Can anyone recognise him/herself in me/ my symptoms?...

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DarMar
New Member


Date Joined Oct 2008
Total Posts : 11
   Posted 10/24/2008 10:32 PM (GMT -7)   
 

Hi Everyone,

I am new to this forum and trying to find some answers to my condition....Hate going to the doctors as that hasn't helped at all.... mainly they either think I am "high anxiety" person, which is mild form of saying "crazy"... One doctor even told me that "what I need is a psychiatrist and she doesn't have time for me" (once I started crying and asking for help). Another one told me to go find another doctor as he can not find anything wrong with me - so talking about not being depressed? - who wouldn't be with conditions that I have: PLEASE HELP ME FIND OUT WHAT'S WRONG WITH ME :

I have been diagnosed with hypothyroidism for 7 years now and in spite of the treatment and my blood work showing "normal" I am feeling worse and worse every day. Current status:

- Extremely tired, not able to function;

- my thinking, concentration, memory, reflexes - chaos;

- my eyes, face muscles keep twitching... now occasionally, a year and a half ago the twitching lasted continuously for 4 months, from down to dusk;

- first my arms getting numb when sleeping or sitting still; now my legs too; not able to sit longer that an hour or lift anything;

- very slow metabolism - bowel movements once in 7-8 days, but loose and high in acid, causing my hemorrhoids to inflame;No urge to go at all, but sometimes would find my panties smudged - no control either;

- digestive problems and excessive burping even early in the morning as soon as I get up. Just air, no matter what I eat;

- cholesterol high - of course with all the toxins I am keeping in me;

- sleep disorder - not able to put more than 4 hours of sleep together, wake up every hour or two and feel like sleeping the whole day;

- body temperature low - I am cold all the time - had the heater by my feet all summer long;

- nails & hair brittle and lifeless;

- vision -used to be good, but lately, because tired - it's blurred;

- way too frequent bladder infections for 3-4 years now (would only get off antibiotics for a week or two and it starts all over again);

- not to mention the yeast infection after;

- menstrual problems - never mind the big blood cloths, but in the last two-three years in several occasions I would get my period all over again, just when it ends, so I end up with 2 cycles in a month; exhausts me even more;

- between the tiredness, bladder problems, hemorrhoids and yeast infection... don't really feel sexy at all;

- already have 3 surgeries on my right breast (when I was 14, at age 21 and just last year at 35) - last one was due to discharge from the nipple, due to "abnormality" as I was told, to remove the "bad" duct;

- I've had this scar on my left calf for years (even before diagnosed with hypothyroid) and after reading a lot now about Lyme make me believe that it was Lyme that causes all of the above problems - it's darker bronze skin colour now (used to be reddish 5-6 years ago) of about 2" long and 1" wide, with lighter, pale pink colour in the middle of 1/2". It's bumpy in the middle and smooth but flaky on the outside - just itchy from time to time, not always;March-April of this year, a dark bronze colour rash appeared on my back/lower neck area, cortisone and other 3-4 types of creams just made it worse. It would disappear and then reappear again;

There are probably more symptoms that are bothering me from time to time, like knee pain or hand-joists pain, headaches that I got used to and neck-pains that I keep stretching and exercising to relieve.... that are nothing in comparison to the fear of what else I should expect...

I used to be athletic and fit person, energetic and always on the go. I make sure I eat healthy and do believe that natural remedies and nutrition can cure any disease - I just haven't found what works for me... At one time I used Norwegian Kelp (Equate brand from Walmart) and that helped a lot (my numbness disappeared, my metabolism improved and my energy level was much better) - guess what: Equate decided to discontinue the production of this product and now I am trying all the Kelps that are out there... nothing helps the way that one did.... there must've been something more than just the Kelp in it - makes me wonder.

I should also mention that I used to live in Europe 6 years ago and now I am in Canada...

 Thank you for your help. Any suggestions - welcome


sleepygirl85
New Member


Date Joined Oct 2008
Total Posts : 1
   Posted 10/24/2008 11:28 PM (GMT -7)   
I have the same problems. (except for the vision, boob, and cholestrol) I know that my allergies play a part in it, and I did have Lyme's disease when I was little. Like 6 years old I believe.  I also have another symptom, I get horrible pain on the right side of my back around the kidney area.  If i don't drink enough water or stand for a long time it's pretty painful, I'd say like an 8.  My doctor did an ultrasound on my kidney and didn't see anything wrong, but then I had to move (for college) before I could get anymore tests done.  But if anyone else has these symptoms please post back to this!  I know how DarMar feels and this is a horrible way to live.  And maybe if I knew what was wrong with me, I could do something to feel better.

DarMar
New Member


Date Joined Oct 2008
Total Posts : 11
   Posted 10/25/2008 7:39 AM (GMT -7)   

Thank you for your reply sleepygirl,

Now that you mentioned allergies, I used to have hay feaver until 3 years ago.... and then that suddenly disappeared. At least now I can go outside and breathe.

As for the kidneys pain - I have all kinds of pain in my back and since I am most of the time on antibiotics, I can't tell what hurts and why.

