RubyShooz! How went the PET scan?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 4/16/2007 4:05 PM (GMT -7)   
That is one I have never had done.  Hope good news is winging its way to you!  Hope you didn't have too much snow to plow through.
 
Hugs...
BEV
PS...For a few more days, we're the same age!  AD, (after diagnosis), you appreciate those birthdays a LOT more!  Suddenly, getting older becomes a very good thing.  Small consolation, I know, but we take the good where we can get it.

Post Edited (barkyboys) : 4/16/2007 5:10:13 PM (GMT-6)


RubyShooZ
Regular Member


Date Joined Apr 2007
Total Posts : 45
   Posted 4/17/2007 7:27 AM (GMT -7)   
Hi.
 
Well, the PET Scan itself wasn't too bad but the not smoking and no caffiene for 24 hours before that was pretty bad.  I was going through caffiene withdrawl with a VERY bad headache both before and after the scan. 
 
The scan was a bit scary, but didn't hurt at all.  This test is pretty much state of the art technology and I have very high hopes that it will show the extent of the cancer and where it is, what stage etc.  I have no idea why they would start by saying I should have a mastectomy first without even ordering this test first - it should be a standard test! 
 
The roads were bad on the way, but we're used to it living in western NY and have lots of experience with driving in the worst conditions.  We just left very early and gave ourselves lots of time to get there.
 
I don't know about the results or how long it will take to get them.  My next appointment is with my primary care doctor on May 3, but I think I might try and either reschedule it or see about seeing the oncologist.  I'm still wondering how to find an oncologist I like better though.  Not sure where to turn.
 
 
~ Peace, love and understanding ~
 

coopfesta
Veteran Member


Date Joined Sep 2003
Total Posts : 1373
   Posted 4/17/2007 10:06 AM (GMT -7)   
Hi Ruby:
 
I started to respond to your other string but I got called away and today I see this one so I'll take advantage of the early placement of my reply and introduce myself.  I'm Ellen and I live in The Catskills.  I have read a bit of your site and your progress so far.  The weather here has been rough, but I'm glad you persevered.  I have a young child and that really kept me going to chemo and rads and stuff. 
 
The first thought when I was told my diagnosis was something you may relate to.  I thought "Oh, Great, now I'll have to go on those stupid walks and fight for 'the cure' and all that stuff."  I have always been a firm believer in why walk when you can drive (I'm a mustang lover myself).  Well, after the ladies on this board were so supportive, I actually went to a gathering of our board in Louisville a few years ago when I was going through treatment and actually did go on a walk.  Never thought in a million years.  I'm now almost 4 years out of treatment!
 
I never had a pet scan, but I'm glad you did.  It's really a great test from what I've read.  I used Dr. Love's breast book as a resource.  I also have some advice.  watch the spending.  I felt like I was living the last days of my life the week after diagnosis and went a little nuts in the bookstores (and for concert tickets, but that's a whole other story!)  The state of mind with cancer is an adjusting period and in the middle of it you can make some pretty faulty judgment calls.  Just use your supports.  I had the ladies on the board, my husband wasn't able to be there much for me, (surprisingly I kept him around, too.)  Living in a rural area, I was used to entertaining myself with my crafts and hobbies, but when I got diagnosed I suddenly was in need and there wasn't anybody around.  This board was really able to fill that gap for me. 
 
Good luck.  (My oncologist is in Middletown.  don't think that will do you much good, but I can ask about others if you want.  Is cooperstown near you?)  I'll keep you in my thoughts and prayers.  Keep posting!!!!
"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius
Don't knock on Death's Door.  Ring the bell and run.  He hates that.

Ellen


RubyShooZ
Regular Member


Date Joined Apr 2007
Total Posts : 45
   Posted 4/17/2007 10:43 AM (GMT -7)   
Cooperstown isn't terribly far and not terribly close either, but Oneonta used to be my very most favorite place in the world to go and I spent much of my teen years driving back and forth between Rochester and Oneonta.  (I remember calling State University College of Oneonta S.U.C.O. )
 
Books:  
 
It's been suggested that I read Bernie Siegal books so I think I'm going to spend a bit of money on those.  Money?  I don't have any to spend so that's not a huge problem...but the long distance calls are going to add up.  Anywhere I call is long distance.  eyes
 
For now, I'm going to try and get some much needed sleep.  The PET scan was a breeze but left me exhausted- but just about any outing has lately.
 
