I have to say that I never really felt the same after I had mono - I never got my full energy level back and got sick really easily. The winter after I had mono, I got strep throat 3 times in a row and I would also get really sick and end up with my bood count off. about
3 years after I had mono I got diagnosed with CFS but they really didn't have anything to treat it with at that time. Eventually I did get some energy back and was able to lead a pretty normal life and was able to exersize, but I was always more tired than the average person. Then about
4 years ago I got terrible fatigue again and other symptoms and ended up with lupus which I am now battling.
I think mono can really take a toll on people. My son had mono when he was in 1st grade and never go better and it seemed to have triggered juvenile athritis. I had a doctor who told me that some research was showing that people who get mono are more likely to develop autoimmune diseases later in life. Don't give up searching for answers - either one of you. Ask to see specialists if you haven't already such as an endochronologist and possibly an infectious disease doc.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears
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