New here! unfortunately!

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jericabear1977
New Member


Date Joined May 2008
Total Posts : 3
   Posted 5/24/2008 12:05 PM (GMT -7)   
Hey everyone! My name is Jerica. I'm a 30 yr old mom and girlfriend to two very kinda ppl! Also a mom to many pets! Over the last six weeks i have felt "funny" Like funny tired all THE TIME. drained drained. I take a walk, 2 miles and i'm yawning all the way down and back! That is crazy i never did that. I have lost all motivating function to cook clean or play with my daughter. i have no sex life. This is something that has been off and on for the 8 yrs we have been together. But lately its worse.
I went to the doctor in april because i thought i was prego. That i knew had to be negative bcause i have a IUC(mirena) and some symptoms i had the doc ordered some blood work. That came back fine. prego test negative. So the following week she ran a complete panel. There are some lows and highs but she said most of it was hormones. So i have kept telling her i just feel drained all the time. She has told me to go out and walk. I told her why it doesn't boost my energy afterwards like it used too. My stress levels are off the charts. Dishes not done. Daughters teeth not brushed. Her daddys work boots in the living room. Just stupid sh$*! So i asked her for a cortisol test. and did that too. According to the Mayo clinic. normal is 7-25 mcg/dl mine was 5. She ordered another test to make sure it was right. 8 am it was 5 3 pm it was 6.3. My thyroid test came back as TSH: 1.11 and Free t4: .95. Looking at these it does seem "low" on the normal end but this is the first time i've ever had any labs. She also prescribed my zoloft 100mgs. 50mgs a day for 2 weeks then up it to 100. The first day i took it my stomach went to orbit with pain. I also have endometriosis. Which is why i have a mirena. Ok so long story short i feel like a derailed train. Am i just lazy cuz i'm fat or fat cuz i'm lazy. Or am i just a crazy fat lady!! LOL. I would love to find the miracle pill that zaps away fat butttttttt that aint gonna happen.,
So in conclusion. What do you all think is my deal. any vitamins herbs. I eat farely decent. I don't sit down with chips and beer. I'm good at portion control. HELP HELP
Jerica

LV
Regular Member


Date Joined May 2008
Total Posts : 23
   Posted 5/25/2008 12:25 PM (GMT -7)   
Hi Jerica,

Welcome to the board, I'm a newbie myself here but have had this illness for many years!! Sorry you are suffering so much, but it does sound like you have a wonderful doctor. CFS is a very complex condition. Are either you or your doctor familiar with the Canadian Consensus Document--A Case Definition? It clearly spells out what the medical/research community have researched and perhaps some of the tests your doctor may or may not want to run. CFS is more than just fatigue so I urge you to check it out and perhaps further investigation might shed some light onto your suffering right now. Good luck!!

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 5/26/2008 8:10 AM (GMT -7)   
Jerica, I'm sorry you are feeling so sick and that you aren't getting a lot of answers. Is your doc going to do anything about the low cortisol levels or the low hormone levels? I found out a few months ago that a lot of my hormone levels were low, so I was given a compunded hormone cream to rub on my wrists and it has made a pretty significant change in my energy level. I am actually able to be up and doing things most days. It's something to look into. Also with your thyroid levels, a doc once told me that if you are at either end of what is considered "normal" you might be feeling the effects of problems with your thyroid and it might need to be treated.

Hang in there and don't give up looking for help. And no, you are not crazy and you are certainly not lazy. I think healthy people have a hard time comprehending just how severe and debilitating our fatugue can be.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



jericabear1977
New Member


Date Joined May 2008
Total Posts : 3
   Posted 5/26/2008 5:53 PM (GMT -7)   
I just don't get it. Anyways the dr is pretty good at working with me. I never thought she was that great but did the job right. I have been with her for 25yrs and want to keep her. She was willing to send me off to an endocrinologist to find out some answers. If the cortisol came back crazy. I refuse to take the zoloft. I don't need to gain any more weight. My mom takes it for her menopause stuff and she said she has gained 20-30 lbs with it. What do i say the the dr when she has said my labs look good. blah blah blah. and i know something is wrong. If it is my thyroid how many more tests do i need to take or what any one wanna fill me in thanks

jericabear1977
New Member


Date Joined May 2008
Total Posts : 3
   Posted 5/26/2008 5:55 PM (GMT -7)   
also i should probably re calculate my tiredness to 3-4 months back. I also have been loosing chunks of hair. And not on just my head. Pubes too:( i pee all the time. she even check me for diabetes and neg there... grrrrrrrrrr frustrated is all i can say.

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 5/27/2008 10:05 AM (GMT -7)   
I'd say that seeing an endochronologis would be a good idea - they are much more familiar with thyroid issues and even cortisol issues. I'm not sure what the losing hair could be. I know it happens to a lot of people who have lupus, but it could happen with other diseases too. Has your doctor ordered an ANA test - it's a blood test to screen for autoimmune diseases including lupus.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



treehugginhippy
Regular Member


Date Joined Jun 2008
Total Posts : 30
   Posted 6/2/2008 4:59 PM (GMT -7)   
Hello jerica, me new too! I too have many regular meetings with the loo - like way too much to be 'normal' but digestive and urinary problems are the norm unfortunately. Am a hairdresser so can almost certainly diagnose stress alopecia. from reading your input that came through in droves. you are a worried little stress monster aren't you mate? Try and take time for yourself and relax somehow, whatever works for you. Essential oils and a bath, sitting in church praying, tai chi, relaxing music and soft lighting, open field and a bar of chocolate, whatever calms you and takes you away from yourself.
Hope it helps to know hair loss isn't always medical - it can be emotional.
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