ok..so it is cancer

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miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 8/11/2007 5:18 PM (GMT -7)   
My doctor called on friday, to let me know that the core biopsy came back, and it is positive.
The problem is, that they also found a second lump, nowthey want to do a mri biopsy, becasue they can't see it on the mammo or the ultra sound.
 
so I guess it is another core biopsy with the aid of an mri.
 
then, they will make the final decision...right now i am looking at a lumpectomy with radiation.
 
if the second lump comes back also positive, then we will go for a bit more drastic treatment 2 lumpectomies and chemo.
 
I am wondering what are the side effects of radiation, and if it were any of you would you go with the lumpectomies ot with the masectomy??????
 
I am just afraid that since both of these lumps did not show up on the mammo, what are the chances of more coming up even after the lumpectomy??????
 
Brain tumor 1981
Dx.Crohns 1996
resecction 2001
Thyroid cancer 2001
seizure disorder .....all my life.
 
What you may think makes you weak...in fact makes you STRONG!!


Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 8/12/2007 7:43 AM (GMT -7)   
Hi there, and wow. looking at your tag line, just think how STRONG you are already! That will help your coping in the coming months, as you put your warrior hat back on (with a pink ribbon this time!) Sorry you had to join our club, hope we can be of help to you.

As for the decisions you face, I think you need more information first. There are usually several decisions to make along the way, and this is just the beginning. The best piece of advice I can offer is to get all the info you can and then make your decision that is right for YOU, not what others tell you to do, and go with your gut.

If there are 2 tumors, they may recommend mastectomy. I am not sure they can do 2 lumpectomies. Please ask about that. Even if the 2nd one is benign, you may still need chemo based on the size, location and traits of the first one....so prepare for that too (don't expect it, just prepare for it). It is hard to say just rads from a core biopsy, there is more info they need to know, including lymph node status.

For me, radiation was a piece of cake, no real side effects. My breast got tender and pink and more firm, but all normal and tolerable. Chemo was tolerable too, easier than I expected. If you need it, there are lots of great medications to help get you through to ease the side effects.

My other bit of advice is to write down your questions and bring a tape recorder along with a friend or spouse to the appointments. And be sure to take care of YOU!

Hang in there!
Lori


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 8/12/2007 7:48 AM (GMT -7)   
I would personally opt for the mastectomy if there are two lumps. But then that depends on whether your body can take it. Chemo is pretty rough, also. Radiation could be the mildest for your body right now if you can tolerate that, but is it the most effective for treatment? You need more information as to type of cancer, how aggressive, etc. You need more help from the others here who know a lot more than I do about this. And I would think you need a team of doctors working together who understand your history of illnesses. Good luck and God Bless. Keep us informed. MK
 
Just as my post was finished I saw Lori's post.  She is one of the best with advice, so please read her post over and over and think about what she says.  Me again.



Post Edited (gma) : 8/12/2007 8:50:51 AM (GMT-6)


MNlady13
Veteran Member


Date Joined Jul 2003
Total Posts : 2044
   Posted 8/12/2007 9:04 AM (GMT -7)   
Sorry that you have joined this club, too. Lori has good advice always. I had radiation (no chemo, so I can't make a comparison) following lumpectomy for tiny, tiny tumor. I got very tired during the six weeks of treatments (the fatigue creeps up on you). But, I managed to work full-time. We scaled back on meals a lot relying on the grocery store deli, fast food or meals out. I napped after work and after dinner. I was not as fortunate as Lori with my skin. The last two weeks the skin on the underside of my breast broke down and peeled. The radiation center gave me good stuff to treat it with, though. I healed quickly as soon as treatments ended. Good luck with your surgery. We will be here for advice and comfort in the days and weeks ahead. Looking at what you have already survived, I know you can do this. Hugs, Lauri (11 and 4, in loving memory of Connie Pawling)

"Go confidently into the direction of your dreams. Live the life you always imagined" Thoreau
 
Life is not measured by the number of breaths we take, but by the moments that take our breath away.


Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 8/12/2007 12:53 PM (GMT -7)   
Hi
 
First of all welcome to our group although it is a group that I wish had NO members. I wanted to give you some advice, but you should do as much research to so that you can make the right choice for you. I was diagnosed 2 years ago and had a lumpectomy followed by chemo and rads. My tumor was much larger than my Dr had anticipated so her recomendation was lumpectomy but afterwards she told me that she would have suggested masectomy. I was rediagnosed with another tumor this last January and had a mastectomy and reconstruction done. If you have 2 tumors they might have to take alot of tissue and your breast may not look the same as before, my breast after the lumpectomy was alot smaller.
 
