Plz somebody answer

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Raiden_2008
Regular Member


Date Joined Jun 2008
Total Posts : 63
   Posted 8/14/2008 12:30 AM (GMT -7)   
I have got a few questions:

1. Is there anybody with mild CFS?
2. Once you do some work like cooking how does it feel? Do you start feeling tired straight away or it starts a day or 2 later?
3. Do you have blurred vission?
4. how severe is the muscle and jont pain if you have any?

I would be grateful if anybody can provide answers to the above mentioned questions....

Thanx..oh by the way there is a cure for CFS/Fibroa and all sorts of auto immnue disease..the treatment is soon going to be FDA approved...:)

treehugginhippy
Regular Member


Date Joined Jun 2008
Total Posts : 30
   Posted 8/20/2008 5:30 PM (GMT -7)   

Hello there mate, sorry not been able to post reply before, have been having a rough time of it lately.

1. My c.f.s is relatively mild but has been quite rapidly deteriorating and am struggling to keep going - being self employed and the only wage earner it is a worry.

2. light tasks like cooking take their toll over a couple of days whereas if i try heavier work like gardening, i collapse there and then and it takes quite a time to recover enough to move.

3. My muscle and joint pain is unbearable at times and i live day to day on pain killers and muscle relaxants - i also do massage o myself which helps a great deal (being a massage therapist i can do my own - would recommend others to seek professional therapy as  often as possible)

Sorry have forgotten one but brain fog kicking in

Take good care mate

Tree cool


Raiden_2008
Regular Member


Date Joined Jun 2008
Total Posts : 63
   Posted 8/23/2008 1:16 AM (GMT -7)   
Thanks...for your reply....plz look out for Marshall Protocol...its a curative treatment...how long are you having these symptoms for? Can you illaborate on how you feel when you are fatigued..? Coz if you are having mild CFS than it could be tretable (complete cure!!!)..I could be off help if you don't mind...

treehugginhippy
Regular Member


Date Joined Jun 2008
Total Posts : 30
   Posted 8/23/2008 2:43 AM (GMT -7)   

I have  had these symptoms getting increasingly worse for seven years.

The doctors are at a loss for treatment - am just given pain meds. Compared to people who are bed or wheelchair bound i am mild and am currently able to maintain work, albeit in a increasingly limited capacity (if nothing else) it is progressively deteriorating so where it'll end up i dont know.

I can best describe it like any time i do anything my energy goes within seconds, even slight exersion my joints and muscles ache and burn like ive been really working hard and long.  

I find that i need a walking stick to walk more often as time goes on. Which for somebody my age is thoroughly embarassing.

I hope you have had some answers which you find useful and if you need to ask more - you know where to find me.

Take good care Tree cool



Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 8/23/2008 7:31 AM (GMT -7)   
Raiden,
Have you investigated the Marshall Protocol very much? The guy who started it is not a medical doctor, has had his papers rejected by the medical journals, and his past looks a bit askew. For more information so you may form your own opinion please read Information about Trevor Marshall, Ph.D.

I personally do not believe his theories are sound when it comes to treatment, but that is my own opinion.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Raiden_2008
Regular Member


Date Joined Jun 2008
Total Posts : 63
   Posted 8/23/2008 8:24 AM (GMT -7)   
Tree Many thanks for your answer...could you tell me how was it when it first began and how the onset was like? do you have sleep problems? do you have any visible symptoms?when you talk about slight exertion what do you mean? Have you diagnosed yourself as a CFS patient or doctors diagnosed you..? do you have anxiety disorder?

treehugginhippy
Regular Member


Date Joined Jun 2008
Total Posts : 30
   Posted 8/23/2008 2:57 PM (GMT -7)   

When it first started, i was constantly dead on my feet, my memory was terrible and brain fog was a nightmare. I had a constant headache (which has never gone - having a headache for seven years is no joke) I kept going back to g.p who could find anything wrong. Consequently my work capacity has been progressively reduced to only being able to work bare minimum. 

After elimninating every other possibility they said it was m.e (although they never told me - i found out when he mentioned it in passing 'well with your m.e......' i was like YOU WHAT) Then he told me he didn't believe in it - so have just found a g.p who is helping.

Sleep is a constant battle that the first doc even overdosed me trying to control it. I have insomnia often and no matter how much sleep i get i never feel refreshed or even rested.
vision problems are only an issue when im particularly tired.
 
When i say slight i mean like the other day was strimming the grass with a domestic strimmer and would do 2' square and then had to sit down for 10 mins. Anxiety attacks are a more recent issue - intense attacks for no reason and irrational anxiety when in public around crowds.
 
Is this helpful?
Tree

Raiden_2008
Regular Member


Date Joined Jun 2008
Total Posts : 63
   Posted 8/24/2008 1:16 AM (GMT -7)   
Jeannie,

Our objective is to look/find for a tretment for people who are living with CFS. If MP can cure it (as they argue!!) then what's wrong in trying that!!! a single case of a child suffering from kidney problem does not prove that MP is not safe (again doctors who were treating the child did not do a clinically proven diagnosis that MP was solely responsible for the problem). There are thousand stories to prove that people have been feeling a lot better after being on MP.

His project was denied by FDA not because his theory was a complete nonsense but because of the budget he demanded....again there are proofs (for ex: Peptic Ulcer) which proves that initially many are rejected which later on become the standard tretment....

Finally I would say that all these are my personal opinions and this is a choice for the patients and their GP's. I hope this helps.

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 8/25/2008 7:39 AM (GMT -7)   
What I"m saying is that a more in-depth study of this 'protocol' should preclude jumping on the bandwagon. When a man who is not a physician is advocating different drugs for medical treatment of a condition, red flags go up for me, especially when these medications have strong side effects. I'm one of those 'double blind, randomized, placebo controlled study of the efficacy and safety' kind of people. Give me solid research and not testimonials and I'll start to listen. I have been living with Fibro and chronic fatigue for many years and have a wait and see attitude. Just cautious I guess.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

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