Looking to answers about months of Chronic Fatigue

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jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 8/26/2009 9:08 PM (GMT -7)   
Hi all-I haven't been around for awhile.  I have an ongoing problem I would like to run by you who have ME/CFS.  Do you get sicker during the winter?  If so, how long are you down? 
 
The reason I ask is because my ME/CFS flares in October & I am down for the count until March or April.  This winter will be year # 5 or 6 of this & I really am not looking forward to it.  All winter I am totally fatigued, my muscles have no energy in them to do anything, my arms & legs feel like they have 20LB weights on each of them.  I pace myself but can not do much during the day.  I feel like I have the flu most days, with nausea, acid reflux, headachey, & ache all over some days.  I sleep at least 12 hours per night (I can sleep 15-19 hours some days) in the winter & my days are very short.  Some days I am very depressed.  I also have Fibro so some of these could be that.   
 
I have tried all kinds of things but so far nothing has helped.  I even tried a sunlamp but saw no improvement at all.  With my Fibromyalgia I have chronic insomnia & with the CFS I have the unrefreshing sleep.  My Dr had put me on a muscle relaxer for sleep taken along with Melatonin 5mg & I got "some" good sleep.  A couple months ago, my Rhuemy took me off the Melatonin & prescribed Trazadone to help me get into the sleep beyond REM sleep, the sleep that heals.  I was sleeping deeper & felt better for a couple months & I was hopeful this was going to help my Winter Sickness, but now my ME/CFS has begun to flare & I am sleeping more & more & I know the winter sickness is coming on.  I have upped my cyclobenzaprine (muscle relaxer) & the Trazadone but still no help.  I take a B12 in the morning for energy but that is not helping much anymore either.  Anything you have tried or used that has helped with your ME/CFS?   What a horrid illness.
 
Come winter I have to get out my fluffy bathrobes, comfy pj's & slippers.  Forget getting dressed in anything else, which I must say is one bonus.  I have very little laundry in the winter just some pj's, bathrobes & undies.  LOL!!!!
 
Thank you for reading this, many hugs, Denise 


 I have:  Fibromyalgia-dx: 2004, ME/CFS-dx: 2006, Holt-Oram Syndrome dx'd 1975, nasal allergies, food allergies, depression, TMJ, anxiety 

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

 As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

Post Edited (jewelrylady) : 8/27/2009 2:12:26 PM (GMT-6)


craftygeekmama
New Member


Date Joined Aug 2009
Total Posts : 5
   Posted 8/30/2009 3:53 PM (GMT -7)   
It does seem like winter is even harder for me also. I already feel like I'm moving underwater and ugly gray weather doesn't help. I actually wish I could hibernate until the sun comes back.

DreamspinnerCheryl
Regular Member


Date Joined Aug 2009
Total Posts : 59
   Posted 8/30/2009 6:49 PM (GMT -7)   
Winter is miserable for me. The cold hurts me to the bones, and I want to just stay in bed until spring. I'm really hoping the Savella I'm starting tonight helps me substantially, or this winter is gonna be pure hell.

jewelrylady
Veteran Member


Date Joined Jun 2008
Total Posts : 717
   Posted 9/2/2009 9:29 PM (GMT -7)   
Thank you for your replies. sorry it took me so long to get back with you, I was out of town for a few days. 
 
Craftygeekmama, Welcome to the forum.  I am so tired of being "tired" it just feels like it goes on & on, hmm, I guess probably because it does. If someone had told me when I was younger that I would spend my time vasilating between pain & fatigue, I would have said "Never"  I would fight it tooth & nail.  Well, I have done that & it hasn't helped.  I am tired of Dr's not believing that CFS or Fibro are real.  Or they believe one is real & the other is just in my head.  So, I hope you have a great Dr.  That is the key to finally accepting this illness. 
 
Cheryl, yes the cold hurts my bones too.  I am cold all winter.  My hands & feet are always ice.  Do you have that problem?  I had not heard of Savella, what is it exactly?  I have been hiding with my head in the sand like an ostrich because I get so tired of this illness that I just "veg" with it for awhile.  LOL!!
 
Well, I try to enjoy all my good days until winter & I hope you both will have some happy & symptom free days.  Very gentle hugs, Denise

 I have:  Fibromyalgia-dx: 2004, ME/CFS-dx: 2006, Holt-Oram Syndrome dx'd 1975, nasal allergies, food allergies, depression, TMJ, anxiety 

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

 As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


keepingthefaith
Regular Member


Date Joined Aug 2006
Total Posts : 331
   Posted 9/5/2009 10:38 PM (GMT -7)   
I have feared November to April for several years now!
Dx with CD 1987, 3 colon resections, 3 rectal abscess sx, 2 level anterior cervical neck fusion with plate & screws,6/2008. Major depression/anxiety, kidney stones & sx to remove, now 45 yrs old.  Still trying to figure out this disease & all the little extra complications that come with this rollarcoaster of a life with CD. Meds:Humira 40mg every other wk, Imuran .75 daily, welchol 625 x 3 daily, cymbalta 30 mg 2xdaily, Wellbutrin xl 150mg 1x daily, fish oil, folic acid,Vit B12,inject monthly, Oscal w/Vit D, xanex .5 nightly, Gabapentin 600 mg 3x daily, Soma 175 mg nightly & Tramadol/apap 37.5/325 mg prn, vicodin prn. nsaid patches bursitis hips. Paxil 20 mg 1x daily, weaning cymbalta.
 
         
 
 

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