Hello!! New to forum & have a question

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Veteran Member

Date Joined Jun 2008
Total Posts : 716
   Posted 11/27/2008 3:15 AM (GMT -6)   
  Hi, I am new to this forum & I have a question.  I was dx'd with Fibro about 4 yrs ago & always told my Dr I could feel something else going on besides the Fibro.  When I am flaring with my fibro I can still pace myself & get things done unless it is a bad flare.  She sent me to a Rhuematologist (sorry about the spelling of that) who finally dx'd me with CFS. 
For the last 3 years when October rolls around I become totally fatigued, can't hardly move & spend through February this way.  I become depressed, I take an antidepressant for that & got myself a full spectrum light but they didn't help during the winter.  I have flulike symtoms, acid reflux, nausea & live in pj's & bathrobes.   Then, come Spring, it lets up & my Fibro symtoms come on for the rest of the year.  From all that I have read this is par for the course with CFS.  Now, finally, my question: 
It is late November & I don't have any of those symtoms.  Oh, I have flares here & there & I have been waiting for the "other shoe to drop".  I have so much energy this winter I am afraid I am dreaming.  Is there such a thing as having your CFS go into remission?  If so, is this a permanent thing?  Can it last for months, years?  I hope so.  I keep worrying & waiting for that awful fatigue & then worrying & waiting for all of this "worrying" & "waiting" to really bring it on.  LOL
Glad to meet you all, this is a wonderful forum.  Thank you.  Denise

Post Edited (jewelrylady) : 11/27/2008 1:18:00 AM (GMT-7)

Regular Member

Date Joined Jul 2008
Total Posts : 368
   Posted 12/23/2008 11:08 PM (GMT -6)   
I was diagnosed with fibromyaliga approx 3 years and have the chronic fatgiue for this last year.  I see a pain/rheumy spec and he has put me on narcotics because the pain of the fibro was bad but now I sleep so much in the day I cant think clearly and although pain eased heaps there is still always the pain.  I think I  know how you feel.    sue2z sad sad
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica

Regular Member

Date Joined Jul 2008
Total Posts : 56
   Posted 12/25/2008 9:14 PM (GMT -6)   
Hello Sue
I know just what you are asking as i also go through this, I may be down for five -six weeks that i can do nothing and just like that it is gone, to me this is a flare of the fibro, CFS goes along for the ride with fibro in alot of the cases, you never know when it will hit or onces it does when it will leave.
This past summer I was in such a flare for all 3 months and just like that it left and I was fine, well had the fibro pain but, not the bad pain from the flare. CFS sometimes will pop its ughly head up by it`s self also and i will feel tired  alot, i really have to push myself everyday just to move.
It is bad enough to have the Dr. tell you that fibro is dogging your tail but to find out you can`t run from it because CFS has already got you is a bummer (lol). I hate going to te Dr. as he just keeps finding more things to give to tack on my already full list, and as far as meds are i must own the pharmacy by now. ha!
Fibromyalgia,Osteoarthritis,Chronic Fatigue Syndrome,Psoriasis,,Low Thyroid.Migraines.
Levothyroxine,Sertraline,Estradiol, Nabumetone, Lisinopril, Methotrexate, Amitriptyline Trazodone, Requip, Imitrex, Topamax.

Veteran Member

Date Joined Jun 2008
Total Posts : 716
   Posted 12/26/2008 2:39 AM (GMT -6)   
Thank you both for the answers, I am sorry but it does help to have others know what you are feeling.  I wish this wasn't so,  cry     I think I understand, from both of you, that this is just what it is.  Fibro with a CFS tag along.  I guess it really doesn't matter which or what it is, just that it is.  The other "shoe" did drop about 3 weeks ago, I have been so tired & my arms & legs feel like I always wear 20 LB wights on them all the time.   I have been battling depression since it started.  Thank you both for understanding what I go through.  I hope you both feel better, Spring will come!!  Love & hugs, Denise

 I have:  Fibromyalgia, CFS, Holt-Oram Syndrome, nasal allergies, depression

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren.

Veteran Member

Date Joined Oct 2008
Total Posts : 1683
   Posted 12/26/2008 6:10 AM (GMT -6)   

It IS possible to go into remission- its more like you go through a REALLY rough patch then one day, your energy levels have improved and the weight is lifted a little. i have my good months, i have my horrible months.

Take care and all the best,

Maz XX

            'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)                  
Panic Disorder, Agoraphobia, CFS, Fibromyalgia, TMJ disorder, Endometriosis, PCOD, Chronic E.N.T infections, Reactive Arthritis, GERD, Sinusitis, IBS,  Allergies, Glandular fever, Migraines, Anemia, Chemical/Noise/Light sensitivity, Trichotilomania, PTSD, Seasonal Mood  Disorder, OCD, Benign Vertigo,  Impaired immune system. Tachycardia, tinnitus, low clotting factor= bruising. Tendonitis, Bursitis.
Meds: Zoloft 150mg. Xanax 4mg. Celebrex. Mobic. Panadeine Forte. Digesic.
Multiple surgeries- I bear the scars of my poor physical health.
Age:28. First diagnosed at 14. Proud Aussie.

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