I also forgot to write in my summary that lately my mouth and my throat gets really dry and feels like burning (I have to drink plenty of water/tea/something even overnight)... I believe this is because I am overdosing myself with kelp/iodine... feels better for the metabolism (bowel movements more often now - 2 times a week)...

Does anyone know what are the sideeffects of too much iodine in your blood. So far this is the only thing I see getting worse than before I started my intense iodine treatement.

Thanks again for all your support


Queen
New Member


Date Joined Sep 2008
Total Posts : 11
   Posted 10/25/2008 3:55 PM (GMT -7)   

Hiya

I used to have pains in the past with standing up for a long time. I had gallstones for a lifetime which were undiagnosed until recently which I had surgery for. Now i feel fine. hope this helps.

sleepygirl85 said...
I have the same problems. (except for the vision, boob, and cholestrol) I know that my allergies play a part in it, and I did have Lyme's disease when I was little. Like 6 years old I believe.  I also have another symptom, I get horrible pain on the right side of my back around the kidney area.  If i don't drink enough water or stand for a long time it's pretty painful, I'd say like an 8.  My doctor did an ultrasound on my kidney and didn't see anything wrong, but then I had to move (for college) before I could get anymore tests done.  But if anyone else has these symptoms please post back to this!  I know how DarMar feels and this is a horrible way to live.  And maybe if I knew what was wrong with me, I could do something to feel better.

Queen
New Member


Date Joined Sep 2008
Total Posts : 11
   Posted 10/25/2008 4:10 PM (GMT -7)   

Hiya Darmar

I used to get alot of twitching eyes and twitching muscles. But since I started taking calcium, this problem has settled. my hair was also falling out but since I have started calcium it has stopped. Low temperature can be a sign of infection or it can be a sign of low grade fever. As for your bowel movement, you may need to increase your fluid and fibre intake. Cut down on caffeine. Increase your fruit and veg intake. in the case of heavy periods you may need a blood test to check if your iron levels are fine because heavy periods can cause iron deficiency. hope this helps.

DarMar said...
 

Hi Everyone,

I am new to this forum and trying to find some answers to my condition....Hate going to the doctors as that hasn't helped at all.... mainly they either think I am "high anxiety" person, which is mild form of saying "crazy"... One doctor even told me that "what I need is a psychiatrist and she doesn't have time for me" (once I started crying and asking for help). Another one told me to go find another doctor as he can not find anything wrong with me - so talking about not being depressed? - who wouldn't be with conditions that I have: PLEASE HELP ME FIND OUT WHAT'S WRONG WITH ME :

I have been diagnosed with hypothyroidism for 7 years now and in spite of the treatment and my blood work showing "normal" I am feeling worse and worse every day. Current status:

- Extremely tired, not able to function;

- my thinking, concentration, memory, reflexes - chaos;

- my eyes, face muscles keep twitching... now occasionally, a year and a half ago the twitching lasted continuously for 4 months, from down to dusk;

- first my arms getting numb when sleeping or sitting still; now my legs too; not able to sit longer that an hour or lift anything;

- very slow metabolism - bowel movements once in 7-8 days, but loose and high in acid, causing my hemorrhoids to inflame;No urge to go at all, but sometimes would find my panties smudged - no control either;

- digestive problems and excessive burping even early in the morning as soon as I get up. Just air, no matter what I eat;

- cholesterol high - of course with all the toxins I am keeping in me;

- sleep disorder - not able to put more than 4 hours of sleep together, wake up every hour or two and feel like sleeping the whole day;

- body temperature low - I am cold all the time - had the heater by my feet all summer long;

- nails & hair brittle and lifeless;

- vision -used to be good, but lately, because tired - it's blurred;

- way too frequent bladder infections for 3-4 years now (would only get off antibiotics for a week or two and it starts all over again);

- not to mention the yeast infection after;

- menstrual problems - never mind the big blood cloths, but in the last two-three years in several occasions I would get my period all over again, just when it ends, so I end up with 2 cycles in a month; exhausts me even more;

- between the tiredness, bladder problems, hemorrhoids and yeast infection... don't really feel sexy at all;

- already have 3 surgeries on my right breast (when I was 14, at age 21 and just last year at 35) - last one was due to discharge from the nipple, due to "abnormality" as I was told, to remove the "bad" duct;

- I've had this scar on my left calf for years (even before diagnosed with hypothyroid) and after reading a lot now about Lyme make me believe that it was Lyme that causes all of the above problems - it's darker bronze skin colour now (used to be reddish 5-6 years ago) of about 2" long and 1" wide, with lighter, pale pink colour in the middle of 1/2". It's bumpy in the middle and smooth but flaky on the outside - just itchy from time to time, not always;March-April of this year, a dark bronze colour rash appeared on my back/lower neck area, cortisone and other 3-4 types of creams just made it worse. It would disappear and then reappear again;

There are probably more symptoms that are bothering me from time to time, like knee pain or hand-joists pain, headaches that I got used to and neck-pains that I keep stretching and exercising to relieve.... that are nothing in comparison to the fear of what else I should expect...

