Just diagnosed....

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ucforme
Regular Member


Date Joined Apr 2005
Total Posts : 72
   Posted 9/8/2007 8:28 PM (GMT -7)   
Hi all!
 
I've been a member for a while and have posted here and there.  Primarily in the UC area because I had ulcerative colitis which resulted in a complete colectomy and jpouch.  Life has been great and I was back to normal until I felt a lump in my left breat about 3 weeks ago.  I went for a mamo and nothing showed, but because everyone could feel it I was immediately sent for an ultrasound which resulted in an appointment the next day with a surgeon who insisted on an immediate biopsy and now I've been diagnosed with breast cancer.  My head is spinning because it's all happened so quickly.  After researching this surgeon I am confident that she is top in her field and I really trust her.  She's scheduled my surgery for this Thursday, the 13th.  My husband and I are meeting with her again on Tuesday because frankly, everything she said to me yesterday is a blur.  I was only expecting for it to be a consultation, so I told my husband I would be fine on my own. 
 
During the last 24 hours I've read everything I can get my hands on about breast cancer, surgery, treatment, etc.  I've always been the type that needs information to feel empowered, but honestly I'm scared to death.  We have two children, 16 and 19 and my oldest just went off to college last week.  I feel so badly for my family because they've been through so much because of me already.  They really don't deserve this.  They are all putting on very brave faces because they so selfless, but I know this is hitting everybody hard.  I know it's ridiculous but I feel such overwhelming guilt. 
 
I feel like I need to talk to others who've been through this.  I am good most of the time, but suddenly I am overcome with a wave of shear panic.  I am petrified that my kids will have to watch me suffer and then, not make it. 
 
Thank you for allowing me vent and any words of wisdom will be so very much appreciated.
 
Laurie 

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 9/9/2007 8:43 AM (GMT -7)   
Oh Louise, don't be too frightened until you know the details and it is very likely you may not have to be. You didn't mention a biopsy, so I am assuming the picture was pretty positive of cancer. Once you have a pathology report, you will know lots more about treatment needed and the type of cancer it is. Some is more aggressive than others. Caught early, bc can be treated with radiology or some of us have even not had that, altho today I think they recommend more treatment. I had a mastectomy and nothing else almost 12 years ago. My aunt had a lumpectomy and radiology about 20 years ago and nothing else and is doing very well at the age of 80.

You do what you have to do and keep on trucking. Living with UC has not been a party, I am sure you have kept on trucking there, too. We are here to support and help all we can. Let us know what your path report shows and some can really help you understand it. Be sure to get copies of all reports and keep them in a safe place so you will have them for the future. Good idea taking hubby along, too!

Hugs MK


ucforme
Regular Member


Date Joined Apr 2005
Total Posts : 72
   Posted 9/9/2007 6:48 PM (GMT -7)   
Hi GMA and thank you so much for responding to me. Your kind words brought tears to my eyes. You all have a way of being so inspiring...I'm telling you, you all need to pat yourselves on the back! I've been reading through this forum and the amount of comfort and caring is amazing!

I did have a biopsy and will have the results back tomorrow. My surgeon said it was more than evident by what she saw that this was cancer. As you said, we don't know what type or how bad yet so we're really being positive. We've had a wonderful weekend, just relaxing and being together as a family. I feel strong enough to deal with whatever this may be.

I'm sure I'll be back to ask a gazillion questions once I know more.

Thanks again for you words of encouragement!

Laurie

gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 9/10/2007 9:31 AM (GMT -7)   
Thanks for your kind words. We do have a wonderful caring group of women here. Many of us have been together nearly eight years, but after so long a time we had slowed down in our postings, etc. The seasons make a difference, too, winter is of course more computer friendly weather. LOL. We will try to help all we can with your questions. Hugs MK


coopfesta
Veteran Member


Date Joined Sep 2003
Total Posts : 1373
   Posted 9/10/2007 10:25 AM (GMT -7)   
Laurie:
 
I'm glad you posted.  There is a lot of support here.  I felt similar feelings about burdoning my family, but there was also a selfish streak that arose.  I started to feel like I should live a little, and spent too much money.  That's a risk some take, especially in the bookstore!!!!  I just wanted to say that, because it was really easy for me to do that, and I've heard others do the same.  Dr. Love's breast Book was a great resource.  Going to the appt with a dictaphone or tape recorder and the husband is helpful too.  I'm glad you're going again.  The blur is a familiar one.
 
I'm sorry you're so scared, but hopefully it's caught early enough and the lymph node biopsy will tell about stage so you have a clearer idea of risk, etc.  Please post frequently, there are others here who will have had experience with the treatment process pre- and post surgery. 
 
