Hi Ruby! I am so glad that you found us and that you have posted. First, I want to assure you that your are NOT alone in all of the emotions that you have been experiencing. Each of us that has been told they have cancer has experienced the very same thing.
I honestly believe that you need to get a 2nd opinion. I would wait until all of the tests are completed. Then get copies of the scans and written reports and take those with you. It is also, very, very important that you take one or two people that you trust and feel comfortable w/ also. This will allow you to ask questions and give you another set or two of ears. You might also want to take a small tape recorder w/ you. As you know, you will be given lots of info and trust me, you won't remember half of what you are told.
The first surgeon I went to I knew immediately that he would NEVER touch me. So I made an appt for a 2nd opinion and loved the surgeon. I already knew who I wanted for my oncologist. My surgeon, family dr and oncologist all coordinate my care w/ each other. Each has all of the reports from the other one. No surprises. Remember, YOU are the physicians EMPLOYER...HE WORKS FOR YOU!
I know how difficult the waiting is. And yes, the nights are the worst time. Too much quiet and thinking. Try and stay busy if possible. Don't watch movies or shows that are depressing. Remember that laughter is a great healing technique.
You will find that some of your "friends" don't know what to do or say. This is very normal. But don't be afraid to let them know how your are feeling and if there is something that they can do for you. I might suggest that you call one of your local hospitals and ask if there is a social worker or counselor that deals w/ bc or call your local ACS and ask about support groups. Just having someone to talk to that has been thru this helps.
Chemo is NOT fun but it isn't the horrible thing that it use to be. There are meds for almost every side effect. I just keep thinking that it is ridding my body of all of those darn cancer cells.
Please come here and vent, cry, yell, scream..whatever you need. We are here for you.
Post Edited (barkyboys) : 4/15/2007 12:12:13 PM (GMT-6)
First of all I would like to welcome you to our exclusive club (the one that no one wants to be a member of) Looking at your post it makes me remember all of the emotions that I went through when first diagnosed. I can honestly say the only thing that I have not felt was "why me". I have always felt that you are given things in life to make you grow and become stronger, this had made a big change in my life physically and mentally.
It sounds as though you have had good insticts when it comes to looking up as much info as you can. I was the same way and believe me it will help you. There will be times when all of the information makes it easier to deal with all that you will go through. I did go onto your personal site and read your thoughts and I can only tell you what I have decided to do with my own body. I was diagnosed in July of 05 and had a lumpectomy, my tumor was larger than they had anticipated so when the lumpectomy was done I had a large amount of my breast gone. The first few months after were not bad but after all of the swelling was gone there was a definate difference. I just had a mastectomy done last month and Im having my reconstruction done on Tuesday. I have not regretted my decisions at all, the only thing I would have done different is to have had the mastectomy right off the bat. I would never want to tell anyone what to do because it was such a personal desicion and I took alot of time deciding what to do.
The other ladies have given you great advice about your Dr appointments make sure you take someone with you and get a copy of all of your reports. I have been very happy to be able to look back on all of my test results.
I would like you to know that you will get a wealth of knowledge from the ladies here and an awful lot of love too, I dont think I would have dealt so well with this if I did not have my "breast friends". Feel free to write about anything that you want including a little pity party once in awhile is okay.
Hugs to you
Post Edited (RubyShooZ) : 4/22/2007 9:23:45 PM (GMT-6)
My name is Dan and I live in the Chicago area. In March I had a high PSA and then a biopsy. All 12 samples were normal. Waiting for the findings is very hard, as you know. In April, Deb, my 47 year old wife, was diagnosed with non invasive lobular cancer in her left breast. The MRI, bone scan and CT scan indicated no cancer anywhere else. She has a terrific surgeon and will have her first visit to her oncologist tomorrow. I created a blog for her too. http://debharrell.blogspot.com. I hope you find it interesting.