decision making time, I could use your input

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miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 8/23/2007 9:00 AM (GMT -7)   
ok...the surgeon called.
the second lump is NOT cancer
the third they are leaving alone until they get in there and remove it, based on the results of the second they do not feel that the third lump is cancer.
 
I have to make a decision.
a lumpectomy with radiation....it is under the breast at the 4:00 position so reconstruction will have to take place regardless.
if they do a lumpectomy, I will have radiation and since I am er positive I am a canidate for medication for the next 5 years to keep the cancer away.
 
however, with my history of brain tumors, thyroid cancer and now breast cancer, I have to make the decision on whether to have just the lumectomy with rads, or a complete masectomy with out rads or chemo AS LONG AS THE CANCER HAS NOT SPREAD TO THE LYMPH nodes which she will not know until they go in and do the lumectomy.
 
if it were you.....what would you do??????????????????????
my right breast is very dense, she said I am a complicated case BUT there is no evidense of anything suspecious in the right breast.
 
she said that they will do reconstruction on both breast to make them even.
 
But this is a decision I have to make.
My problem is, I do not want to go through all of this again in 9 months.
 
i dont want to have a lumpectomy now, and in 9 months them tell me that the cancer has returned and then have to do the masectomy....
 
How the heck do I make such a decision>>????????????
 
and what decison do I make...it's not a cosmetic issue, But at the same time do I want to go through this all again.
Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....currently waiting treatment options
seizure disorder .....all my life.
 
 
 
 


possitive
Regular Member


Date Joined Mar 2005
Total Posts : 239
   Posted 8/23/2007 7:30 PM (GMT -7)   
I had a mastectomy on the left side(possitive lymph node)and they kept telling me that i was at high risk for cancer in the right side.I didnt want to take that chance so i had them remove the right breast,I had chemo and after all was over i decided not to have reconstruction.One good thing about it is i dont have to wear a bra if i dont want to.The doctor told me there was a chance that they wont get all the cancer with a lumpectomy and that made my mind up!It could still recure with a mastectomy but i felt good about my decision.Go with what you feel inside,Listen to your Gut feeling.Pray and leave it in Gods Hands. Tammy
 GOD WILL NOT GIVE US MORE THAN WE CAN HANDLE!!!!!


barkyboys
Veteran Member


Date Joined Jul 2003
Total Posts : 1564
   Posted 8/27/2007 4:44 PM (GMT -7)   
I will preface this with the understanding that this is a very personal decision, and we all choose what we feel most comfortable with.  But I will share my thoughts with you and maybe throw another idea out there.
 
I had a single mastectomy, with no option of a lumpectomy because I had two lumps, both invasive, and different types of cancer.  I WANTED to have a bilateral mastectomy, but that was not an option at the time( now there is a law that gives us the right to have both breasts removed, if a woman so chooses).  I still wish that had been an option for me.  Considering your history, have you thought about a double with reconstruction on both sides???  At least then you'd have the assurance of being even and balanced, which I am not, even though they did a lift and a slight reduction of the remaining breast to try to make'em match.
 
Lots of women here have lumpectomies with rads and are very happy with their results.  I wanted to get rid of as much breast tissue as possible to reduce my risk as much as possible. Removing the second breast would have made me feel better, and I silently curse the doctors who said, "NO" every time I have to go have a mammogram on the remaining breast.  (And then I feel guilty because those same doctors saved my life and gave me 12 and counting years cancer-free.) 
 
Just want you to know it IS an option.  A number of women have chosen this and are happy with it, too.
 
You just have to do what is feels right for you.  The rest of us really don't count!
 
Hugs...
 
BEV 
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz


miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 8/27/2007 6:47 PM (GMT -7)   

I figured that since not many responded to my post....everyone felt the same.....  I had to make the decision with my own heart, and not to get too comlicated by reading, listening, to everyhting all at once.

So, I dug into my heart, and decided that I will have the lumpectomy....but they are going to remove almost 90 % of the breast...I have a awsome plastic surgeon who has made me feel alot at ease. He says he will reconstruct the left and fix the right to look just like the left.....On top of it, he is going to get rid of those luv handles I got, and give me a tummy tuck..SO, who knows.

Not that I am, in no means a vain person, I just didnt want to look at myself everyday and see something so trastic that I would be mad at myself for having , the wrong thing done.

I know I will live with this everyday, whether I look at my breast or not, I will be reminded of it, and I will thank God for each day I have after this is all over with.

I have been through an enourmous about of health problems my entire life.

But, for some reson..THIS is all so different.

I don't know why..I mean crohns disease is not an easy thing to live with everyday, having a sezure disorder is almost as bad.....BUt this Breast cancer, has hit me so hard in so many ways...and I just don't understand why.

its so emotionally draining....Today is my 13 wedding ann., and I have done nothing but Bit@* all day. nono

 

I know it wrong....But everyone seems to think I am super human here, that just like everything else, I am suppose to just go along with everthting.... & I usually do,  I havn't had too many bad days but I do have them....My husband keeps saying, u r the strongest person I know u will be fine.

ANd I appreciate that...But I am also human, and am am having some bad days.

 


Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....currently waiting treatment options
seizure disorder .....all my life.
 
 
 
 


possitive
Regular Member


Date Joined Mar 2005
Total Posts : 239
   Posted 8/28/2007 11:28 AM (GMT -7)   
you have made the perfect choice because you made it.I was thinking about getting reconstruction with a free tummy tuck but i have been through so much i decided not too right now.But if i decide to do it that would be my choice of reconstruction.Do you have a journal?if not you should get you one,it really helped me.On days i didnt want to write anything i would just say(this sucks)or (I hate this)or whatever you feel inside.My husband would tell me that i was the strongest person he knew and that i was "Tough as nails" we have to stay strong and possitive but sometimes thats hard to do and its ok to break down and cry that doesnt mean that were weak it means were human.Ask God to carry you through this journey and he will.Your in my prayers! When you get through this journey,you will be stronger than before you started!!  STAY STRONG AND POSSITIVE.  Tammy

 GOD WILL NOT GIVE US MORE THAN WE CAN HANDLE!!!!!


gemini kiwi
Veteran Member


Date Joined Nov 2006
Total Posts : 1136
   Posted 8/28/2007 3:10 PM (GMT -7)   
Hey Miracleivseen,
Just "pooped" over from the Crohn's list to wish you well and give you a big bear hug coming all the way from NZ. I've been wondering how you were bearing up. I go for a mamogram on the 5th.
take care, and let us know how your doing.
Tess,

miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 8/28/2007 8:31 PM (GMT -7)   
thank you! All of you~
You have no idea how much this site has helped me...

I have met so many wonderful people here and on the crohns site.

I have to remember everyday that although my glass isnt full iIT IS 1/2 full and not at all empty....All because of people like all of you>

thanks again

Gretchen
Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....currently waiting treatment options
seizure disorder .....all my life.
 
 
 
 

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