what a choice!

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coopfesta
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Date Joined Sep 2003
Total Posts : 1373
   Posted 7/24/2007 12:09 PM (GMT -7)   
Well, went to the onc yesterday, and he is not comfortable with my using an estrogen supposatory for the pelvic pain.  He was very happy to know I was removing my ovaries, back a few years ago, but the aftermath of that, the resulting pelvic pain, can only be treated by localized estrogen.  He said that the docs disagree over the risk to a recurrance, but that he leans towards don't do it. 
 
Fine choice!  If I treat the painful sex and painful pain bouts of pelvic pain, I am "maybe, possibly but probably not increasing my recurrance risk" 
 
Tell me what does one do with that?
"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius
Don't knock on Death's Door.  Ring the bell and run.  He hates that.

Ellen


barkyboys
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Date Joined Jul 2003
Total Posts : 1564
   Posted 7/24/2007 2:38 PM (GMT -7)   
What a choice!  You are right.  Is this a short-term thing, the suppositories, or is it a forever kind of thing?  That would influence my decision.  And then there's the whole quality question.  Is the pain so bad that, hey, you may as well be dying of cancer, because THIS is not living?  These are the questions I would ask myself.  We have had a couple of women, I think, who chose to take hormones after breast cancer, and they are doing okay.  Suzanne Sommers swears by estrogen, despite having had brca, and insists it is a quality of life AND health issue for her. 
 
I took hormones for a very brief period (I think it was only 10 days or so...) so they could tell if I was having actual periods or some other reason for bleeding (turned out it was some other reason).  I have to admit, I wasn't very comfortable with it, and the gynocologist insisted it would do me no harm.  I think she could have skipped to some other method, but I think it was just the easiest route.  I didn't come to that conclusion til later.
 
Only you can decide what's best for you, Ellen, but of course, you already know that.
 
Happy decision making.
 
Love and hugs,
BEV
Don't worry about the world coming to an end today. It's already tomorrow in Australia.  -Charles Schulz


gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted 7/25/2007 6:41 AM (GMT -7)   
You may remember several years back I talked about my friend, Connie from here in TX. She had a bone marrow transplant after 23 of 25 nodes were malignant. After that she had terrible swings from hot flashes, in TX summer she wore a heavy sweater coat and then she would swing the other way and have the AC so low most people would freeze. She couldn't stand it and finally talked her doctor into giving her some oral estrogen. That straightened out her temperature swings, but then she had a very aggressive recurrence. I think she lived six months at most. So as Bev says it is your decision. Connie's was to regulate her body and who knows if the recurrence would have happened regardless. It is a tough decision. Maybe you could get a few more opinions from your doctors? You see several and a polled opinion might be helpful. My husband has a spot on his back that really looks like the melanoma pictures on the computer. He went to our GP and she said it was not cancer, but knowing from this board that doctors are sometimes wrong, I still worried. Yesterday he went to see another doctor for his anemia which is now gone. This dr is a hemotologist in an oncology center, so I asked him to look at it and he agreed with the GP, so now I am satisfied. Take care. Hugs MK


coopfesta
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Date Joined Sep 2003
Total Posts : 1373
   Posted 7/26/2007 8:20 PM (GMT -7)   
Supposedly, the suppositories and the gell don't get absorbed into the boodstream like oral hormones do.  That was the reason the ob-gyn thought and many other md's think it's ok and won't contribute to a recurrance.  My onc, as I said is uncomfortable with my using the supposotories.  I will see if it is meant to be a temporary treatment or a permanent one--  that's a good thing to thing to consider if I am considering using it.  My onc's calling the ob-gyn, but he's already pretty sure what the outcome's going to be, that they disagree, as do many. 
 
Also, incidentally, The ob-gyn irrigated my bladder durring that visit (surprise!)  I have to inquire further what he irrigated my bladder with.  The bill said potassium, but I don't remember if it said something else also.  As usual, some if it was greek to me.  The pain's been gone since he did it.  If he irrigated it with estrogen, I'll have a problem with that.  I should have been told what he was doing beforehand if he did that (probably should have been told what he was irrigating it with anyway beforehand). 
 
By the way, as I've said before, if anyone tries that again (irrigating anything! let alone my bladder), they're putting me out first.  He needed me to say what hurt so he could assess where the problem was, though, so I'm not sure I'm angry at him.  It was very traumatizing though.  I had to drive home after that.  How Icky with a capital "I"



"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius
Don't knock on Death's Door.  Ring the bell and run.  He hates that.

Ellen


barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 7/27/2007 12:52 PM (GMT -7)   
MK, wasn't our "veggievet," sue, one of the ones who chose to take hormones??? There was someone else, too. I'm not good at remember details, so I can't remember if she was er/pr positive or not, but I'm thinking not.

I know she has a website for FORCE, but I don't remember the addy. Might be someone Ellen could hook up with for another perspective.

Hugs...
BEV
Don't worry about the world coming to an end today. It's already tomorrow in Australia.  -Charles Schulz

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