I used to be athletic and fit person, energetic and always on the go. I make sure I eat healthy and do believe that natural remedies and nutrition can cure any disease - I just haven't found what works for me... At one time I used Norwegian Kelp (Equate brand from Walmart) and that helped a lot (my numbness disappeared, my metabolism improved and my energy level was much better) - guess what: Equate decided to discontinue the production of this product and now I am trying all the Kelps that are out there... nothing helps the way that one did.... there must've been something more than just the Kelp in it - makes me wonder.

I should also mention that I used to live in Europe 6 years ago and now I am in Canada...

 Thank you for your help. Any suggestions - welcome


DarMar
New Member


Date Joined Oct 2008
Total Posts : 11
   Posted 10/25/2008 7:57 PM (GMT -7)   

Thank you Queen,

I have been taking vitamins, including calcium, but doesn't really help since I am flushing everything down the toilet (due to bladder infections). It's a vicious circle. I do put plain fibre in my cereal in the morning and take metamucil as well. I mix fruits with my fruit yogourt at night. As I said everything goes down the drain.

And yes, I do have low iron, however the hemoglobine is within normal. ???

I think I am going to try the niacin treatment suggested somewhere else in this forum. I read this link to Dr. Myhill's web page and everything made sense: it all starts with the heart.

When I was pregnant with my second child, I had to take extensive doses of some medicine to keep my baby. The doctor mentioned back then that it could damage my heart and that I need to take kalium to protect it... That never happened, I had my son and by the time he was 1 year old, I had extreme palpitations, night and day, not even the strongest sleeping shots helped.

I had, and still have these palpitations from time to time, if my sleepless nights continue for more than three consecutive days. It really helps to take a nap in the middle of the day, usually when I come back from work, even for ten-twenty minutes.

So, I am starting with the niacin tomorrow and will let you know the outcome in a month. yeah


redee2moov
Regular Member


Date Joined Nov 2008
Total Posts : 68
   Posted 11/10/2008 8:33 PM (GMT -7)   
I eliminated many numbness issues and eye twitching with a yeast cleansing diet about a year ago (oh I do love my bread mmm).

But it was part of a larger change in diet, guided by a professional.

My wife had restless leg syndrom. Her hemoglobin as fine, but her iron reserves were low. Iron supplements stopped her RLS.

Based on your other comments, you sound a bit acidic which can directly damage nerves.

You bowel movements seem to be a real acidic cycle. Diarhea burns the intestinal lining on down to your hemorhoids so everything shuts down to heal . Several days pass (partly because the damage to the intestinal lining inhibits the sensation to move things) then another part of the body says "can't hold back no more" so it lets go all the acid build up again (is there any firming of the stool or constipation at all in the sequence?) and the cycle begins again, each time damaging things further. In the process nutrient absorption has got to be awful, (no surprise you're low energy).

Low body temp can be associated with hypothiroidism (as the thyroid is the body's thermostat). If you experience hot times as well that would increase the likelihood. The low grade fever mentioned by another responder seems like a good possiblity when you look at all the other factors. (my 25yr old daughter has had a thyroid condition since birth)

You say you eat healthy, but what is probably healthy for one person would probably give another all sort of issues (raw vegetables are off my diet 75% of the year). The question is do you really know what is healthy for you?

Is what your eating supporting your health or adding to the problem. Aside from avoiding coffee and colas, hot spicy foods, and sour fruits, I would tend to suggest you add some bitter foods to your diet (i.e. endive or dandelion greens, without sweetners. Licourice is a great spice for countering acid burn and it is a natural anti-inflamatory, drink it as a tea, preferably cooled), but I would also suggest you look for a good nutritionist that you can trust (and whose knowledge goes beyond the old standards or latest dietary buzz words.) Check out "The Ayurvedic Cookbook" by Amadea Morningstar.

Good luck with your healing journey

DarMar
New Member


Date Joined Oct 2008
Total Posts : 11
   Posted 11/13/2008 9:01 PM (GMT -7)   
redee2moov said...
I eliminated many numbness issues and eye twitching with a yeast cleansing diet about a year ago (oh I do love my bread mmm).

But it was part of a larger change in diet, guided by a professional.

My wife had restless leg syndrom. Her hemoglobin as fine, but her iron reserves were low. Iron supplements stopped her RLS.

Based on your other comments, you sound a bit acidic which can directly damage nerves.

You bowel movements seem to be a real acidic cycle. Diarhea burns the intestinal lining on down to your hemorhoids so everything shuts down to heal . Several days pass (partly because the damage to the intestinal lining inhibits the sensation to move things) then another part of the body says "can't hold back no more" so it lets go all the acid build up again (is there any firming of the stool or constipation at all in the sequence?) and the cycle begins again, each time damaging things further. In the process nutrient absorption has got to be awful, (no surprise you're low energy).

