meniere's disease

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12weeks-
Regular Member


Date Joined Mar 2007
Total Posts : 40
   Posted 8/6/2009 3:30 PM (GMT -6)   
hello a doc yesterday diagnosed me with menieres disease.... so what do i do now ... i know my lymph's are acting up aching and swollen .... how did this happen what could be the cause.... could it be sexually related or just crapty luck anyone with any input would be great .... i know i am fatigue dizzy all the time and hear ringing which is all the time in my left ear also pressure all along my neck and inner ear and under chin what do i do please help

Meniere's Disease
New Member


Date Joined Aug 2009
Total Posts : 1
   Posted 8/7/2009 10:00 PM (GMT -6)   
Hi I am new on here so I probably shouldn't be posting links but I just read you post. I help run a Meniere's Disease support group so I am in contact with people who have Meniere's every day. I have also lived through Meniere's. It nothing to do with crappy luck, there are reasons why you are experiencing these symptoms, but do remember that Meniere's isn't a "disease" as such - it is an idiopathic condition, meaning they don't know the cause or origin. I know this all sounds confusing but there is much you can do to help yourself, connected to your diet, lifestyle and immediate environment. Go here:www.menieres-help.com - you will find lots of info on how to take care of your body and keep the symptoms at bay.

12weeks-
Regular Member


Date Joined Mar 2007
Total Posts : 40
   Posted 8/10/2009 6:55 PM (GMT -6)   
thank you i am still searching for answers to the problems which have taken a hold of me thank you for the advice

Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 8/11/2009 6:19 AM (GMT -6)   

Hi, and welcome to HW.

My dad has a long and difficult history with Menieres disease. As far as I know this is in no way a sexual disease, but rather its triggered by fluids in the middle ear- osmosis between tissue. When my dad had his first attack about 20 years ago they spent a month treating him as a stroke patient as he had no equilibrium, was unable to stand or walk and would vomit violently for hours. After many years of seeing various specialists he was diagnosed- and the first instruction he was given was to cut salt out of his diet, as sodium buildup in the inner ear fluids affects balance.

Although he eats virtually, totally salt free, and it HAS made a difference, he still gets attacks, but not nearly as often. Maybe once a year at the very most? However they can last from 10 days to 3 weeks in duration. During this time he cant eat as he vomits, cant walk (so pees in a bottle) and keeps his eyes shut, cos when they are open everything spins. He lies flat on his back and does not move a muscle, as any movement sets off more giddiness.

He has been put on various medications over the years but the most effective thing has been the depletion of salt intake.

I hope this is of some help to you- this is my personal experience, it doesnt mean thats the way it is for everyone. My dad's case is quite severe and he has really suffered- but he has also learned to manage the parts he can control.

All the best

Maz XX


 Co-Moderator Anxiety & Panic- Depression
 
'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
-DX:Panic Disorder, Agoraphobia, CFS, Fibromyalgia, Chronic Sinusitis, TMJ, Endometriosis,PCOS, Reactive Arthritis, Anemia, Chemical/Noise/Light sensitivity, Trichotilomania, OCD, Seasonal Mood Disorder.
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12weeks-
Regular Member


Date Joined Mar 2007
Total Posts : 40
   Posted 8/11/2009 10:27 AM (GMT -6)   
thanks for your input on your experience with your dad i hope he is doing well. ya i am still searching for another cause to the symptoms i have until then i believe that i can get rid of this. does your dads ear ring constantly or just before he has an attack or something and does he have it in both ears and how is his hearing has he lost a lot of hearing over the years .... excuse me just interested in what i am up against.
thank u

Mazfire
Veteran Member


Date Joined Oct 2008
Total Posts : 1683
   Posted 8/11/2009 6:55 PM (GMT -6)   

His hearing isnt great, but he doesnt get non stop tinnitus, which is a blessing.

Maz XX


 Co-Moderator Anxiety & Panic- Depression
 
'He heals the broken hearted and binds up their wounds.' (Psalm 147:3)
-DX:Panic Disorder, Agoraphobia, CFS, Fibromyalgia, Chronic Sinusitis, TMJ, Endometriosis,PCOS, Reactive Arthritis, Anemia, Chemical/Noise/Light sensitivity, Trichotilomania, OCD, Seasonal Mood Disorder.
-Meds: Zoloft 150mg. Xanax 4mg. Prescription pain meds/anti inflammatories.
-Multiple surgeries- I bear the scars of my poor physical health.
-Age:29. AP first DX @ 10. Fibro etc DX @14.
 
 


cecilNtexas
New Member


Date Joined Aug 2009
Total Posts : 1
   Posted 8/29/2009 4:40 PM (GMT -6)   
Hi Iam new here myself and have a question plz?
 
I have what has been called Vertigo have had this now since 7/29/09 . My doctors are now sending me for a ENG, as well as a hearing test. SO Iam taking it as they might be thinking i have Menieres-Disease. I was told that normaly these attacks ony last for several days but I have had this arkkward feeling for a Month today. Especially when I move my head side to side or try and walk like taking two steps forward and three steps backward all the time. I dont have ringing in my ear at this time but did have for a while also had headaches. Had a CTsan and a ekg with xrays done said these were all fine. Iam taking both Valium and Meclizine which seem to have no effect at all?  Is this normal behavoir to have the unstableness for this long....Iam not able to drive and have to rely alot on my close friends for i live alone. Any help would be apprecaited

12weeks-
Regular Member


Date Joined Mar 2007
Total Posts : 40
   Posted 9/3/2009 7:38 PM (GMT -6)   
i feel your pain i was messed up like that couldnt drive either for like a month was the worst my girlfriend thought i was messing with her good luck

Yanniberg
Regular Member


Date Joined May 2005
Total Posts : 102
   Posted 4/30/2011 12:20 PM (GMT -6)   
My girlfriend came to the US from Australia with Meniere's. I didn't understand it much, and have been researching it nonstop lately. I admit, I haven't seen anything like it really, and my heart really goes out to all of you. I've seen a lot, but to see her as she gets. . . I know she's not messing with me or anything. I've read how many spouses and partners leave, or just blast patients as if they're just lazy or overtired. . . it sickens me to see people so close-minded as to refuse what they can't see with their own eyes.

PawPrints86
New Member


Date Joined May 2011
Total Posts : 11
   Posted 5/27/2011 1:31 AM (GMT -6)   
i think i do have tinnitus (silence for me is not silent) but unfortunatley, the one symptom i dont have is dizzyness, except the odd time you get up too quickly.

how could fatigue be related to inner ear?? hmm

Leebo2012
New Member


Date Joined Jan 2013
Total Posts : 1
   Posted 1/2/2013 4:09 PM (GMT -6)   
Hi i hope i dont get into trouble for this but Hi my names lee im 23 had has suffered with meniere's since the age of 14 its an awful condition to grow up with also i have set an epetition up on the government web site to try and get more research done on this condition but in oder for this petition to get into the house of commons i have to get 1000 signing here is where i hope you people can help me. Can you please sign it and share ? Its time we took a stand and stop having to just live with this condition. Thank you in advance xxxxxxx


Sorry, I wholeheartedly agree with your intentions, but we can't have that on here. If you IM or Private Message people you can give them the info there.

Post Edited By Moderator (Recoveryme2day) : 1/11/2013 6:12:16 PM (GMT-7)


Recoveryme2day
Regular Member


Date Joined Jul 2012
Total Posts : 326
   Posted 1/11/2013 8:20 PM (GMT -6)   
I also have both tinnitus and vertigo and vomiting although they haven't been linked together, by diagnosis, yet. I had all the hearing and balance tests, which showed no inner ear problems, I just had a endoscopy that showed ulcers and possibly Celiac and I am going to rehabilitation for the vertigo which my neuro-doc. is still researching. The right Dr. is sooo important with these oddball diseases that we get, if the Dr. that diagnosed you with Meniere's didn't or wouldn't explain it to you, get another Dr. I had that with the EBV, the doc. who diagnosed wouldn't even See me, let alone explain what it was, I had to look it up on the web and that is not acceptable. Keep in touch.
Crainiotomy Lg. Meningioma Dec.02, Bi-Polar 2004, SMI 06, Gluten/Wheat/Dairy Intolerance, IBS 06, Migraines w/pseudo-seizures 07, Dev. Septum Sur. Sept.07, 2nd Men./Tumor Gamma Knife Rad. Dec.08, Radical Hysterectomy Sept.09 w/instant Menopause, Fibromyalgia 09, Disability since 09, EBV/CFS 11,Vomiting/Multiple Ulcers, Vertigo 12, Chronic Fatigue Moderator 2013.No meds list I ran out of space.
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