Im not trying to scare you, but I want you to get all the information that you need to get in order to make a good decision. One that will be right for you and your husband (if you are married)
 
I will keep you in my thoughts and prayers, keep us posted we care!
 
L&H
Bernadette

miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 8/13/2007 7:06 AM (GMT -7)   
Thank you!
You have no idea how much I not only need all of you right now, but how much I appreciate the fact that I am learning from the BEST.

You all are giving me the strength I am going to need to get through this.

I know no matter what happens, I have you to help me.

As far as my husband....he has always been supportive when it comes to my health issues...BUT, he seems a bit different with this.

very evasive.....seems to want to start a fight about evrything...and I just don't have it in me to argue about stupid things right now.

he has said a few things that have really hurt.....But he had been drinking when he said those things, but...I am wondering if the old saying is true.....a drunk mind speaks a sober heart???????

I kind a feel like that clown on the water bench, I am just sitting here waiting for the next pitch.

But...AGAIN, like I said "I don't now what I would do if I didn't have all of you to help, if not just to listen to be rant on.
Brain tumor 1981
Dx.Crohns 1996
resecction 2001
Thyroid cancer 2001
seizure disorder .....all my life.
 
What you may think makes you weak...in fact makes you STRONG!!


coopfesta
Veteran Member


Date Joined Sep 2003
Total Posts : 1373
   Posted 8/13/2007 11:46 AM (GMT -7)   
OK, Wow, I'm like identifying all over the place here.  I haven't had time to read each response to you, but have my own exp to share, and it may help so forgive me if it's a repetition.
 
I had no side effects from radiation and a nice vacation from work because of the 5-day a week schedule.  Some say it makes you tired.  I had itching from the sunburn, that's about it.
 
My cancer mever showed up on the mammo.  It did on mri's.  That wondering if it will be missed on later mamos remains with me because my insurance continues to only cover mammos, and not mri's like my doc wanted.  I did go for a dillon scan, a scan that is specifically for dense breast tissue and is supposed to be sensitive to bc.  It was clean so that was good for me.  It cost $500, but it was worth it.  The MRI was more expensive.
 
I also considered mastectomy.  age and other risk factors may play a role.  the tossing around of whether or not to cut off the breast might be what's causing the husband to be a little wierd right now, It's a sexual issue, no?
 
Husbands!!!!!  Mine was horrible.  He was majorly insensitive.  I'm a psychologist, you'd think I'd have done better, but I went and fell in love with a clod when it comes to emotional expression.  I found this board, though, and it helped emensly.
 
Got to go for now.  tell us more so I can respond 
 
 
"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius
Don't knock on Death's Door.  Ring the bell and run.  He hates that.

Ellen


postal2
Veteran Member


Date Joined Jul 2003
Total Posts : 1106
   Posted 8/13/2007 11:47 AM (GMT -7)   
Hi and sorry I am welcoming you to our this wonderful group. You have been through more than I can even imagine! I just wanted to say you are in my prayers and thoughts and I'm sending you {{{{{BIG HUGS!!}}}}} Hang in there, sweetie, I know the waiting sucks!
L&H, Gail
  It's only when we truly know and understand that we have a limited time on earth -- and that we have no way of knowing when our time is up, we will then begin to live each day to the fullest, as if it was the only one we had.
 
Elisabeth Kubler Ross


miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 8/13/2007 3:33 PM (GMT -7)   
My insurance had to ok the MRI....my doctor called and told them that it was necessary, and that they were not able to locate the other tumor on the ultra sound, given this from the doctor the ins did cover it...However, now I am looking at another MRi for the Mri guided biopsy of the second lump, whether they have to have that ok'd again I don't know.

Havn't heard anything from anyone today, and since,its 5:30 I doubt if I will.

My GI who takes care of the Crohns issue is also at the same Hospital along with all my doctors,BUT he is a "get it done TODAY" type docotr, I see him on Wed., morning..... So I know I will have some answers by then, I am currently off all Crohns meds., becasue they are auti immune suppresant drugs...right now I can't take,that my immune system is shot..BUT I
have to stay strong, stress is the worse thing for Crohns, I can do this...I just have alot of other stressful things in,my
life besides my health, as crazy as
that sounds, that is probly what it is going to take for me to keep my mind clear of the cancer. I don't know, It all just seems so sereal (SP) But, I have faith in GOD...he has given me the things I needed before, He will be here AGIAN
Thank you!!!!!!!!

gretchen
.
Brain tumor 1981
Dx.Crohns 1996
resecction 2001
Thyroid cancer 2001
seizure disorder .....all my life.
 
What you may think makes you weak...in fact makes you STRONG!!

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