Raiden, I'll try to answer some of your questions.
1. Fatigue: The fatigue that goes along with CFS is not the normal tired that healthy people feel. The CFS tired goes beyond the sleepy, yawning feeling to an overwhelming whole body fatigue where your body feels like it just does not even have the energy to function and no amount of sleep can make it better. THe fatigue is so bad some days that just getting out of bed is a huge accomplishment for the day. Some days I lie in bed after waking up and wonder how I am going to have the energy to sit up in bed, let alone, put me feet down and stand up.
2. muscle/joint pain: Yes, the muscle and joint pain can move around with CFS and fibro. I don't know as much about
fibro since I don't have it, but I've heard from othe people with fibro that the pain does move around. I also have lupus and with that, I always have joint pain in the same places.
3. Tests: Doctors should check for all kind so things before giving a cfs or fibro diagnosis. Some things that come to mind are thyroid, lyme disease, all autoimmune diseases such as lupus and other connective tissue diseases. I'm sure there are other things to be tested for, but these are some of the main ones that come to mind.
4. Meds: sadly there aren't a lot of meds used to treat cfs - there are some that I have read about
for fibro. I read that this year a med called lyrica was approved for fibro - I think it helps with getting good quality of sleep and also helps some with the pain. I have also read that a lot of people with cfs have low levels of cortisol and if those are replaced with meds then some of the energy returns. I have also read that some people with cfs are trying anti viral meds like Valtrex and it is helping some people.
I hope this helps some. Let me know if you have any other questions.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears
Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/
Co-Moderator: Lupus and CFS Forums