College - I usually post on the Lupus site, but I saw your subject title on the opening page. I just wanted to tell you that I had a doctor who didn't know what to do with my EBV either. My liver enzymes were elevated enough to cause jaundice and hepatitis (Not ABC). I had fever, rash, joint pain, exhaustion, weight loss, extreme headache. The doc never referred me out - told me since I'd had mono in college that there was no point in testing for it. Finally an Infectious Disease doc she consulted with told her to test for EBV and CMV - both were positive. Chronic fatigue was a diagnosis thrown around for awhile and then fibromyalgia was identified. I've always wondered what would have happened had I been referred to a rheumatologist at the time of the acute symptoms. But the main thing I wanted to say is you should find another doctor who will listen to you or who is more knowledgeable about what other things could be causing your symptoms. I stayed with that doctor for 9 years - thinking I was nuts or a wimp etc. etc. because I never really got all the way back to normal. A change in doctor's brought about a rheumatology referral and much better care. Not saying you have an autoimmune problem or anything else ..... just that you know something is going on and you shouldn't dismiss it just because your current doctor is.
There are some really great doctors out there, and some that are a total waste of time - and it's your life you're missing while not feeling well.....don't wait!