Thanks for being here - to all of you.
~ Peace, love and understanding ~
 

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 4/17/2007 11:29 AM (GMT -7)   
Try eBay for buying books. Sometimes you can really get great buys. Several phone companies have a deal where you pay a monthly amount regardless of long distance calls and you can make all you want. I have had this with Verizon and not AT&T. It is great because you can pick up the phone anytime you want and call and talk as long as you want. It usually runs $50 a month but then taxes add up to make it more like $65. But if you have any kind of long distance charges over $30 per month usually it would pay. Local service plus your long distance usually comes to more than $65 unless you just don't make a lot of calls. LOL Hugs MK


coopfesta
Veteran Member


Date Joined Sep 2003
Total Posts : 1373
   Posted 4/18/2007 8:52 AM (GMT -7)   
Yes, any ebay stuff I refer straight to MK.  She's the leading ebay efficionato here, LOL.
 
Definately look into the different long distance deals.  Maybe near rochester they have internet phone, maybe not.  There should be more than one choice and an option for unlimited long distance.  Cooperstown has better medical care than Oneonta, so does syracuse, but Rochester is a great medical school, too  U of R is almost ivy league and the hospital is first rate.  I'd go there if I couldn't get to NYC.  A teaching hospital is great!  Lots of consultation happens.  You can have a team from a major center decide on the regimen and then get the actual chemo itself and radiation locally!  Only think I'd do is try to go to a major center for an onc, mammos and scans and follow-up.  I went with the onc my PCP recommended.  HE was a little more local (Orange County, NY) but he treated his father and was trained at Mt. Sinai Med School (I always seem to get them to care for me one way or another!)  The Onc is really the quarterback who looks at all the latest stuff and decides the next course of action.  You can always ask others to consult if you're not sure, too.  Me?  I traveled to New York City.  Looked up breast surgeons in my plan and the only breast cancer surgeon on the whole plan was in The City, thankfully.  I went with a BREAST surgeon instead of a general surgeon.  Be sure to look them up in the medical board site for the state too.  You can get info on docs and if they were reported for malpractice.  Lots of times, docs who need to lay low will go to rural areas, sadly.  The competition is almost nonexistent.  Be careful of that.  The hospitals often have to resort to The National Health Service Corps for help because of a high-need area.  (they give loan forgiveness), so you may find a good one, but they often leave after their commitment is up.  I know that's a lot, but I might as well share my experience.  Good luck.  keep posting
"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius
Don't knock on Death's Door.  Ring the bell and run.  He hates that.

Ellen


RubyShooZ
Regular Member


Date Joined Apr 2007
Total Posts : 45
   Posted 4/19/2007 8:25 AM (GMT -7)   
Got the PET/CT results and was rather dumbfounded to hear that the invasive lobular carcinoma seems to be "localized" in the breast area from what my PCP's nurse said on the phone. I had been prepared for the worst case scenerio, but now I feel like I've been turned upside down again.

I am not sure what happens next. I guess I will start thinking about seeking a second opinion now to discuss options. I am trying to just sit with this knowledge today and be happy for this moment. I know the path I need to follow is still a bit uncertain, but for today, this is good news!


~ Peace, love and understanding ~
 

barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 4/20/2007 3:39 PM (GMT -7)   
Good news...I would call that GREAT news! I hope things continue to go well for you and you find an oncologist you are comfortable with. That is so important, to feel that your doctor is a good fit for you. I know I can rely on my oncologist for everything. I recently had to go see an orthopaedic shoulder specialist. My oncologist had ordered the x-rays and MRI for me. The specialist said, "These are exactly the views I would have ordered." He seemed very surprised, but I wasn't. I DID get good news, which I won't clutter up this thread with.

Happy dancin' in Ohio for you!

BEV
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 7:27 PM (GMT -7)
There are a total of 2,731,917 posts in 300,977 threads.
View Active Threads


Who's Online
This forum has 151133 registered members. Please welcome our newest member, lizabehrher.
288 Guest(s), 13 Registered Member(s) are currently online.  Details
bluelyme, Helgramite, jennydancingfish, madisongrrl, Ljm2014, White Bird, poohcheez, Mustard Seed, kcsmith72, Randy Eichner, multifacetedme, julymorning, LanieG


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer