What si the difference between Fibromyalgia and CFS

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

suncat
New Member


Date Joined Jan 2007
Total Posts : 6
   Posted 5/31/2008 11:38 PM (GMT -7)   
My apologies if this has been asked before, but I am curious about the differences between Fibromyalgia and CFS? They almost always seem to be described in the same topic in medical articles, and treatment likewise.

Obviously, many aspects of CFS are still a mystery, and it might not even have a correct name. Latest articles seem to indicate that it is a general illness for a range of possible causes/infections, and also possibly treatments.

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/1/2008 12:01 PM (GMT -7)   
I'm not sure I know the exact difference, but with fibro, there are the tender points that docs use to help diagnose it. Also pain seems to be more of an issue with fibro, whereas with CFS it is the debilitating fatigue. A lot of people with CFS also run low grade temps and have swollen glands and I don't think those things happen as much with fibro. Some people will say they are the same thing, but from what I know and what I have read and what I have experienced, they are two different conditions that share some symptoms. I hope this helps some.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



treehugginhippy
Regular Member


Date Joined Jun 2008
Total Posts : 30
   Posted 6/3/2008 3:40 PM (GMT -7)   
Hello suncat, i know the way you feel - far too confusing! I suffer with both cfs/me and fibro. this i only found out recently when my new doctor mentioned fibro (all this time i thought thie pain was just a part of my me/cfs) Only then did my new doctor (god bless her she's fantastic) AT LAST I'VE FOUND A GOOD ONE! She told me that there is a difference, pain being the main one.

treehugginhippy
Regular Member


Date Joined Jun 2008
Total Posts : 30
   Posted 6/3/2008 3:42 PM (GMT -7)   
Whoops don't know what happened there - phased out just a bit there. Next thing i know im repeating myself! He he.

====
When that happens you can just go up to the little "X" in the upper right hand corner of the post and click it. It will give you a choice of whether or not you want to delete the post. I did them for you this time. ~Jeannie

Post Edited By Moderator (Jeannie143) : 7/10/2008 2:25:31 PM (GMT-6)


treehugginhippy
Regular Member


Date Joined Jun 2008
Total Posts : 30
   Posted 6/3/2008 3:45 PM (GMT -7)   
Hello suncat, i know the way you feel - far too confusing! I suffer with both cfs/me and fibro. this i only found out recently when my new doctor mentioned fibro (all this time i thought thie pain was just a part of my me/cfs) Only then did my new doctor (god bless her she's fantastic) AT LAST I'VE FOUND A GOOD ONE! She told me that there is a difference, pain being the main one.

T~
Regular Member


Date Joined Nov 2007
Total Posts : 130
   Posted 6/7/2008 10:20 PM (GMT -7)   
Hi Suncat~ Believe it or not, I came here to look for that very same answer.  I was diagnosed in Dec with Fibro, but all along I have complained about the pain secondary.  My biggest problem is... I would choose sleep over anything else, my husband is well aware of this the poor thing.  I have other things that I wonder about sore throat, ear aches, ringing in my ears.  I am as week as I am tired and when I push it one day the next day my pain is very high.  Maybe it's both.  Does it benifit me to know it's both?  Maybe not. I just know that often times I'm on the verge of crazyville because I can't take LIFE as it is.  I work a part-time job and with a children and a husband I'm on the edge a lot.   Is this all Fibro or am I describing CFS?
Fibromyalgia (DX'd Dec 07) ~ Generlized Anxiety ~ Migraines ~ IBS ~ Asthma ~ Allergies
Cymbalta   Topamax   Claritin   Tylenol   Ibuprophen


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 6/18/2008 4:14 PM (GMT -7)   
Suncat, my understanding of what I've read of research on Fibro in the mainstream scientific press is that it now has one distinctive diagnositc feature - microscopic tears in the muscle fibres. Muscles are composed of tiny little fibres shaped like diamonds, (some are quick muscle for speed and some are slow muscle for longer term stamina) and these fibres have been found to have a high proportion of tears in them, which is presumably what causes the pain. The latest thinking from what I remember - it was just a tiny article in New Scientist more than a year ago - is that there is a specific gene related to these types of fibres and other sorts of connective tissue, and that different types of defects in this gene cause all sorts of problems, mainly inherited.

snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 6/18/2008 4:21 PM (GMT -7)   
Tulips, I feel for you. I remember feeling the same way, except in my case there was no tinnitus, and no other half ! If it is any consolation, my experience was that once I found better ways of predicting what was going to happen next, I stopped caring so much about what the name of it was. (In my case the eventual diagnosis is IBD of unknown origin, which I'd guess is quite different from many here.)
eyesI stopped trusting doctors to be right too, and that helped reduce the stress levels a lot ! yeah

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 7/10/2008 1:33 PM (GMT -7)   
CFS can lead to fibro, fibro is accompanied by mind bending fatigue and the two often occur concurrently but they are different disorders. Part of the fatigue factor has been traced to a deficiency in malic acid in the mitochondria (energy factories) of the cells. Malic acid is necessary for the completion of the Krebs cycle which converts glucose to ATP to energy. This lack is why we seem to only get "non-restorative" sleep. I take 3200mg of malic acid a day to combat the fatigue.

