Does Inflammatory Breast Cancer Hurt?

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PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 6/25/2007 11:12 PM (GMT -7)   
Hi, I'm usually over in the lupus form, but something's going on with my left breast. I have a red swollen mark twice the size of a silver dollar, and it's sore to the touch, but no lumps. My PCP said it's a tick bite and started me on a regimen a doxycycline.

I had my annual mammogram today and it was clean. However the radiologist asked to see me and suggested the possibility of inflammatory breast cancer and asked me to watch it and come back in in ten days for an ultrasound. I presume the wait is to see if the antibiotic does it's job.

But my poor boobie is so sore, inside and out. I'm here to look for someone who'll tell me that IBC doesn't hurt.

Thanks,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin


postal2
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Date Joined Jul 2003
Total Posts : 1106
   Posted 6/26/2007 11:24 AM (GMT -7)   
Hi Pat, I can't answer your question but there are some on here who can. I am sure they will see your post soon and respond. I just want to say welcome and I hope the antibiotic does the trick! Is the red area a "bulls-eye" looking area? Lighter in the center? I have a friend that said that is what lymes disease looks like, she has it.
Is the skin at all like the peel on an orange? Kind of bumpy like an orange? I understand that is what inflammatory bc looks like. I don't remember if it hurts though. Is it warm to touch?
Hang in there and let us know how it turns out. If you need us (and I hope you don't =) we are here to help.
Hugs, Gail
  It's only when we truly know and understand that we have a limited time on earth -- and that we have no way of knowing when our time is up, we will then begin to live each day to the fullest, as if it was the only one we had.
 
Elisabeth Kubler Ross


PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 6/26/2007 4:13 PM (GMT -7)   
Gail, you are so sweet to respond to me. As the day has progressed, so has the pain, and now I have what look like tiny blisters on two sides of my breast. I think I have shingles. I'm not a doctor, and two doctors have looked at my breast, but the tiny bumps didn't look like this yesterday or last friday. Shingles are horrible, but they are a far better option than IBS! Cross your fingers.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin


postal2
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Date Joined Jul 2003
Total Posts : 1106
   Posted 6/27/2007 12:18 AM (GMT -7)   
I had shingles on my head about 6 mo ago, NOT fun! But yes, FAR better than IBS! Weird when you think you are hoping for shingles, lol! Please keep us posted.
Gail
  It's only when we truly know and understand that we have a limited time on earth -- and that we have no way of knowing when our time is up, we will then begin to live each day to the fullest, as if it was the only one we had.
 
Elisabeth Kubler Ross


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 6/27/2007 2:14 AM (GMT -7)   
Sometimes shingles are good????? Hope all is much better by now. Hugs MK


gumoore
Regular Member


Date Joined Jun 2006
Total Posts : 36
   Posted 6/27/2007 4:34 PM (GMT -7)   
Yes, I did have pain with my IBC - started in the lymph nodes and was my first sympton. My GP sent me for many ultrasounds, but it was the change in my breast (redness, swelling and inverting nipple) as well as pain - some times the pain was very sharp/stabbing - that put me on a hurry up diagnosis track.

It was unfortunately, but it was IBC. I'm now 11 months since diagnosis and doing well.

All I can say is, don't panic/worry until you know for sure. My GP told me about so many different things it could be, IBC was just one of them.
Gayle
 
Live Strong


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 7/5/2007 9:02 PM (GMT -7)   
Gayle, Gail, and MK, I'm one of the lucky ones. It turned out to be shingles. Who'd of thought someone would be happy to get shingles? Well, it surely was better than IBC, and better than Lymes Disease too. I hope those of you with IBS are getting good treatment, and I'll sure be thinking of you. Thanks for your help with my self-diagnosis. And I thought only the folks on the lupus forum are great, and then here are you guys, just as wonderful. Come on over if you get any aches or pains. tongue

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept 1,000mg, neurontin 1,200 mg, prednisone 5mg, plaquenil 400mg, synthroid .15mg, triamterene 37.5mg, tramadol prn, lunesta 6 mg, actonel, tri-est (compounded estrogen) 7.5 mg 2xmultivitamin, calcium w vit D, fish oil, aspirin


replystreet
Regular Member


Date Joined Jun 2007
Total Posts : 21
   Posted 7/7/2007 7:01 PM (GMT -7)   
whenever your breast expand like that your breast is going to hurt. just like when you are nursing

Post Edited By Moderator (Admin) : 7/8/2007 7:27:46 PM (GMT-6)


nineisfine
New Member


Date Joined Oct 2007
Total Posts : 1
   Posted 10/2/2007 10:07 AM (GMT -7)   
Pat,

If you are still checking this thread, please check out the web site: ibcresearch.org
So many women are misdiagnosed!! Always seek a second opinion. Good luck

joyfullness

next step
New Member


Date Joined Dec 2007
Total Posts : 3
   Posted 1/1/2008 6:13 AM (GMT -7)   
Dear Ladies my first time on any forum. Was diagnosised with IBC 4 years ago Nov6,'07. Am 47now and doing great. Was told only had 12-18months then. Have proved everyone wrong. Have friend is 12 1/2 years out. I used new chemo called Epurubacin. Don't let anyone talk you into giving up. Get frustrated that everytime I cough more tests. Just had $100,000 worth of tests this summer. Wasn't cancer but told liver failure. Case sent to Harvard drs back east and waiting for diagnosis/treatment plan. I'm not beat yet and plan on enjoying my 9 month old grandson not only now but forever. Live in super small town but 5 cases of IBC here. I'm only one alive and only one that had new chemo. Do your research. MY oncologist taught my husband and I how to research. If your dr doesn't want to discuss what you know GET A NEW DR! research everything you're told.
next step

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 1/2/2008 6:46 AM (GMT -7)   
Hi next step and welcome. You sound great! That is encouraging to newbies who may have questions about IBC. We have a member here who had IBC and is doing fine, too. She doesn't post real often but I always hope when I see IBC that she will see the post and respond. Keep doing well! Hugs MK


dpoulsen
New Member


Date Joined Jan 2008
Total Posts : 1
   Posted 1/23/2008 9:10 AM (GMT -7)   
I hope and pray that you do not have IBC. My 33 year old daughter has it and hers is very painful. It has spread to her bones and even some spots in her liver. They have her on 600mg's of morphine a day, plus break thru morphine every 4 hours. So once again I pray that you do not have IBC and if you do that they have caught it in time, and it has not spread.
Thinking of you
dpoulsen
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