Hi Robert...I’m new to these sites, my first posting here. So, hi to everyone else out there in CFS La-La-Land, too. Only started using a computer and the Internet, again, recently. This, after more than 12 yrs of ongoing illness. Back then had to give up my own business as I couldn’t think, function and all the rest of it.
You’re “not alone”...not “losing your mind!” Although I know it can feel that way. I’ve been through the isolation that many of us experience with CFS. That’s where the aloneness and sense of losing one’s mind comes from. I felt like I was living on another planet for so long...and I feel like the world has passed me by because of all the changes in technology etc.
I’m encouraged by all of the ideas and tips for healing that so many people are sharing on this site...and at the ProHealth site. I can’t wait to start applying some of the insights.
Before I forget, Robert...and let’s face it (who can remember much with CFS) I have the irregular heartbeats, too. Not long ago, I read that Hawthorn...a natural herb preparation could help with this. I tried it, and for me, it has been terrific. The brand I mostly use is Medi Herb. It works very well for me when I’m not overstressed. I’m not saying, replace your medication with it. Yet, it may be worthwhile talking to a natural health practitioner or doing your own research.
And to improve the fatigue...I eat lots of dark berries. Anything else I can think of I can add at another time.
I had so many of my symptoms under control until about six months ago. But a major move – new stresses - and letting my dietary-guard down has put me back to where I was many years, ago. I know what I have to do. So, from yesterday I started doing the things I used to do (without medications) that made me feel so much better.
about the “depression”...I think depression is most probably a side-effect of many illnesses. Personally, I can’t believe that an illness (as profound as CFS) can be caused by depression. I mean, if depression caused CFS surely we’d be seeing many more millions of people coming down with this disease.
I hope it encourages you to know that I used to have severe esophageal spasm. It seems time (and perhaps the dietary changes I had made) simply healed it.
Good luck Robert...and all you other CFS warriors, out there! NewSky
Hi to everyone. I'm new to this but wanted to share a little of my experience with CFS. I got CFS two years ago. I ran a marathon and a week later couldn't get out of bed. I'm a very active person and went absolutely nuts not being able to do what I wanted and not being able to keep up my level of activity. I became very good at giving myself relapse's. As soon as I'd have a good day I'd over do it with exercise and be back in bed the next day (I'm sure most of you can relate to that).
After progressively getting worse this past summer (due to a stressfull event), a friend mentioned to me that he felt there must be some type of dysfunction in the mitochondria. I didn't have a clue what he was talking about, so I looked up CFS and mitochondria on the internet. I found a ton of information along with a forum similar to this with people talking about The Sinatra Solution. It's a book written by Dr. Stephen Sinatra. I bought the book and read it in two days, it's the best money I've ever spent in my life!! He gives a list of supplements to take for FM and CFS. I started taking them and in less than a week was back to myself. I've been taking...Co enzyme Q10, D-Ribose (my miracle supplement), Magnesium, along with my multivitamin (I don't take the niacin that he recommends). I call this combination my miracle cure.
The first week of taking it I started running 3 miles a day. Four weeks later I'm up to running 6 miles a day, hiking for two to three hours on the weekends, lifing weights 5 days a week and I'm back to work. I do go to bed early, and I started taking melatonin to help me sleep. I'm also in peri-menopause so not sleeping isn't just from CFS.
I don't know if this will help anyone else, and I'm not trying to "sell" anything, I just know what it's done for me. I would suggest reading "The Sinatra Solution" to anyone with CFS or FM.
I have to say....I'm still scared of it, because I feel like it's too good to be true, so I'm trying hard to keep my exercising under control and not over do it. I did run 10 miles one Sunday morning, because I felt so good, and had a very mild relapse the following week. I increased the dosage of ribose the following Monday and other than feeling some symptoms mildly and not running for two days I got over it in less than a week.
Good luck to everyone. Again, I'm not trying to "sell" anything...this is something that worked for me (after trying many different things) and I want to share the information to hopfully help someone else, even if it's just one person.