Hug those family!!! 
Thinking of you,
 
Ellen

"Our greatest glory is not in never falling, but in rising every time we fall." -Confucius
Don't knock on Death's Door.  Ring the bell and run.  He hates that.

Ellen


stressed in bama
Regular Member


Date Joined May 2007
Total Posts : 33
   Posted 9/10/2007 11:41 PM (GMT -7)   
 
 I don't usually post on this site,But having been diagnosed with breast cancer last year I wanted to say, always get a second opinion. My first surgeon says we got to remove the breast. went to another more advanced clinic and I have my breast. The cancer hadd not spread to the lymph nodes and I hadd no chemotherapy. I was advised to take 30 treatments of radiation but I declined. Read all you can about breast cancer. I pointed out to my dr that their own material said the cancer could come back that there was no guarntee the radiation would do what it 's intended to do. Everyone has to do what they feel is best for them. I had a truly loving husband ,family and church family.and alot of prayers. I wish you the best.
 
Hugs.Pam in bama

miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 9/11/2007 7:46 AM (GMT -7)   
ucforme,

I came to this site 5 weeks ago....I usually posted on the crohns forum becasue I am battling crohns disease.

5 weeks ago, they found a lump ...after a ultra sound I was dx'd with breast cancer....BELIEVE ME, although I wish so much you didnt have to come here IT IS A WONDEFUL place, with awesome people, they will help you get through it.
Honestly if it wasnt for all here, I would have lost my mind, I asked questions, researched, asked more questions.....Do your research...and MOST OF ALL ......WAIT, until you have all the details. Don't jump to any conclusions.
Try not to stress, it will only make the uc worse. Even if you have to take something to calm your anxieties.
I feel very fortunate that I found this group of people....
Brain tumor 1981
Dx.Crohns disease 1996
bowel resecction 2001
Thyroid cancer 2001
breast cancer .....currently waiting treatment options
seizure disorder .....all my life.
 
 
 
 
 


MNlady13
Veteran Member


Date Joined Jul 2003
Total Posts : 2044
   Posted 9/11/2007 9:57 PM (GMT -7)   

Hi, Laurie, greetings from another Lauri.
I know you feel overwhelmed with everything that is happening right now. Take deep breaths and try to segement things into bites you can manage. Depending on the size of the lump, a lumpectomy can be as effective as mastectomy when it comes to survival. I had a teeny, tiny lump in 1996 and opted for a lumpectomy plus radiation. I am still cancer-free 11 years and almost 5 months later.

Good luck with your surgery on the 13th. I will be thinking of you Thursday. Feel yourself surrounded by the comforting thoughts and kindred spirits of others. Keep posting here or on other support boards. Internet connections are invaluable in helping you cope with what you are experiencing. Hang in there. Days ahead will be easier. You've already been through so much. You obviously are a strong person. Stay focused and stay positive. Hugs, Lauri


"Go confidently into the direction of your dreams. Live the life you always imagined" Thoreau
 
Life is not measured by the number of breaths we take, but by the moments that take our breath away.


ucforme
Regular Member


Date Joined Apr 2005
Total Posts : 72
   Posted 9/21/2007 6:46 AM (GMT -7)   
Thanks again for all the kind words and your good healing thoughts. They've worked because surgery was a breeze and very successful. Although the cancer was invasive, it did not reach any lymph nodes and my surgeon is confident that she got it all. My tumor was estrogen and progesterone + and I was on HRT. I'm sure most of you already know how dangerous HRT is, but please, please, please tell every woman in your life to stay away from estrogen and/or progesterone....period! Deal with hot flashes and anything else your body is going through. I did a lot of research on HRT prior to going on it, but because cancer doesn't run in my family, I was confident that the scewed information I was provided was accurate. This is one thing I am very angry about, but that's for another post.

I will begin chemo treatments (8 over a 16 week period) and 35 treatments of radiation right after. I already consider myself a 'survivor' because it's no longer in my body. I am focused on the treatments and the fact that it's all preventative maintenance. By next spring this will all be behind me!!

I'm sure I'll be back with a million questions during the next 6 months or so, but thanks again for allowing me to vent here.

My thoughts and prayers are with you all.

Laurie xxoo

imnee
New Member


Date Joined Sep 2007
Total Posts : 5
   Posted 9/23/2007 6:11 AM (GMT -7)   
Hang in there Laurie. I was diagnosed this last April. In May had a mastectomy and reconstruction done. Not bad at all. I had wonderful drs and they helped me thru all of it. I was also on HRT and I agree--tell everyone you know STAY OFF IT!!!!!!! I was estrogen+ [985] and progesterone+ [97%]. Sentinal nodes clear. I'm now on my second course of chemo [AC dense dose first and now Taxol] I have good days and bad days with that, but it's doable. Just remember-you are a survivor!
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