Low body temp can be associated with hypothiroidism (as the thyroid is the body's thermostat). If you experience hot times as well that would increase the likelihood. The low grade fever mentioned by another responder seems like a good possiblity when you look at all the other factors. (my 25yr old daughter has had a thyroid condition since birth)

You say you eat healthy, but what is probably healthy for one person would probably give another all sort of issues (raw vegetables are off my diet 75% of the year). The question is do you really know what is healthy for you?

Is what your eating supporting your health or adding to the problem. Aside from avoiding coffee and colas, hot spicy foods, and sour fruits, I would tend to suggest you add some bitter foods to your diet (i.e. endive or dandelion greens, without sweetners. Licourice is a great spice for countering acid burn and it is a natural anti-inflamatory, drink it as a tea, preferably cooled), but I would also suggest you look for a good nutritionist that you can trust (and whose knowledge goes beyond the old standards or latest dietary buzz words.) Check out "The Ayurvedic Cookbook" by Amadea Morningstar.

Good luck with your healing journey
Thank you for your reply. I think you are right - I guess I am filled with toxins and the viscious circle never stops... My problem is I run into incompetent doctors that run simple tests only and make a quick conclusion: "you are good, eat less meats and eggs and your cholesterol will be fine ... the thyroid levels are good... so, you are good." ... I feel like crying when they say that to me, knowing that not one single cell in my body is entirely good and healthy (i can't eat meats because all my teeth hurt and my stomach doesn't accept the eggs, so I don't eat them either - I mainly eat fish and chicken and steamed vegitables). All my friends are teasing me: "Maybe you should eat more garbage food instead - eating healthy doesn't seem to help"... that doesn't help either.
I got a detox kit that was on sale and took double dozes... Nothing the first 3-4 days, then started emptying a little bit... but the burning (hemoroids) doesn't stop... vaginal yeast infection - crazy ...
Let me know your recipe for bread... or cleansing diet you mentioned.
I did reaqd about the book - sounds interesting - I should look it up in Indigo.. Thank you again. I appreciate your input.
 

redee2moov
Regular Member


Date Joined Nov 2008
Total Posts : 68
   Posted 11/16/2008 8:50 AM (GMT -7)   
Hello Darmar

Your yeast infection could probably be helped with a yeast (more specifically Candida) cleanse. The one I used was prescribed to me, based on my body type. I would be somewhat apprehensive about recommending it to others. I am only an expert on myself.

It was fairly intense; a 4-6 weeks regiment. Morning and night I had to drink a concoction of Psylium powder, Caproyl, and another item that I would have to search my files for.

I had to abstain from all sugar, even fruit, for the first 2 weeks, and longer if I could manage it (extremely hard with my major sweet tooth, but I did pretty well with it). Little to no carbs either for that first couple weeks. I could eat a fair amount of meat, mostly chicken (slow cooked and finelt chopped to aid digestion), and all the cooked vegetables I wanted. I also had to avoid anything fermented or relating to a fungus, so no pickled products, no wine, no mushrooms, no peanut product, (because of their tendency to be moldy).

It was challenging, but had great results. My main problem, being generally thin build, was the major weight loss I experienced and the coinciding energy drain. My nutritionist cut the cleanse short. But I had cleared out enough yeast that she was satified as long as I didn't relapse with my daily diet.

I don't totally avoid yeast free foods but I have done very well to keep both my yeast and sugar intake very minimal. My weight is back, I workout several times a week and my energy is much better (not like it is when I have an energy drink, but certainly more consistant).

My one concern with passing on the recipe is that I am typically constipated. This cleanse loosened me up pretty well. If you are usually dealing with diarhea, I am not sure what might happen for you. I would present this to a good professional.

Your hemorhoids sound miserable. I can relate, but probably not as regularly as yours sound. The flair ups I experience come in two forms; after being irritated by a BM, or just prior to a BM (they seem tied to the nerves that trigger elimination, just a defective version of the function). Based on that, your diahrea would increase the number of flair-ups, and with little opportunity for healing your pain is constant.

Because of my constipation I gain the benefit of having a few days for healing should I need it (good for the hemorhoids, bad for my colon), when I do have a BM I alway lubricate to minimize irritation. For flair-up from straining or a slow coming BM I use a series of home remedies.

If you can catch a break from the diarhea (without creating constipation) that could buy you some healing time. Using a salve prior to a BM could help protect the surface from the acid burn of the diarhea. I would suggest a salve over a cream for better potection.

Hemorhoids are an inflammation, that, in part, equals heat and of course swelling, so anything that cools and minimized the swelling can provide relief.

Like an inflammation from an injury, when possible, I raise it (I am not shy about slumping over a bed or couch with my butt in the air, at the very least lie on your stomach rather than sit, and no seat-donuts they can actually increase the swelling). If I have to work I stand at my desk rather than sit (tell people your back is bothering you). I will apply a salve (hydrocortisone is an obvious choice, I also use some other cooling type salves). For fast acting relief I will apply an ice pack (easiest if applied with your butt up, but I have a few I use for when the flair up happens at bed time. Or step in the shower and run as cold water as you can bear at the target; it cleans and cools.

Cool air is very helpful, so loose clothes (or no clothes, if an option, especially warm summer nights). I sleep with a small pillow between my knees to minimize the heat from my thighs adding to the problem). Sit on chairs that breath (mesh seating is way better than the cushiony leather or vinyl seats).

This all sounds intense, but really you find a few thing that work for you or you rotate the remedies as the need presents itself. I am an experimentor by nature so I'll try anything once, and I now have a grab bag of options. Now I am getting serious about getting rid of them altogether.

I really think one of the first areas you should focus on is diminishing your diarhea. Again with caution toward avoiding constipation, try food that would decrease the acid by limiting acidic food, eat cooling food such as raw vegies, cool drinks, dairy products would probably be helpful, you can probably do well with beans (odd as it may seem). All of these of just ideas, don't take them verbatum. Check out the cookbook I suggested for some direction, and seek professional assistance if possible.

My wife is acidic, I am alkaline. She is working to cut down her acid, I take hydrochloric acid pills. She can eat almost anything and it moves pretty easily through her (sometimes like you, too easily) I have difficulty digesting a variety of things so things get stuck. So keep looking to find out where you fit.

Good luck! I'll be watching for updates.

coldincanada
New Member


Date Joined Nov 2008
Total Posts : 3
   Posted 11/21/2008 5:05 PM (GMT -7)   
DarMar: I'm a fellow Canadian . I don't think our nationality has anything to do with our ailments though.

Trying to put it simply; I've pretty much walked in your shoes, medically speaking there was nothing wrong with me (although they never did a check on my thyroid) although when I finally stopped seeing a rheumatologist (with a fantastic rep) and requested a pain center, they diagnosed...hmmm let's see?? anxiety disorder,chronic pain, what else? oh prescriptions? narcotic patch (that added to my toxic intake and made me SO sick), really strong meds... nothing worked.

Enter:? HOMEOPATH...... much patience a general rebuilding of my GI tract (I think destroyed by so many nsaids and other meds) that they made my health worse. Now? 5 years later? not completely better (don't think that will happen, but then am so much older now than when all these symptoms started 28 years ago, so don't expect miracles :-) ) Find yourself a GOOD homeopath and then stick with it, it takes alot of patience, but I tell you it works.....like magic. I used to get sick and stay sick, now something goes wrong.......and ...... I can self regulate, or with the help of an osteopath and homeopath. These are all covered by health plans (like Blue Cross) btw. I'm in Quebec so we have general medicare which the gov't runs but doesn't allow for homeopaths. If you're like I was you'll try ANYTHING, but reading your symptoms point so much to a general overload of toxins and your GI tract is so messed up from antibiotics etc.. it's a vicious circle. For the record I've tried: medical doctors (specialists & GP's) naturopath, homeopath, osteopath, chiropractor, accupuncture, psychologist (yup was all in MY head too lol) NLP (Neurolinguistic Programming) massage therapy..... even did a full BA at university trying to get to the bottom of 'what ailed me' (that was an added bonus actually).

Go for it .. be proactive, don't wait for someone to cure you........Monday morning....make a call and help yourself onto the road to healing. A cleanse is a good idea, but not for you right now, your GI tract sounds like it's raw and inflamed, heal it and then go with the advice of your homeopath. Good luck! yeah

Orzelro
New Member


Date Joined Nov 2008
Total Posts : 3
   Posted 11/21/2008 6:41 PM (GMT -7)   
Hello
Today is my first time on this site. I am here to share my success. I had most of your problems and this is what I know works for most people. You will have to be patient and keep trying until you get it right for your body.
There is much info so bear with me please.
Here is a list of things to do:
Thyroid problems: If your temp. oral is below 98.6*  even if you are on a synthetic thyroid hormone then it is not working for your body and you need Armour. It has T3 and T4 in it and it works much better than synthetic form. Also, take your temp 3 times a day . If it stays around 98.6 or goes to 98 * don't worry about it. If looks something like this 97 *,97.6*, 96.5*  You need to get and take some Armour Thyroid .
Also, take iodine average person needs about 12mg daily. That is the amount the chinese people on traditional diet consumes daily. Too much iodine actually suppresses the thyroid so be careful.
 Detoxify your colon.
Stop eating grains. Eat only grassfed beef; and chickens that are raised in a natural environment.
Wild salmon, veggies and fruit. Never eat sugar . No chemical soft drinks. Quality water.
Take probiotics lactobacillus bulgaricus as well as L.acid. and bifidus.
Find an antiaging medical doctor and that doctor will give you the Armour and check your female hormones and if out of range put you on bioidentical hormones. Bioidentical hormones are amazing . They make you better and lower your risk of disease. According to what I have read.
 
When your thyroid hormones are low and body temp low you will have difficulty with healing and be prone to candidiasis. Must take natural products to control candidiasis.
 
Use the Rife method to get rid of lyme disease. It works. It saved my life. I was actually dying from it. Was totally bedridden weighed 83 LBs lost half of my vision, unable to eat very much, in a wheelchair 100% for almost 4 years, severe neuropathies ALL OVER MY ENTIRE BODY, . I was a runner, competative horsewoman, weightlifter and ball room dancer that ate healthfood. After 4 years almost left for dead from IV antibiotics ythe LORD lead me to a cure. I take the drug Mepron and use the rife machine now for 2 years and I am MUCH better. The Lord delivered me from the wheelchair Christmas Eve 2007.
I recently no longer need a cane.
I also take b-12 shots. I was taking as much as 25,000mcg daily now I only use  as needed.
royalrife.com  and lymebook/resources.com I highly recommend.
I now recently can actually sleep an entire night and not have to take naps during the day. No more neuropathies. Also I always had Chiropractic care. Find a chiropractor that uses a technique that you like. There are so many ways to get your spine adjusted some use instuments that don't hurt at all and don't crack you so there is no need to fear.
After adjustments it would help me function better.
It keeps your nervous system functioning properly.
Also , I take a green drink several times a day. (Consentrated fruit and veggie drink) The one I use has 10 servings of veggies per scoop. Plus an antioxidant drink like Mangosteen
really helps me.
I only take a few supplements and they are concetrated food supplements natural B vitamins only plus high vitamin cod liver oil a must.
You must feed your nervous system. I also don't have a problem eating dairy. I only take organic yogurt. I feel for you but I want you to know there are answers to your problems. The problem is NOT you it is your choice of doctors. You don't fit in to their cook book receipe treatments. An antiaging doctor  is usually well versed on your problems. If you are not satisfied with the first one go to another one. Susann Summers has a new vook out and she interviews the top antiaging docs in the U.S. get the book and call one of those docts they sound like they know what they are doing.
My lyme doctor is a very caring Christian man and referred me to the antiaging doc and with all of the above I am getting my life back.
Trust the Lord and He shall direct your path.
 

DarMar
New Member


Date Joined Oct 2008
Total Posts : 11
   Posted 11/21/2008 10:59 PM (GMT -7)   

Thank you all very much...

I have been reading a lot and the more I read the more confused I am. One thing I know - you are giving me far better suggestions than any doctors so far.

I just had a visit to a neurologist's office couple of days ago and since he couldn't find nerve damage (by sending electric shocks through my nerves) he made a clinical dx - I have carpal tunnel syndrome and need to wear arm braces - yeah right. When I told him I don't believe in that since I don't do any repetitive movements that would cause that, besides I need my other symptoms connected as well... asked if he would give me braces for the legs as well since they are getting worse... He then said "would you be happy if I sent you for MS testing??" - as if he needs to get rid of me and make me happy at the same time...

I am suspecting lyme quite some time now, but I can't figure out when did I got it, since when do I have it, how long do I have it. Do I have it ever since I was 11 yrs old? Ever since my first messed-up period? I don't remember being sick before that. Although I do remember being very very sick the summer after my first period with high fever, being unconscious for 3 days - never knew what caused it...

On the other hand, if I have it for 25 years now, I am then doing quite well - still on my feet, still able to use my hands, still trying to use my brain (have university degree and working on a second degree - ..very difficult, not the way I used to study and memorise stuff.. but I can't give up). Also, I don't leave my house unless I have make up on and fresh hairstyle - which does hide well all my anomalies and the doctors say "you look good, nothing is wrong with you".

Bottomline - I have to find a good doctor, but I am very limited... and also, I just heard of a new doctor that is very good, the wait for an innitial appointment is 3 months and then another 3 for the next appointment.

From just a simple vitamin or mineral defficiency, to nutrition malfunction, to Wilson's temperature Syndrome (yes I have very low temp - usually below 96. It will only increase several days before my period and then drop again), to Candida overgrowth Syndrome, read also about a Heart deficiency that results in all of these syndroms, to MS and Lyme... too much - all with similar symptoms.

Don't know where to start - currently taking my thyroid pills, cleansing - detox herbs, kelp, lots of garlic and sauna every day...started using the garlic pills as supositories instead for better effect killing the yeast... and - I only used to have bowel movements once a week (I was told doctors call it "dumping syndrome"), now with the detox -every second-third day. If I stop the detox pills - back to weekly again - clogged up.

Thank you again - at least I don't feel alone anymore - until the next weird symptom...

 

 


redee2moov
Regular Member


Date Joined Nov 2008
Total Posts : 68
   Posted 12/1/2008 7:42 PM (GMT -7)   
Three different, but strong examples above of positive health changes, that's a piece of hope to carry around in your pocket!

When info overload hits, step away from it for a while, and just breathe. Leave the books lying around. When the moment is right, you'll find yourself picking them up for reinforcement or comparison. In time their value, or lack of, will manifest istelf on its own with out the strain of "more confusion." But you'll gain knowledge.

Your willing to search, your bound to discover. I'll be watching for updates. Best wishes!

Just Wondrin
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/4/2009 2:41 PM (GMT -7)   
I have quite a few of the symptoms mentioned in other threads above, including carpal tunnel showing up out of nowhere. I have low body temperature, usually in the low 97's or upper 96's, trembling, carpal tunnel, excessive sudden weight gain, losing my eyebrows, achy joints, low libido, achy joints, tired, low ambition, anxiety/depression swings, muscle cramps, dry skin among others. I finally got into a doctor who addressed my low body temperature and he told me that I have Wilson't Low Temperature Syndrome and you can read about it at http://www.wilsonssyndrome.com . The symptoms are just like hypothyroidism because it shuts down your metabolism and causes all kinds of problems to your body. T3 is most affected and you'll usually have "normal" blood tests. I've just started Armour thyroid and hopefully soon it'll get worked out.

looking2
New Member


Date Joined Jul 2008
Total Posts : 13
   Posted 1/6/2009 11:20 AM (GMT -7)   
 
Well if I may tell you about my solution to the whole "whats going wrong with my body" and whats cusing it and how do I fix it. I was very sick for most of my life and tried just about everything you could think of but nothing ever seemed to work weather it was a medication or herbal or whatever but 1 common factor I did notice was that inflimation was throuout my body so I decided to see what may be causing it ....remove it "if Possible" and see what would happen to me then. Well....for me that was the problem....I removed the inflimation from my body and within 3 months I was on my way to full recovery. Its been 3 years now and I still feel great....Its a lot to explain...so I suggest you do some reading on thinkriteherbals. This is REALLY made me better....hope this helps.
 

nrthngrl
Regular Member


Date Joined Jun 2008
Total Posts : 56
   Posted 1/9/2009 10:13 PM (GMT -7)   
only thing I can add is get your B12 levels checked..........
IBD(undetermined) 04-'07....Gastritis 04-'08....Fibro & CFS dx 06-'08....(GERD, IBS dx's 2001)
Asacol & Buscopan-IBDOmerprazole-Gastritis, Nortriptyline-Fibro/CFS, Pramipexole-Fibro-CFS,  
Diazepam, demerol for pain
b12 inj, fish oil, folic acid, probiotics. 


LF1980
Regular Member


Date Joined Jul 2008
Total Posts : 78
   Posted 3/11/2009 7:38 PM (GMT -7)   

Sounds like Lyme disease. Please try to see an lyme literate doctor.  Let me know if you need the name of a great lyme doctor in your area. If you have been tested for lyme please know that the tests are unsophisticated and only pick up a handful of strains when there are hundreds. I have experienced much of the same symptoms and after visiting several doctors, I finally found one who helped me.

You should not have to live like this. Please let me know if I can help.

good luck.


Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 3/11/2009 11:59 PM (GMT -7)   
It sounds like you should see a Neuologist at some point. I'm not a doctor by any means. I'm only suggesting and get the vitamine and metibolic blood work done. See what that report has to say.
 
Hara- Fibro, Major Depressive disorder, Anxiety, Diabetis, Sleep Apnea

coldincanada
New Member


Date Joined Nov 2008
Total Posts : 3
   Posted 3/18/2009 7:50 PM (GMT -7)   
Question for looking2:

"I decided to see what may be causing it ....remove it "if Possible" and see what would happen to me then. Well....for me that was the problem....I removed the inflimation from my body"

I've heard of this technique, but how did you do it? remove everything and slowly build back? in otherwords, what was IT?

Thnx

One other thing for DARMAR: only a suggestion, but try BIO K, I buy it at Loblaw's and I can almost guarantee it will cure your constipation. It's kind of like yogurty/sour cream tasting, it's about $20 for six little pots. BEWARE follow the directions, DO NOT drink a whole one on your first day, a little goes a long way. It will restore your natural flora and fauna in your inners...someone in this forum mentioned it but not by it's commercial name. I buy the mango flavoured ones because they are non dairy and when I'm taking antibiotics like right now (bronchitis) they prevent yeast infections... seriously it works, for everyone. They don't taste great, but you'll get used to it and learn to almost like it when you realize how much good it does you. It won't cure all your ailments, but boy do I remember the bad old plugged up days Google it smilewinkgrin shocked

Post Edited (coldincanada) : 3/18/2009 9:01:03 PM (GMT-6)


ttlittlestar
Regular Member


Date Joined Jul 2007
Total Posts : 296
   Posted 3/30/2009 6:33 AM (GMT -7)   
It sound like Lyme to me. Check out the Lyme forum. And for anyone who ever had Lyme in the past--Lyme does not really get cured. It goes into remission and can come back.

Deb25
Regular Member


Date Joined Apr 2009
Total Posts : 319
   Posted 5/7/2009 4:12 AM (GMT -7)   
I want to add to this discussion.  I think all of you with the same and similiar symptoms should get tested for celiac/gluten intolerance.  People do not understand, gluten is poison to many of us, and when you continue to eat gluten, your body fights back with all of these are problems.  Many people with MS, are gluten intolerant, same with fibromyalgia, CFS, neuropathy, etc.  Gluten prevents your body from absorbing vitamins and minerals that you need, then all these other problems jump on the bandwagon.
 
All of you should have your B12 levels checked, B12 deficiency is serious.  Vit D deficiency is very serious, low iron levels and gluten intolerance walk hand in hand.
 
Feel free to email me.
We urge all doctors to take time to listen to your patients...don't "isolate" symptoms but look at the whole spectrum.  If a patient tells you s/h feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!


emily837
New Member


Date Joined May 2009
Total Posts : 10
   Posted 5/14/2009 8:28 PM (GMT -7)   
did you by chance feel better when you were pregnant with your children, and then revert back to all the symptoms when your pregancy was over?

I did, and even though I was diagnosed with CFIDS when i was 15 it turned out i had a wierd little problem with my heart and blood pressure that caused intesnse exhaustion becuase i wasnt' getting a steady level of oxogen in the brain. It was diagnosed on a tilt table test at a cardiologist 10 years after my original diagnoses. the tip offs were the tingling sensation, dizziness, exhustion, sleeplessnes, and sleepiness, low blood pressures and a whole hoard of other weird little things.

I dont' think this would explain ALL your symptoms, even if you did have it, but if you get better when you are pregnant, it can help point you in a few new directions....
Chronic Fatigue Immune Dysfunction Syndrome, Neuro-Cardiogenic Syncopy, Endometriosis and Abdominal Scarring/ Adhesions causing severe chronic pain. Recent Neurostimulation Therapy Implant Surgery.
Long Term Depression and Anxiety---but on the awesome side-- Mommy to three, married 13.5 years and Still twitterpated!!


RR75
New Member


Date Joined Jan 2010
Total Posts : 2
   Posted 1/19/2010 5:22 AM (GMT -7)   
Hi all. This is my response to a more specific person's thread but I really belive the advice remains the same for all ME/CFS sufferers and I hope you follow up on it as I too have lived through so many of these debilitating (and exactly the same) symptoms but an now finally over 99% of them.


“Cake, I hope you are still okay and reading these messages!! This will be brief as I'm affraid I don't have time but PLEASE LISTEN to my advice. My story is sooo similar to yours. Young healthy, fit, trip to Australia (Cairns et al), followed by sudden loss of energy thereafer followed by 5 years of deteriationg health et al (usual terrible CFS / ME symptoms), seeing hundreds of doctors, no answers, nothing specifically showing up in blood tests, finally the "it must be psycological" repose which we all know it isn't. ANYWAY after 6 years of desperation I found Dr C Jadin (via a post like mine) (she practises in South Africa and Europe). AND SHE HAS SORTED ME OUT - SERIOUSLY. You almost CERTAINLY have a Rickettsial infection (ie tick / Lyme), the problem is that our medical tests are not developed enought to pick up all these infections however they can be treated with heavy repetative courses of over the counter tetra-cycline antibiotics. If you can't actually she her get your doctor to follow her programme (this could be half the battle as doctors won't give antibiotics if they have negative blood tests! This is way so many of us don't get treated as the test come back negative, yet it is the cure.) Good luck and I really hope you follow up on this! (PS I actually note someone mentions her in an earlier thread!)”

merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 1/19/2010 7:19 AM (GMT -7)   
I didnt read all the replies but it could be that your Lyme is back or never left. When a tick bites you, you can get multiple diseases. Most docs do not test for those. If I were you I would find a Lyme doctor by going to the Lyme forum.

one of the other diseases you can get from a tick by or by flea bites is bartonella. Bartonella is known for attacking your gut.

good luck
Chronic Lyme Disease
Fibromyalgia

Chronic fatigue syndrome

Polycystic Ovarian Syndrome

Sleep Apnea

Hypothyroidism

Adrenal Fatigue

Type 2 Diabetes


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/19/2010 1:58 PM (GMT -7)   
Hi DarMar,

Everyone has given you a lot of great ideas. I was going through something similar myself, and in the past 2 years have been diagnosed with: autoimmune hepatitis, rheumatoid arthritis, fibromyalgia, lupus, Raynaud's syndrome, sleep apnea, degenerative disk disease, celiac disease.....well, you get the picture. Just look at my signature! 90% of that was dx in the past 18 months!

I was frustrated beyond belief because I still had these neurological symptoms that were NOT explained by ANY of these diagnoses. So I went to my neurologist and asked him to test me for Lyme disease and B-12 deficiency, plus I wanted another brain MRI, spinal MRI, spinal tap (lumbar puncture), etc. etc.

I told him I wanted to "rule out" Lyme disease, B-12 deficiency, lupus cerebritis, multiple sclerosis, etc...

Guess what! I have LYME DISEASE! I have no idea when or where I got it, 'cause I'm not really the outdoorsy type, but I think it explains the explosion of autoimmune disorders I've had in the past 18 months! BTW, I've heard that Lyme can both trigger autoimmune diseases and fibromyalgia AND mimic autoimmune diseases and fibromyalgia.

So it's all very confusing....but I'm starting on the antibiotics to kill the Lyme this week.

I really do hope you find all of your answers. I know how hard it can be, but you just have to persevere and advocate for yourself....insist that your doctor listen to you. If he or she won't listen, find another doctor!

Good luck!
((((hugs))))
JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com

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