New member, probably an old question....

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Deb25
Regular Member


Date Joined Apr 2009
Total Posts : 319
   Posted 4/23/2009 5:26 AM (GMT -7)   
I was diagnosed with CFS in February this year.  My CFS is mostly due to my Epstein Barr being in a flare.  Are there others here who suffer from this type of CFS?  I didn't know it, of course the doctor didn't mention it to me, and I didn't know what I was looking at, yet my Epstein Barr was in a flare in Oct 05 also.  Does it recover, or has mine probably been in a flare for a long time?  The numbers are higher now than in 05.  I also have sleep apnea, gluten intolerance, neuropathy, raynauds, arthritis, and possibly Sicca Syndrome.  So, there are many factors at play, sometimes makes it difficult to know which problem is causing the problems.
 
Thanks for adding me to the group! yeah
 
Deb
We urge all doctors to take time to listen to your patients...don't "isolate" symptoms but look at the whole spectrum.  If a patient tells you s/h feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!


CABLEMAN
New Member


Date Joined Aug 2009
Total Posts : 6
   Posted 8/14/2009 7:30 AM (GMT -7)   
IT SOUNDS LIKE SOMETHING ELSE. I HAVE M.S. AND THIS IS A POSS. DON'T GET SCARED,THERE ARE ALOT OF POSSABILITIES. SP. E-MAIL ME IF U LIKE. GOOD LUCK.
 
                                               CABLEMAN

DreamspinnerCheryl
Regular Member


Date Joined Aug 2009
Total Posts : 59
   Posted 8/14/2009 7:53 PM (GMT -7)   
I've been diagnosed with CFS, and have tested several times with an elevated EBV IgG (1445 last time). My fatigue, and attendant depression, have become so bad as to force me to apply for disability. (I was a hospital RN). I've been reading various studies, many which dispute the EBV/CFS link, but I'm convinced my own CFS is related to untreated mono as a teenager. Has anyone found recent studies to support this link?

alliebridge
Regular Member


Date Joined Mar 2006
Total Posts : 67
   Posted 8/20/2009 2:21 PM (GMT -7)   
My Infectious disease doc (I have Lyme disease) attributed my severe fatigue to a past/present EBV infection. She explains that the virus is always in the body, and waxes/wanes dependent on how your immune system is functioning on any given day.

This last time I was tested it was positive for a present/current infection. A few years ago I tested and it was negative (but showed up as a past infection).

DreamspinnerCheryl
Regular Member


Date Joined Aug 2009
Total Posts : 59
   Posted 8/20/2009 5:22 PM (GMT -7)   
The last time I tested, it was positive for past and reactivated. Haven't gotten the results on Monday's test yet. Switched on Tuesday from Effexor XR to Pristiq, fatigue/aches have been murder since. But, I was very stressed going to see my practicioner. Wonder if the stress didn't make me worse? B/P was high in the office, and I know that presages a crash.
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