New here: The world has passed me by! Does anyone else feel this way?

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NewSky
New Member


Date Joined Oct 2008
Total Posts : 5
   Posted 10/9/2008 8:28 PM (GMT -7)   

Hi to everyone else in CFS La-La-Land. This is all new to me, after more than a dozen years away from business, computers, the Internet etc. Everything's changed dramatically. The world has passed me by! Does anyone else feel this way?

I've got CFS/Fybromyalgia and most other symptoms mentioned by other CFS members. It's been a long journey...isolation, suffering, loss of friends, etc. I feel like I've just returned from another planet...only to find that there are thousands of others' like me...out there! 

It's very enlightening reading about other people's stories...and the great healing tips that are offered. I had managed to get so many of my symptoms under control (meaning I felt better) until about six months ago. But a major move a year ago – possibly some chemical allergies - and letting my dietary-guard down has (just recently) put me back to where I was about a decade back.

I know what it took to make me feel better. So, I'm just starting to apply these things again - and anything else I can learn here, and elsewhere - to get back to feeling more functional...better. I once read, (something like) "an extreme disease requires an extreme remedy." So, being an optimist...I'm more than ready for the "remedy." Whatever "that" is. And whatever it takes!

I'm trying to make this as short as possible. But the first time I ever overcame one (agonising) symptom (about 1999) for the first time I felt like I was in control of my body...instead of the other way around. That encouraged me to try other things...that worked. I'm trying to keep my focus on a positive outcome...sooner rather than later! Because, as anyone suffering with CFS knows...fear sets in. It's times like this that I have to use self-talk. And tell myself..."you can do it!" And then go watch a good 'belly-laugh' comedy. That always helps.

I'm looking forward to feedback from other CFS warriors. Or if you just want to say Hi. Thanks...NewSky

 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/11/2008 6:31 AM (GMT -7)   
Hi and welcome. You've been on quite a journey with your health, but it sounds like you are finding some things that are starting to help. You are right that it can be lonely and islolating to live with an illness like CFS - I think you find out who your true friends are when you get really sick.

For some reason the CFS forum here isn't very busy. I try to check in on the forum at least every other day, depending on how I'm feeling. Others do stop by, but it can take a little while sometimes to get a response.

I'm glad you joined us.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
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haili
New Member


Date Joined Oct 2008
Total Posts : 5
   Posted 10/11/2008 9:21 AM (GMT -7)   
Hi everyone. I've been living with chronic fatigue since 1991 when I had to leave my job. I'm in my 70s now and still struggle at times to keep my morale up. People get tired of tired people; even close relatives, and think I don't try hard enough. I've found though, that I have to listen to my body. I'll push a bit but if I do too much I relapse and can't do much of anything.

I do manage to keep my house reasonably clean but my standards are much lower than they used to be. Social outings and shopping are really tiring and I do better puttering around the house with lots of rests in between. My driving has been really limited and I won't drive in traffic when I'm really tired. It will be interesting to read how other people manage this illness.

NewSky
New Member


Date Joined Oct 2008
Total Posts : 5
   Posted 10/11/2008 1:26 PM (GMT -7)   

Hi Haili...nice to meet you. Another CFS warrior!

It seems 1991 was a defining year for some of us. Because that year things started going wrong with my health. But much worse was to come from about 1996 onwards. I can so relate to the 'housework-driving-shopping' problems. I'm in my 50's and I just feel like a roughly 15-year slice-of-my-life has been tossed to the winds.

I'm so pleased, though, that we live in these high-tech-times so that we can reach out to each other via the Internet etc. Goodbye loneliness - hello world!

I'm very interested in herbs and I grow some kitchen/medicinal varieties. Some of these have helped, greatly. I hope to make some postings as time goes by...and my energy levels increase, again.

I once saw a documentary about the Salem witch trials in Massachusetts - I think it happened in the 17th century. The narrator said that the women who were burnt at the stake grew their own herbs. To help their families and others with ailments. Their simple remedies were judged as magic and witchcraft.

This may be my attempt at 'CFS-humour'. But at least I don't have to worry about being literally 'carted away' for growing and using my herbs!

Good luck to you...and everyone else on the healing path!  

 
 

haili
New Member


Date Joined Oct 2008
Total Posts : 5
   Posted 10/11/2008 1:51 PM (GMT -7)   
I don't know if I've done any healing over the years or just learned to go with the flow! Also, old age is tiring in itself so it's hard to know now whether it's chronic fatigue or old age. It's probably a combination of the 2. Could be arthritis or fibromyalgia - who knows? The doc says it's arthritis and he just treats each symptom, which is about all he can do.
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