Does anyone here have an implanted Port??

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 11/16/2007 9:46 PM (GMT -7)   
 I do not have cancer but I have a LifePort b/c I have NO venous access.
 For various reasons, I usually end up needing an IV about once a month. Anytime I need an IV they were having to do central lines. Once I had a seizure and woke up with a femoral line. I started having recurring jaw dislocations and was needing a central at least twice a week. The last central I had, they hit an artery b/c even the veins for the central were little.
 The port I have now is my 2nd since July. The first one I had caused a major infection, which led to removal, and they put in a PIC line for IV antibiotics, but they took the PIC out after only a week b/c they were afraid of another infection. Then I stared having the jaw dislocations in September so they put another Port back in.
  This was all great for a while, but I've been having trouble with it. The last time I was in the hospital, they could get no blood return. So I had to wait till the next morning to have it checked. This ment a night full of IM injections. I cried, b/c I felt like THIS is why I have a port, and the nurse thought I was crying just b/c I wasn't going to get the pain med IV...this hurt me.
 I ended up having a tPA treatment and that seems to do the job. Then, the next week I had to have some IV medication for a migraine.
It took 3 attempts just to access it (this I don't understand), and then they could get no blood return, and had trouble even flushing it.
After some Heprin, they got a drop of blood back so they pushed the meds, and it hurt. It felt like it was going into my chest. Its never hurt before.
I go the the doctor monday to get a referral to the radiologist to get it looked at again...
  Do you all have so much trouble with your ports? Is this common? Why after only one week after tPA would it not work again??
Its so frustrating to go through insert, removal, insert, tPA, heprin, etc and it still not work.
  Also, I have a really bad scar. They used the same incision site for both ports, and it looks horrible. Its shows in a lot shirts I wear (especially dressy clothes) and people always ask about it. Its not like I can say is a 'battle wound' bc i haven't survied anything like cancer. For me its just a constant reminder of all the stuff I go through/ have gone thorugh. Not good memories either.
The nurse the other night had an intern with her, and said "you'll never see that" referring to the scar. I just keep seeing my self walking down the isle one day in my wedding dress, with this big red scar showing.
Most pictures I see of port scars aren't that bad at all, and scars I have from other surgery's aren't near as bad, including the 2 down each side of my jaws. You can't even see those realy.
 I wonder if it healed right, b/c after 2 months pieces of stitches are still coming up through the skin. I really don't think the surgen, well radiologist did a very good job with the surgery...I really want to have someone else look at it and if it has to come out, do the surgery, but he's the only one in the hospital to do it. They don't even put you to sleep. THey give you pain meds and stuff you make you sleepy but I was awake through the whole thing. not fun may I add. (i have a huge tolerance and didn't fall asleep till it was all over) they said I had enought meds to kill a horse.
   Sorry for the long post, but I can't find anyone else with a port.
Wishing you ladies the best and sending you lots of energy and love!
Ang
DX-Migraines:PCOS(should have seen this list before!!)
Meds; imitrex inj, stadol ns PRN severe h/a
 ProzAC 40mg, Klonopin 1mg BID , Ambien 10mg
PRN, Pherergan, Actiq 600mcg(fentanyl suckers) for migraine breakthrough pain
 Doing engergy medicine!!!! Psych-K (look it up)
OFF ALL MEDS! AND DOING GREAT. still have h/a's but they aren't ruining my life anymore!
 
May God give you a reason to smile today, an extra reason to laugh, and bring joy to your soul.


postal2
Veteran Member


Date Joined Jul 2003
Total Posts : 1106
   Posted 11/17/2007 2:36 AM (GMT -7)   
Ang, there are several ladies here at least that have had, or have ports. Hopefully some of them can help you. Sounds like you have been through ALOT!! I have never had a pic line or any of those things but a friend of mine did and said it was awful. They had to try several times to get it right. My veins are very hard to get, and having lymphedema I only have one arm they can use. I always expect to be stuck several times. I know if I ever had to have chemo of any other regular infusion, I would want a port. My veins could not take it. One of my surgeries they were having so much trouble getting the IV in, I had three people at once sticking me in my arm and both feet. That was not fun. Anyway, welcome, and I hope you get some advice!
Gail
  It's only when we truly know and understand that we have a limited time on earth -- and that we have no way of knowing when our time is up, we will then begin to live each day to the fullest, as if it was the only one we had.
 
Elisabeth Kubler Ross


gma
Veteran Member


Date Joined Jul 2003
Total Posts : 2921
   Posted 11/17/2007 8:03 AM (GMT -7)   
Hi I fixed your duplication!! I haven't had any experience with a port, but I had a PICC line off and on for about a year. Jo-Ann posted not long ago about having her port removed after several years. You Might want to find that post and read it. Hugs MK


Phillsgirl
Regular Member


Date Joined Oct 2007
Total Posts : 28
   Posted 11/27/2007 9:08 AM (GMT -7)   
Ang, Just read about your trouble with the port. I too have a port. It was just put in 8 days ago. Everything went ok with that but yesterday I had my first session with chemo. It took 3 peope to try and get the needle in. All that poking and probing. I was crying like a baby. They said it shouldn't hurt like that, but what else could they say. I dread going back but I have to. As for scars, I had back surgery 7 years ago and they cut me 7 inches on my stomach and my back. The back scar is great but my stomach scar is an inch wide and 7 inches long. Now I have a large scar on my left breast and under my are from a lumpectomy. not to mention the scar on my right chest from the port. I look like I was hit by a truck. As long as I can live until my children and grandchild grows up it will all be worth it. I am only 44 years old and I have alot of living to do. My youngest is 15 years old. I hope everything goes better for you. Just keep on fighting someday you will be able to put this all behind you. Lots of hugs.
Carol from Rochester, NY

AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 11/27/2007 4:53 PM (GMT -7)   
Thanks for the replies. I guess I should just count my blessings huh.
Well I had the port removed yesterday. They once again had trouble accessing it, and had to use fluroscope to get it accessed. Once they got in, he said there was too much scar tissue, causing it to be hard to access and get blood return. The procedure was aweful b/c of having to cut through all the scar tissue and I was wide awake the whole time.
They say it shouldn't hurt at all, but I was in so much pain I had to take off work. He made the incision about 1/2 inch longer, and its all jaged and ugly. At least I won't have to worry about it anymore after I heal.
I wish you all the best.
Ang
DX-Migraines:PCOS(should have seen this list before!!)
Meds; imitrex inj, stadol ns PRN severe h/a
 ProzAC 40mg, Klonopin 1mg BID , Ambien 10mg
PRN, Pherergan, Actiq 600mcg(fentanyl suckers) for migraine breakthrough pain
 Doing engergy medicine!!!! Psych-K (look it up)
OFF ALL MEDS! AND DOING GREAT. still have h/a's but they aren't ruining my life anymore!
 
May God give you a reason to smile today, an extra reason to laugh, and bring joy to your soul.


Phillsgirl
Regular Member


Date Joined Oct 2007
Total Posts : 28
   Posted 11/28/2007 5:44 AM (GMT -7)   
Ang,

I'm glad they took it out but I'm sorry you went through so much pain. I love the way they say it shouldn't hurt. Unless they have had it, they just don't know. Scars heal and you should be ok. When you are healed good try some mederma on it to make it look better. It takes time but I hear it really works. I started using on my new scars. good luck and keep in touch.

Carol

Brnadebt
Veteran Member


Date Joined Jul 2005
Total Posts : 688
   Posted 12/17/2007 6:51 PM (GMT -7)   
Ang

I had aport for my chemo and never had any trouble what so ever. I had it put in and then went out to dinner with hubby. I never had to be stuck more than once during my 6 months of chemo. I had it taken out a year later and have just 2 tiny scars, that you would really have to look for. If they put yours back in I hope you have alot better luck.

L&H
Bernadette
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 7:43 AM (GMT -7)
There are a total of 2,735,828 posts in 301,337 threads.
View Active Threads


Who's Online
This forum has 151440 registered members. Please welcome our newest member, stevclemon.
271 Guest(s), 5 Registered Member(s) are currently online.  Details
fibrocushie, ChickenArise, trumpet123, iPoop, LanieG


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer