Newbie here! A few questions.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

craftygeekmama
New Member


Date Joined Aug 2009
Total Posts : 5
   Posted 8/30/2009 4:49 PM (GMT -6)   
Hi all
My name is Kelli and Im 31 years old. I live in Ohio with my boyfriend and son. I was diagnosed as having CFIDs March of '08 ( i think).
I became ill after I had my son in 2000, vertigo and fatigue among other symptoms which the doctors told me was Menieres Disease.
It got really bad in '07 and I thought I was going crazy. I spent 5 months on and off in bed because if I moved I would hit the floor.  I went through a battery of tests to be that told no I don't have Meneires but CFIDs. My insurance is through the state, so the medicene available is almost nil. I am on Ritalin to keep me awake, although I did get some samples of Provigil and they helped. But my insurance wont cover it so for now it's ritalin.
 I am currently seeing neurologists who are undecided whether or not I even have CFIDs but maybe MS. They said I have something called footdrop but all the tests spinal,eeg,emg, mri's and cat scans have been normal. I have non specific spots on my brain but no lesions.
I have had to drop out of college three times because of cognitive problems and am only limited to 12 hours a week to work.  I am curious to see if anyone  here with CFIDs has constant dizziness or vertigo daily? Do you have spots on your brain also? I have asked my doctors if people with CFIDs can have spots on your brain and all I get it is "you can have those from anything" but no specific answer. Can CFIDs cause pain and tingling and not just in the joints? I am so glad I found this community! Thank you before hand for any answers!

Post Edited (craftygeekmama) : 8/30/2009 4:56:05 PM (GMT-6)


ladybugdreams
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 9/3/2009 1:11 AM (GMT -6)   
Hi Kelli,  I posted to you in my post.  So, hi again.  I have had Fibromyalgia for some time and have only been dx'd with ME/CFS since 2007.  I knew I had something else going on beside the Fibro because of some symptoms that didn't fit with Fibro.  For example, vertigo.  Oh yes!  I have vertigo quite often.  Sometimes, it lasts for days & sometimes for months & right along with that comes it's constant companion, dizziness.  Such a fun couple but I do like it when they leave.  LOL  I don't have any spots on my brain but I have scarring in my lungs & get that same answer you get: "you can have those with anything or nothing".
 
Yes, ME/CFS can cause pain & tingling in the muscles.  Also, a lot of muscle fatigue & muscle exhaustion. 
 
I have been through a bunch of tests too & most come up normal.  When you are looking for a dx it is hard to have everything come back ok.  I have such a mixed reaction to the news. happy it's ok but sad it is ok because I want to have a dx & get on with taking care of it.  These illnesses can be a roller coaster.
 
The foot-drop, is that where your foot drops down when you are taking a step & kind of trips you?  I can see where neurologist is concerned about that.  It can go along with some auto-immune diseases so it is good your tests are coming back normal.  It can also be attributed to other things that are not anything at all.
 
I hope you find a dx soon.  It is no fun living in limbo. Take care, hugs, Denise
 
 
 
 

 I have:  Fibromyalgia-dx: 2004, ME/CFS-dx: 2006, Holt-Oram Syndrome dx'd 1975, nasal allergies, food allergies, depression, TMJ, anxiety 

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

 As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


craftygeekmama
New Member


Date Joined Aug 2009
Total Posts : 5
   Posted 9/3/2009 9:01 PM (GMT -6)   
Thank you for explaining foot-drop. I fall alot so far I haven't broken anything but I have knocked myself silly a couple of times. The vertigo is exhausting and the dizziness isn't much better. But after having the vertigo for week or two I would gladly settle for the dizziness.

ladybugdreams
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 9/8/2009 12:41 AM (GMT -6)   
Kelli,
 
How long does your vertigo & dizziness last?  My last bout was for about 2 months (a short one) but I think is is finally gone again for awhile.  Sometimes it is gone for so long I forget about it until I go to lay down one night & Hello!!  there it is.  Have you tried meclinaz?  I think that is how it is spelled.  I take that with a decongestant & have found some relief.  Meclinaz is an over the counter med for motion sickness & can be found in a generic form.  My Pharmacist told me about it & it has helped.  I have to check with my Dr before I take it the next time the vertigo & dizziness start, I have some new meds & need to double check.  Just a thought if you haven't tried it.  A decongestant helps to dry up my inner ear & that also brings relief.  Hope you are feeling better.
 
Gentle hugs, Denise

 I have:  Fibromyalgia-dx: 2004, ME/CFS-dx: 2006, Holt-Oram Syndrome dx'd 1975, nasal allergies, food allergies, depression, TMJ, anxiety 

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

 As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, October 23, 2017 4:55 PM (GMT -6)
There are a total of 2,886,263 posts in 316,695 threads.
View Active Threads


Who's Online
This forum has 157790 registered members. Please welcome our newest member, Mrsmoody0325.
895 Guest(s), 11 Registered Member(s) are currently online.  Details
PeteZa, notsosicklygirl, jason12, Iyace, Girlie, ks1905, Worried Guy, straydog, halbert, Jack & Diane, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer