Need help to understand about daughter's test.

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gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted 12/11/2007 10:15 AM (GMT -7)   
A month ago Carolyn's blood work showed anemia.  I am not sure what was done at that time, but she was to have another blood test this month when she went for her Aredia infusion.  It showed her red cells count was even lower, so they are going to do a bone marrow test next week.  What are they looking for?  Does anyone know?  She says one of her medicines is supposed to cause problems with blood count, but the meds seem to be working as far as the bone scan shows etc. They gave her a shot of something that sounds like angen aran esp which meanss nothing to me.
 
Chris, other daughter,  was diagnosed with Grave's Disease, overactive thyroid last month.  Erica grand daughter, has a large cyst on her ovary and is almost six months pregnant.  Stella's husband had his pet scan and it showed suspicion of cancer in the upper lobe.  He will have a biopsy and probably surgery to remove the lobe?  My guess as to removing the lobe.  It is an area about two inches in diameter that has two spots and a possible lymph node that is swollen. 
 
On the other hand, my mother continues to have great health except she is getting more feeble and her memory is failing more all the time. I'm here lazy as I can be.  But we are going to TN this next weekend to see my son's family, our grandson will be there with his wife and little ones.  Second grandson, Ben is newly engaged so we get to meet Amy.  Dr. Becky and Jenny, son's daughters will be there.  Chris and her family will be there, too.  We are staying in two of the cabins there will be so many of us.  Maybe that will get me going!!!
 
Hugs and love to all,
MK


Jazzy1
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Date Joined Oct 2007
Total Posts : 46
   Posted 12/11/2007 4:06 PM (GMT -7)   

Hi MK,  it is true a lot of meds can cause a low red blood cell count. The doctors may be looking for bone marrow failure/disease (don't want to freak you out), because that is what makes the cells. Many conditions of the marrow can cause a low count. Also, many vitamin/nutritional deficiencies can cause a low rbc count too. I believe also Vitamin B-12 and B-6. I will see if I can remember anything else, my daughter had troubles with low iron  (she is fine now) and I remember talking to the dr several times about it. I am pretty sure they want to make sure her marrow is in tip top shape! As for everything else, I am so sorry your family is going through such a difficult time. I wish you the best, and my prayers are with you. If I think of anything else I will let you know. Take care,

Jen


gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted 12/11/2007 5:00 PM (GMT -7)   
Thanks for your input Jen, I know about general anemia. My husband was diagnosed with celiac disease last February which was found by anemia and then an upper GI scope with biopsy. I suggested Carolyn tell her onc about the celiac because it is genetic, but she didn't because she understood one of the meds she takes is a problem for blood cells and besides she said, "If I had celiac disease I would have had it all my life not just now." I reminded her that her father was just diagnosed and it was because he became very anemic last year all of a sudden. I just wasn't sure what they were looking for with the bone marrow test. I know leukemia is related to bone marrow. I know there are blood cancers that could be related, but does mets ever show up in bone marrow? We will probably know more in a week or two. Her test is next Tuesday. Hugs, MK


kmonke
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Date Joined Jul 2003
Total Posts : 352
   Posted 12/11/2007 10:19 PM (GMT -7)   

MK,

Mets can show up in bones, but not sure about bone marrow, but would assume it is a possibility.  Not to freak you out, but she needs to ask more questions, which Carolyn may have done but hasn't told you.  Imagine that - a child not telling a parent something because they don't want you to worry.  You and I have never done that to our parents now have we. LOL

Keep the faith that the Dr's are on top of everything with her as they are with you.  Enjoy your time together, and spoil those little grands and great grands every chance you get.

Merry Christmas to all of you, and take care,

Love and prayers, Kitty


gma
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Date Joined Jul 2003
Total Posts : 2921
   Posted 12/12/2007 7:38 AM (GMT -7)   
Yes we know the bone scan shows spots, but as Carolyn keeps telling me, it could be arthritis. All the bone scan shows are hot spots. So you see she does tend to try to make me not worry. Remember, too, she works way too hard and says that Lance Armstrong beat cancer by working. I just don't remember others here with bone mets having bone marrow tests. Cathi, are you reading? Have you had bone marrow tests?

Hugs to all,
MK


postal2
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Date Joined Jul 2003
Total Posts : 1106
   Posted 12/12/2007 12:49 PM (GMT -7)   
MK, I just wanted to let you know I am praying for your dauther. I know it is impossible to not worry about our kids. Sending ((((HUGS))))) your way.
L&H, Gail
  It's only when we truly know and understand that we have a limited time on earth -- and that we have no way of knowing when our time is up, we will then begin to live each day to the fullest, as if it was the only one we had.
 
Elisabeth Kubler Ross


Cathi
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Date Joined Jul 2003
Total Posts : 702
   Posted 12/16/2007 1:18 PM (GMT -7)   
HI MK..FIRST OFF, NO I HAVE NEVER HAD ANY BONE MARROW TESTS. NOT SURE WHY THEY ARE DOING THAT.... BUT THEY MUST HAVE A REASON.

I AGREE THAT WORKING IS GOOD FOR YOU WHILE GOING THRU TREATMENT. I ONLY WENT ON DISABILITY
LAST YEAR & I SURE WISH I WAS STILL ABLE TO WORK. I JUST HOPE THAT CAROLYN ISNT OVERDOING IT.
SHE NEEDS TO GET ENOUGH REST. BY THE WAY DID SHE TELL YOU WHAT MED IS SUPPOSE TO AFFECT THE RED BLOOD COUNT ?
 
THE BONE SCANS HAVE BEEN VERY INCONCLUSIVE WHEN IT COMES TO ME. I HAD ONE AND 2 WEEKS LATER
I HAD A COMPOUND FRACTURE OF THE HUMEROUS. THE REASON IT BROKE WAS BECAUSE OF A TUMOR THAT DIDNT SHOW UP ON THE SCAN. TUMOR MARKERS ARE MORE HELPFUL FOR ME...NOT EVERYONE, BUT THEY DO HELP ME. MINE ARE VERY HIGH RIGHT NOW. I HAVE HAD LOTS OF DIFFERENT TESTS , BUT NOT BONE MARROW.I SURE WISH I COULD BE MORE HELP. PLEASE KEEP US POSTED ON WHAT IS GOING ON WITH CAROLYN.

PLEASE KNOW THAT YOU AND CAROLYN ARE IN MY PRAYERS.

LOVE AND HUGS

CATHI


Sometimes it is a slender thread, Sometimes a strong,
stout rope; She clings to one end, I the other;
She calls it friendship; I call it hope....

Post Edited (Cathi) : 12/16/2007 1:28:48 PM (GMT-7)


barkyboys
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Date Joined Jul 2003
Total Posts : 1564
   Posted 12/18/2007 4:09 AM (GMT -7)   
Mk, I don't want to alarm you, but JoAnn had breast cancer cells in the bone marrow. I think it is pretty rare. They eradicated it once with chemo. The second time...

As everyone has said, there are SO many things that can affect red counts. We'll all be hoping for something benign.

Love and hugs...
BEV
"There's a difference between a philosophy and a bumper sticker."  --Charles Schulz

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