CFS patients often also suffer from S.A.D. (Seasonal Affected Disorder) which has to do with our circadian rhythms and the amount of sunlight hitting our pituitary on a daily and seasonal basis. I use a "Happy Lite", a broad spectrum light in my office and bakery when I won't be getting at least 15 minutes of outside sun time a day.

The pain of fibro is linked to an elevated P substance factor in the cerebral spinal fluid which makes fibros feel pain from simple stimuli such as repeated tapping. There are lots of other differences but these are some of the main ones.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 7/14/2008 3:30 AM (GMT -7)   
Wow Jeannie. I can tell you are a sufferer by how well informed you are....most doctors would never get that clued up in the details ! It's ages since I did nay reading up on this, so I had no idea about the malic acid thing. Sounds like there may be light at the end of the tunnel if at least you know what supplement may help.
Sorry to bother you, I know you must have more day than energy, but are there any specific threads or links on this forum which will give me more details on what you've mentioned ? I do find people often discuss this sort of malady with me, and I like to be informed.

2tmoose
New Member


Date Joined Jul 2008
Total Posts : 15
   Posted 7/30/2008 2:58 AM (GMT -7)   
Hi Suncat,

I was told by my Rhuematologist? that chronic fatigue goes hand in hand with FMS. I was also told by a sleep specialist that FMS sufferers have weird sleep patterns that do not allow them to get normal sleep. You are asleep but you do not know you are. It is all part of the "syndrome" of FMS. Not to mention that the pain can deprive you of sleep. These are two seperate disorders, but as I was told run together. I believe that both are present in every FMS sufferer I have ever met. As I have been told if you have FMS you will have CFS also. That is my information from my doctors. I'm sure their are many opinions on this from many sources. I just know that as a FMS sufferer I also have CFS. Not that my information is any better than anything else you have seen here. Hope it helps.

2tmoose
Tomorrow is another day......and it might be better!


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 8/13/2008 9:27 AM (GMT -7)   
Snohare, there is a thread called Malic Acid/Magnesium for pain on the fibromyalgia forum.  I started taking these supplements in December and they have made a difference with me with both pain and fatigue.  Everything is explained in that thread and I also put links in showing the scientific studies and a complete explanation of how it works.  I hope  you get a chance to pop over there and read it.  It is usually on the first or second page of the forum.  We try to keep it bumped up for newbies.
 
Sherrine 

Achey_Breaky
New Member


Date Joined Sep 2008
Total Posts : 1
   Posted 9/18/2008 6:51 PM (GMT -7)   
hippimom2 said...
I'm not sure I know the exact difference, but with fibro, there are the tender points that docs use to help diagnose it. Also pain seems to be more of an issue with fibro, whereas with CFS it is the debilitating fatigue. A lot of people with CFS also run low grade temps and have swollen glands and I don't think those things happen as much with fibro. Some people will say they are the same thing, but from what I know and what I have read and what I have experienced, they are two different conditions that share some symptoms. I hope this helps some.

                 Hi Hippimom
                 Fibro is different, i get fevers of 102 about 2 times a week flu like symptoms 
                 But with CFS im tired and ache all over I just want sleep, 
                 I also have
                 rhumatoild
                 arthritis..lucky me.. i
                 have all 3...lol... and with muscle aches and joint aches it no win situation...
                 Im currently taking, lyrica, tramadol, davorcet, trazdone< i dont take it causes me
                 have nightmares<, Im also taking a adderall I think is what it is.. it helps me to
                 stay awake in the day. I have lost a lot of weight with these disease's(sp)
                 I also am taking tylenol3 and a muscle relaxer tizanidine , and carisprodol "
                 soma" then  for arthritis im taking presinone, cortizones anti imflammations pills
                 but i still dont feel. They just give you pill after pill... it seems.Most time I dont
                 take any thing. Because they make me sick to my stomach.
                 

SDD1244
New Member


Date Joined Sep 2008
Total Posts : 3
   Posted 9/22/2008 9:32 AM (GMT -7)   
Jeannie143

I don't have seasonal affective disorder and in my many years of having CFS, don't believe I've ever had it. But interestingly enough, one thing I have noticed that when my CFS took a turn for the worse, I had photophobia and I don't do well in the sun and/or the heat.

SDD1244
New Member


Date Joined Sep 2008
Total Posts : 3
   Posted 9/22/2008 9:37 AM (GMT -7)   
The differences between CFS and fibromyalgia:

. is that fibro patients are diagnosed by 18 distinct tender points (designated points on the body that are painful when four kilograms of pressure are applied), while ME/CFS is distinguished by post-exertional malaise (deep fatigue and exhaustion following physical exertion, which lasts more than 24 hours).

. Substance P (a neurotransmitter that sends pain signals) is elevated in people who have fibromyalgia but not CFS

. RNaseL (a cellular antiviral enzyme) is frequently elevated in chronic fatigue syndrome but not in fibromyalgia

. CFS is triggered by a an infection or flu-like illness and fibromyalgia is usually triggered by a severe physical or emotional trauma.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 9:17 PM (GMT -7)
There are a total of 2,736,194 posts in 301,359 threads.
View Active Threads


Who's Online
This forum has 151449 registered members. Please welcome our newest member, iwanttocry.
243 Guest(s), 8 Registered Member(s) are currently online.  Details
Mews2much, PDL17, Lymiemomster, Redwing57, jrpsf, lotdaisy, The king, Mister Mike


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer