Hello there mate, sorry not been able to post reply before, have been having a rough time of it lately.
1. My c.f.s is relatively mild but has been quite rapidly deteriorating and am struggling to keep going - being self employed and the only wage earner it is a worry.
2. light tasks like cooking take their toll over a couple of days whereas if i try heavier work like gardening, i collapse there and then and it takes quite a time to recover enough to move.
3. My muscle and joint pain is unbearable at times and i live day to day on pain killers and muscle relaxants - i also do massage o myself which helps a great deal (being a massage therapist i can do my own - would recommend others to seek professional therapy as often as possible)
Sorry have forgotten one but brain fog kicking in
Take good care mate
I have had these symptoms getting increasingly worse for seven years.
The doctors are at a loss for treatment - am just given pain meds. Compared to people who are bed or wheelchair bound i am mild and am currently able to maintain work, albeit in a increasingly limited capacity (if nothing else) it is progressively deteriorating so where it'll end up i dont know.
I can best describe it like any time i do anything my energy goes within seconds, even slight exersion my joints and muscles ache and burn like ive been really working hard and long.
I find that i need a walking stick to walk more often as time goes on. Which for somebody my age is thoroughly embarassing.
I hope you have had some answers which you find useful and if you need to ask more - you know where to find me.
Take good care Tree
When it first started, i was constantly dead on my feet, my memory was terrible and brain fog was a nightmare. I had a constant headache (which has never gone - having a headache for seven years is no joke) I kept going back to g.p who could find anything wrong. Consequently my work capacity has been progressively reduced to only being able to work bare minimum.
After elimninating every other possibility they said it was m.e (although they never told me - i found out when he mentioned it in passing 'well with your m.e......' i was like YOU WHAT) Then he told me he didn't believe in it - so have just found a g.p who is helping.