I have: Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety
Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11
Thank you soooo much for that lovely reply. I was off to sleep, not feeling very good about his problems, mine and ours. It is a very hard thing when couples are not well at the same time and to watch each other suffer is heart breaking. I feel helpless and try to reassure him and we share our faith, which is a must with us. Stress definitely causes my leg pain to flare and only now am I beginning to come to terms with my own chronic pain. Your message to me was so kind and I can't thank you enough. He was always the caregiver. He took care of his dad for many years when he was young and for him now to just to be able to get to the couch is hard and he had such a bad day today. Thanks again for your compassion and bless you truely. Are you saying the cold weather makes it worse? We are in Arizona, it's not super cold but colder of course than any time of year. I'll let him know what you said.
Denim, I forgot to ask you if your husband was checked for asthma? If you have already told me please forgive me, the Fibro fog takes away my memory. There is such a thing as exercise induced asthma, it could also be asthma (not meaning in a lesser sense but can't think how to put it).
grayeagle, it is nice to meet you & welcome to the forum. There is a wealth of information here & lots of answers. I also go to the Fobro forum, you should check that out. I am sorry you had to quit working. I also had to quit about 4 years ago, fatigue is my biggest problem, I would say. Have you tried B 12 sublingual? I take one aday for energy & to keep me from wanting to lay on the couch all day. It is dissolved under the tongue so the B 12 is absorbed more quickly into the blood stream. I accidentally took it at night, once, instead of my melatonin 5mg sublingual. I was up & awake all night & kept getting up over & over, so I know it does work. Speak with your Dr about trying it. I buy it at my local Pharmacy, there is a liquid B vitamin sublingual I am going to try next time. Pacing is the only way to go. Have you read the Spoon Theory? You can find it on the Fibro Forum in the second thread called Fibro 101. It is written by a person who has Lupus but is so applicable to all of us who deal with fatigue & Denim, you would get alot out of this for your husband. I clean my house using the techniques of the Flylady.net She teaches how to clean & declutter by pacing yourself. Well worth both of you looking into.
Well, I have rambled on long enough. Hope you all are doing well today. Hugs, Denise
Thanks Denise--years ago I used to take b12 myself. I never could tell if it worked. I'll tell my husband.
No, he wasn't checked for asthma. The doc gave one of the most assinine answers I ever heard--when my husband said his lungs hurt--he said it was lethargy!! How foolish does that sound, or is it me? I was looking up asthma also today. Some things fit, some not at all. There is no wheezing, or coughing. I really don't know. I spend so much time looking things up. A doctor should be reliable enough to have ideas, we can't seem to find a doctor to do that. The b12 is a good idea. Laying on the couch all day is not good for him or me. I always was on the go. He has always had a slow paced way, I even thought maybe ome of his problems were thyroid related. I wish these doctors went by symptoms more than by blood tests. I believe for the most part most doctors can't diagnose. I come up with ideas before them--not to say I'm right, but like on House (the show), get ideas and rule them out. The docotors have gotten so lazy it seems. Thanks for the tip on the b12. I want him to try it. Bless you, Denise and be well.
I know this doctor isn't bright. I can't afford to pick and choose--however even when I spent a lot of money, the doctor was a cold hearted woman, who didn't do a thing for me. I have chronic pain and she didn't help. So it showed me, the quality of doctors has gotten to be a joke at our expense. I am so glad your grandson is fine now. How frightening to have heard what your daughter heard and praise God for getting your grandson to him. I haven't met one good doctor.None want to be bothered and blow us off. I have no friends or relatives here either to ask. My old doctor who wasn't perfect, but I feel knows more than this guy, has come back and I was considering seeing him again if he is taking new patients. I always believe there should be an answer for things. I have chronic pain and this doctor has not one idea. My husband and I have to come up with ideas and he gladly gives referrals--but to shrug your shoulders is just absurd.How do you have no ideas what's causing my legs to feel this pain. I have ideas. I want a Doctor House--I know it's tv, but someone who has ideas and doesn't just give up. Thanks for listening. And again, I am very happy that your grandson is well.
Grayeagle, you have a great attitude. My hsuband will say well, it can't be life threatening but it's hard when out of nowhere, my husband can't do much. I wonder are they missing something?
The doctors I've seen basically havd us out the door very quick. I'd like to meet a doctor who seemed like they cared and wanted to solve our problems. The new doctors I would think would be up on things, I haven't seen it either. Thanks for taking the time for reading my post and replying, all of the responses help. Bless u all.
Hi Grayeagle, I wish you the very best with social security. Why do they make it so darn hard?
If you were a liar and cheat, you could probably work it, but I can't do that. But if you worked for years and need help, it would be very nice if it was made simplier, you know the way they seem to be making it when the people don't live here. Sorry for throwing that in, but some of the things I read just seem so unfair. Why make it so hard to collect some money you paid into when you need it now?
Good luck to you, sounds good for you.
Lf1980, sorry I didn't get back to you.Everything seems like a major hassle. And I'm not in great shape because of I'm not even sure, I think spine problems--which makes it hard to stand in one spot long. I was an exercise nut and might have done it to myself. Years ago I had a top notch job in NYC, now I can't even get a 99 cent store job. Someone has to work in this house and even with my physical problems, I think I can do it before my husband because I don't think they would diagnose me with anything specific. Sure I can say I have problems and I do think I can work at a desk, problem is, I don't get interviews and as we know, there aren't many jobs. The cheap paying stores would higher a younger person living at home before me. I am so disgusted at the moment and I think the bi-linguals would definitely get a job before me. So a white semi middle ager is now the minority. I think they would even higher an older person before me. Ok, sorry, I went off venting because this is a bad predicament we are in and I believe in miracles but our problems have been going on for years, since we moved where we are.
My husband is falling asleep so often, I think he has CFS, though I'm not a doctor. He says he feels like he has a flu often or just plain sick. He hardly goes out anymore. He was out for a short time yesterday and thinks that's why he feels bad today or worse today. I can't remeber the last time he felt good. I thought calling a lawyer first, might not be a bad idea, but he never did.
Does anyone know if CFS is hard to get disability for? It should be given. He can't work and I feel helpless.
Thanks for listening and an open to any ideas. He has so many things he claims are wrong with him, yet so far. nothing shows up on tests. It seems like they make it all hard--yet I hear this woman with the 14 babies is getting a new home? It's so insane. I am trying to help and stay calm but it doesn't work somedays.
Thanks for listening. Oh, do most of you agree a rheumotologist(sp) is the best to see? It's getting so crazy. He does have an appointment with a gi guy for stomache problems and wants a colonoscopy. It is just getting overwhelming.
Oh, question about lyme disease, aren't you suppose to see that circular rash? Or is that a thing of the past? If so, and you feel that strong about CFS and fibro stemming from lyme disease--we are near Tucson.
I agree, my heart is broken looking at him and I don't feel he should live like this either.