Explain your fatigue

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Allisonc7
New Member


Date Joined May 2008
Total Posts : 13
   Posted 4/13/2009 7:37 PM (GMT -7)   
I have been having classic autoimmune symptoms for about 5 months now. The fatigue is what is really getting to me. But to me it isn't like the sleepy fatigue but more of a depleted, weak, no energy feeling. I can stay awake all day, in fact I can't take naps. Can anyone explain their fatigue exactly so I know I'm not just labeling this "fatigue".

ktp812
Veteran Member


Date Joined Jul 2007
Total Posts : 715
   Posted 4/14/2009 3:46 PM (GMT -7)   
My fatigue is not sleepy either. It is more of a total energy draining-depleted feeling. Like my whole body has been drained of energy and life. I never can sleep during the day. In fact when I lay down I often feel much worse when I get back up. Sometimes I just have to though cause my body is so exhausted. Hope this helps..fatigue really doesn't begin to explain what I feel most days.

Allisonc7
New Member


Date Joined May 2008
Total Posts : 13
   Posted 4/14/2009 4:16 PM (GMT -7)   
I haven't been diagnosed but I know the fatigue is a pretty common symptom across the board. If I have a half normal day such as laundry, grocery shopping, going to the bank etc. it totally wears me out as if I ran a marathon. It feels so debilitating, but my cousin has chronic fatigue and still works every day. So I try and stay positive. Planning to relax the rest of the evening though. Do you also get muscle weakness with the fatigue?

ktp812
Veteran Member


Date Joined Jul 2007
Total Posts : 715
   Posted 4/15/2009 3:40 PM (GMT -7)   
I don't have any muscle weakness and never had. Just the debilitating tiredness and instant loss of energy. Was diagnosed with Lyme two years ago but haven't had much success on antibiotics so I really think I have CFS...I actually don't have many symptoms left except the chronic fatigue. They all have mostly gone away...

Luvzminis
Veteran Member


Date Joined Apr 2008
Total Posts : 2568
   Posted 4/27/2009 6:50 PM (GMT -7)   
I, too get the type of fatigue where it feels like I should sleep, but when I lie down I can't sleep.  It's like my muscles still want to "go" tired as they are!  I really dislike days this type of fatigue hits me.  I honestly don't accomplish nearly as much as I'd like to!

Deb25
Regular Member


Date Joined Apr 2009
Total Posts : 319
   Posted 4/28/2009 5:47 PM (GMT -7)   
Very interesting.  I fit in with all of you, most of the CFS patients I hear about are the ones who are in a lot of pain, and sometimes laid up for days. 
 
I too work fulltime, very fatigued.  I was diagnosed in February, because of a high Epstein Barr level.  I have been fatigued for a very long time, diagnosed with sleep apnea last July, insomnia since then, and now the CFS.  I was looking back at blood work, and found in 2006, my Epstein Barr level was high too, not as high as now though. 
 
The doctor told me the only thing I can do is rest and exercise.  I had been forcing myself to exercise before I was diagnosed because I want to lose weight, so I continued to do it.  I can't increase my exercise time because of the fatigue, and I am afraid to let up with what I am doing, because then I may never do it again. 
 
By 7 pm I am so fatigued I can fall asleep sitting up, but I have to force myself to stay away until 11 or so, if not, I am awake at 4 am, and then I can barely make it through the day.
 
I'm glad there are other's like me, I was beginning to think I was the odd one out! confused
We urge all doctors to take time to listen to your patients...don't "isolate" symptoms but look at the whole spectrum.  If a patient tells you s/h feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!


Deb25
Regular Member


Date Joined Apr 2009
Total Posts : 319
   Posted 5/5/2009 4:02 AM (GMT -7)   
I have brain fog quite often, not sinusitis.  I have had times of brain fog, some much worse than now.  If I get glutened, the fog is intense.  The type I have now is the aggravating, can't think of the word I want to say, can't spell the words, even thought I know them...that's what I suffer now.  I go to get something, get where I am going, and can't remember why I am there.  It's a very distracting fog.
We urge all doctors to take time to listen to your patients...don't "isolate" symptoms but look at the whole spectrum.  If a patient tells you s/h feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

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