenda

barkyboys
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Date Joined Jul 2003
Total Posts : 1564
   Posted 4/10/2007 2:04 PM (GMT -7)   
It's "Kugel" mesh, used for hernia repairs between 2002 and 2005 (I had already checked...Randy has had the same hernia repaired 6 times now, this last time through two layers of mesh).  I'm sure it's the same type of mesh used when they reinforce a TRAM, but I'm sure MK's mesh, as did Randy's, pre-dated the recall.
 
Good to hear your "voice," Glenda!  Hope all is well.  I agree with you...attitude is so important...as is BP.
 
Love and hugs...
BEV

gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted 4/10/2007 2:33 PM (GMT -7)   
Yes, my surgery was done 1997. My problem was not the mesh nor was that the name of the mesh used. Mine was definitely the sutures as two sutures were the places the infection first showed up. The surgeon cleaned the suture areas up in Sept. 99 and I was on IV antibiotics from August 99 until March 2000. A suture manufacturer put out contaminated sutures because their autoclave was not working, something like 6.1 million suture sets. A recall was done and only something like 2.3 million was returned. It was on 20/20 in early Sept 99 and on the news but with very little publicity, many people died as a result of the infection. The same sutures are used in heart surgery, etc. I was part of a class action suit and got a rather small settlement considering what it did to my life and mobility. Walking gets rougher each year, I now have a scooter and a walker with wheels and a seat, so I could get around San Antonio better now. LOL. I don't go very far from home anymore. I have seats all over the house to use while I work, two in the kitchen, one in the laundry, one in a storage room. It is not fun but it beats the alternative here, too.

And yes, Glenda, I keep telling Carolyn that she needs to address her BP with the dr. I guess when she sees the dr and it is high they just attribute it to nerves of seeing the dr. I keep telling her I was on BP medicine when I was her age and that she needs to be on it, too. But she is one of those people who believes the less medicine you take the better. My husband is like that. He is to take Nexxium every day and takes it every other day. Grrrrr. Then when he has trouble eating I ask if this is the day you took your Nexxium or not............... I see my dr this Thursday for my annual physical. My doc also sees my grand daughter now who has discussed her mother with her, so I will talk to her about Carolyn and her BP. She is in good hands with the oncologist but evidently BP is not something he worries about? Wish I could get Carolyn to see my doctor, too.

Thanks for your concerns. Hope both your husbands are getting along better. Mine was quite anemic and Celiac Disease was diagnosed. He has been following a gluten free diet and taking iron tablets and a recent blood test was perfectly normal. He is very good about not eating wheat products. He doesn't like taking meds but he really follows the diet without cheating. Bev, I bet you wish you could get your DH to do that, too.

Hugs to all, MK

BTW I told Carolyn that you all seem to ask about her about the time for each dr visit. She was pleased to know that. She is on a horse board and talks there about her cancer.


gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted 4/10/2007 2:45 PM (GMT -7)   
What would I do without Google? If my mind does not work, I google........... The mesh I had was Gore-Tex. It was fine during the initial surgery where the sutures were infected, but after months of trying to save my abdominal wall, everything was infected and all was removed. I have only the outside skin, fat which I have now overproduced, and then omentum or covering of the intestines, from hip to hip, breast to thighs. I am wearing three binders now which are more comfortable than none or one or two, but they still do not lift the nernia. I called an elastic manufacturer to see if I could buy 3" webbing like is used in binders to design my own. The guy told me they could not sell to the public but he had a roll of black if I could use that he would send it to me. He did and it came last week. 50 yds of strong 3" elastic. Now all I need is Jo-Ann's help and expertise. She seems to be having a rough time right now and I think she needs to come for another visit. LOL. More hugs.


barkyboys
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Date Joined Jul 2003
Total Posts : 1564
   Posted 4/11/2007 4:58 PM (GMT -7)   
MK...I can't believe we've been looking at so much of the same stuff! With this last hernia, I was looking to make Randy a binder as well. We had cobbled two of mine together to fit around him (is it any wonder they didn't want to cut that belly open???), and I was looking to make him one. Anyway, I found a site that can make kintted elastic up to 22 inches in width! I was going to contact them about ordering some, and then we had the big blockage that just flat out required surgery.

I didn't mark the site, as I thought I had, but I remember the name of the place was "Elastic Cord and Webbing Company." If you're getting so much of the other, you might not need it, but just for future reference...although 50 yards ought to last you a few years! LOL

Love and hugs...
BEV

gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted 4/12/2007 12:04 AM (GMT -7)   
Bev,

I wanted the 3" stuff because I want to make one of six rows putting two together all the way 3 times and the other seams would go from back to the sides. With 3 "tails" I figure I can get more leverage. In fact, Annie and I talked about binders at our first Cincy meeting. Back in the old days the binders were flannel and had many tails, 7 or so, each one being tightened and secured with a safety pin.

If you still need a binder to fit your hubby, I know just the one. I bought one recently, it is 15", five 3" webs and made for very large people. I bought it figuring it would wrap around at least twice and it almost does. The problem is I can't manage to get it tight enough without DH to help, It is a DARE brand and I bought it at ASAP Medical supply on line. Amamzon has some like it but they are only 4 tiers and not quite as long. I also buy Bird and Cronin 15" binders from an orthopedic place online. 15" are hard to find but I need them long enough to go from breast to thigh. Does he have a problem walking because of the downpull, too? Hugs MK


Jo-Ann
Veteran Member


Date Joined Jul 2003
Total Posts : 829
   Posted 4/12/2007 11:21 PM (GMT -7)   
All right, MK, I'll look into coming out there for a few days. I'll bring the appropriate sewing supplies including my machine. Let's see if we can design the greatest binder for you and patent it.

Love, Jo-Ann
A good friend will bail you out of jail...
but a true friend will be sitting
next to you saying,
"Dâmn... that was fun!".

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